please give me hope and advice>>>

[kayshablake]

its all good all you kind ppl saying all these lovely things but when im at the hpital everday and the consultants are saying please prepare for her not to live either inside or out as we cannot explain why the blood flow is going reveresed then absent then postive when its just supposed to be postive then go absent then go reveresed then deliver its all so confusing....they said thats why it makes them think theres something seriously wrong with the baby so you see its not just a prem baby at 31 weeks at the moment its a prem baby with severe iugr..if you google iugr itl give you loads of horror stories and not much positives its all so heartbreaking its killing me inside...so yeah its great im now 31 weeks but baby is still 7 weeks behind abdominally and 4 weeks behind in head growth....if anything a normal prem baby seems so much more better than what im going to have to deal with and these are not my words there my consultants i try to remain postive but seriously its sooooo hard

 

[SugarKisses]

I am so sorry to see what you are going through I hope with everything I have that bubs will be ok.

I see your from around my area too

 

[Dragonfly]

its all good all you kind ppl saying all these lovely things but when im at the hpital everday and the consultants are saying please prepare for her not to live either inside or out as we cannot explain why the blood flow is going reveresed then absent then postive when its just supposed to be postive then go absent then go reveresed then deliver its all so confusing....they said thats why it makes them think theres something seriously wrong with the baby so you see its not just a prem baby at 31 weeks at the moment its a prem baby with severe iugr..if you google iugr itl give you loads of horror stories and not much positives its all so heartbreaking its killing me inside...so yeah its great im now 31 weeks but baby is still 7 weeks behind abdominally and 4 weeks behind in head growth....if anything a normal prem baby seems so much more better than what im going to have to deal with and these are not my words there my consultants i try to remain postive but seriously its sooooo hard

They do prepare you for the worst, my other half wasnt suppose to live either he was baptised at birth due to that and well he did and he really wasnt a well baby. I hold out hope for you and really hope it does work out as I cant imagine the worry thats going through your head right now

 

[AP]

They certainly do prepare you for the worst, if only to cover their bums too. At 8 weeks i was told the pregnancy with alex was unlikely to last. It did. Then I was told Alex wouldnt have much of a life after her IVH bleed, but here we are!

 

[kayshablake]

and is alex ok sorry to ask just want to here postiives not negatives x

 

[clairec81]

Hi, already posted a brief account of our story but after keeping up with your recent posts i thought i would add a bit. After bleeds at 7, 8 and 11 weeks we were told that our baby wouldn't make it, they said probably the onset of a miscarriage and nothing they could do. We got to 19 weeks with no more bleeding, believing that we had just had a bad start only to be scanned and told that i had virtually no fluid (knew something was wrong as i had a very small bump) and at that point told baby WOULD NOT SURVIVE and actually told by 1 doc that they would give me a termination later that week! We visited a consultant who confirmed low fluid and very little hope but arranged for scan by specialist. We were given some hope at specialist visit and told baby's lungs could develop with so little fluid but his fear was early rupture of membrains. Sure enough 4 weeks later at 24 weeks my water broke and once again we were given 'the facts' i am convinced the tell you the absolute worst case to cover themselves. I managed to last until 33 weeks (which they said would never happen) only to be told at the last scan that the baby's lungs were measuring small and the chances of survival were less than 5%. We were told to prepare for hours, possibly minutes with our baby and they even began to make arrangements for how they would get me to the baby quickly as we knew it would be a c-section. I was given NO hope and told that our baby would die. Anyway she arrived on Christmas Eve and after an emergency c-section i woke to be told by my OH that we had a daughter who was on a ventilator in the NICU - i'm sure this would be devastating news to many but it was the best news i've ever heard! Anyway she made it despite being told she wouldn't. My OH says i should not post this to you as it may be filling you with false hope, however i no that at my lowest point hope was all i had. You must stay strong as long as that baby is there, i truly believe that i owed it to my baby to keep going as no one else was giving her a chance. Please let me know if i can help with anything and take care.

 

[AP]

and is alex ok sorry to ask just want to here postiives not negatives x

OMG yes, its unbelievable tbh!
She is right now destroying the living room

What I'm trying to say is the docs have to tell you all the possibilities, but since having Alex and meeting other preemie mums I've realised there is no definate answer, people are told the worst outcomes and get overjoyed when its not the case

 

[kayshablake]

thanks for them storys girlsss...
well been t hpital toady for another scan and they were gona deliver today however they were happy with ctg although its not the best its still ok..
so i rekon tomorow is a day of decisions to be made and have been told it will be in the next few days :s

 

[Fiestagal]

Mine is a positive IUGR story - We got to 34+6 and weighed 2lb 11 1/2 oz, he needed no assistance with breathing and just needed to grow. I was told the although he was much smaller then he should have been for his gestation the older age of his gestation was a plus as everything is a little more developed. Despite being so small he breastfeed at 3 days. He was the smallest baby in the unit but in terms of independent breathing and feeding he was ahead of the bigger babies.

Wishing you good luck xx

 

[AP]

Fiestagirl thats a brilliant story - I told my OH this morning and he was stunned at Connors lil weight, but only because Alex is was beefer when she was born!

 

[premmiemum123]

So sorry to read your story.
They do prepare you for the worst and they can't make any promises as every baby is different. Sounds like you are being carefully monitored and they are telling you everything you need to know...I have everything crossed for you...x

 

[keldac]

I was unsure whether to reply to this thread or not. I understand EXACTLY what you are going through. I have been through this and it's horrendous. I am so sorry to hear you are going through this and I hope you have a positive outcome.
My daughter was deleivered at 29weeks and 3 days and weighed 1lb 2oz

 

[AP]

I will leave Kayshablake to post everything but baby has arrived - and she sounds positive.

 

[Marleysgirl]

That's great news Sb22, and we'll wait to hear from Kaysha when she's ready.

 

[Agiboma]

thanks sb22 waiting for the update

 

[kayshablake]

yey shes here 1lb 10 oz 31 weeks 2 days i will come back with full update but for now shes doing amazingly well oxygen for first 12 hours then nothing for last 3 days feedn on my breast milk and pepti junior i think its called xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx add me on fb if u cant wait to c pics as its not working for me my name is kayshablake xxxxxx just msg me to say where u from xxx

 

[AP]

ooh i havent seen pics yet babe, have you uploaded them?

 

[Fiestagal]

Congratulations!!!! Wishing you a smooth scbu experience x

 

[Agiboma]

congrats hun so glad to hear she is doing well

 

[25weeker]

Congratulations she sounds like she is doing really well.

What a wee fighter

Xx