Possible ectopic/misdiagnosed ectopic... Terrified and Confused.

[chistiana]

Tawn i m so sorry for what you re going through. Just a quick thought that crossed my mind... Could it be twins, one in uterus the other not??

I just checked out the stats for this and it's called a Heterotopic pregnancy, and the chances of it happening are 1 in 30,000, so very rare indeed. xx

Wow!!! Ok i guess that s out!

 

[Princess_xox]

Hi Hun,

I am sorry to hear about the horrible experience you've received today.

I had a VERY similar experience last May. Heres my story.....

Its a very strange story but here goes. Last April i went to see a physic, whom told me i was pregnant.... i was on my period at the time, but still asked my OH to go get me a test, which he did,i done and was negative.. put the test back in the box and left it... ( this was the Monday) on the Sunday i was cleaning the bathroom and come across the test, picked it up and see a line, i then done another one and another one and all confirmed i was pregnant! so after the intial shock went i then thought but i'm still bleeding? anyhow, the next day i went to A & e and they told me it was normal to bleed in early pregnancy and booked me in for an early scan on the Friday.So i went for my scan and like you they couldn't see anything, at this time i was still bleeding but had no pain, my hormone levels were taken every 48 hours and went from 250-800-2000-3900. Come Sunday i started having pain, low down on my left side, real low down almost on my pubic bone but it was so bad and through out the day it got worse. So i went to a & e again. They told me it was all fine and my cervix was closed and that my pain was a bit to low down for an eptopic and my HCG levels were not indicating an eptopic. So i went home and was told to come in for another scan on Tuesday. i had awful pain and it wasn't just lower left pain it was horrific gas pains all over my tummy too. So Tuesday i get up to get ready for scan and i start bleeding everywhere, OH called an ambulance and i was rushed in. They done a scan and again they couldn't see anything but could see something on my left side, LIKE YOU they admitted me and was going to take me down to surgery, and then the doctor came in and said they had my bloods back and they were down from 4000 to 800 so they think its a misscarriage. SO THEY SENT ME HOME! so one min i'm about to go down for surgery the next im home! anyway i had my bloods every 48 hours and they went down on there own, i never see a baby or a massive clot or anything when i bled so i still will never know whether it was eptopic or a misscarriage all they said was wherever it was it died and came away on its own.

They think it could have been either a blood clot they see ( due to the bleed) or a cyst.

But here i am 10 months later pregnant again, early days i'm only 5 weeks, but whatever happens try and remainpositive, and you know your own body, if somethings not right then go straight back in xx

 

[Sproglett]

I have had a previous ectopic pregnancy which ended in a partial salpingectomy, (tube removal of my right side). I didnt go to hospital with pains, but because i had a bleed for 5/6 days. I had a scah and should have been 6w, they couldnt see anything at all, over the following 3 weeks i had several more scans and bloods taken every 48hours - 4 days, to start with my bloods were doubling as they should and the scans were still showing nothing, I had ovarium cysts at the time which i have not suffered with since, nore before that pregnancy. By the time i was 9 weeks my bloods had stopped doubling and they had still seen nothing on scan so i went in for an emergency lapersocopy as they were concerned of a molar pregnancy. they found i was pregnant and baby was in my right tube so i had to have part of the tube removed.

With this pregnancy, i have had to have early scans because of the previous ectopic, this is my results

BFP on 31/12/11
Scan 12/1/12 (6w+2 by LMP) at EPU to ensure baby is in the right place (sonographer saw what looked like a water bubble in my womb which could indicate ectopic again) return scan booked
Scan 26/1/12 (8w+2 by LMP) at EPU saw baby 6w+5 and saw hb fluttering away and Midwife booking in appointment
Bleed 27/1/12 went to Drs booked in again at EPU
Scan 30/1/12 (8w+6 by LMP) at EPU saw baby 8w+2 and hb still strong, baby had 11days growth in 4 days (although scans are not the law they are just an estimate lol)
12 week scan 1/3/12 - BABY IS PERFECT! measuring 12w+4
16 week midwife checkup at 15w+1 - heard babies heartbeat

i really hope that your baby is just like my current one and was just a little too small for the sonographer to see anything.

 

[lanicol12]

I can't believe they put you through all that, I'm so very sorry

Really hoping and praying for good news for you today with your bloodwork

As other posters have said, the fact that the saw a sac hopefully means they're wrong about the possible ectopic and hopefully it's just too early to see much, fx

 

[Babee_Bugs]

Awww hunnie... so sorry your having to go through this, no-one should have to go through any of this.

Sometimes there cant pick up a heartbeat/see baby untill 6-7weeks+

I really do just hope its too early. With whatever there can see near your tube, maybies its just something un-related, but because your pregnant and there is a ? regarding ectopic they are putting 2 and 2 together and getting 6!...

I do understand the medical staff are worried for if this is a ectopic pregnancy and wanting to get you down to theatre e.t.c... But you need to put up more of a fight and get them to explain Why???, Whats they Evidence??? also get a Second or third Opinion!!!...

When i was pregnant with my 1st i just let doctors do what they needed, but it left me bitterly confused!!!... with my 2nd i double asked/questioned everything!!! to the point i had a blazing row with my consultant! and after there prepped me for my c-section, there told me theatre was closed... so me and my Partner trooped it off to another hospital...

Start demanding Answers hunnie...

I really hope this has a happy ending x x

 

[Tawn]

First of all, I would really like to thank you all for your support and replies. Having all of you hoping and praying for me means so much, and I am really sorry to say that I don't have good news after todays hospital visit.....

My numbers took a nosedive--from 239 to 66 so the pregnancy is in fact tubal and it is dying quickly. The sac in my uterus is indeed a "pseudosac" and the yolk sac in my left tube is not viable.

It is devastating, all I can do is cry. But I had a feeling it was going to be this outcome because all of a sudden yesterday I just didn't FEEL pregnant anymore (with my numbers dropping that fast, it makes sense.....). If there is any good news it is that it seems my ectopic is going to "resolve itself" meaning that I will either miscarry and bleed or more likely my body will just absorb the pregnancy. That means I don't have to take the MTX shot or get the tube removed.

I am absolutely heartbroken, I wanted this baby so badly and am terrified how long it will take for me to get my cycle/ovulation back

I wish nothing but the healthiest and happiest 9 months to all you lovely ladies, and thank you again for the support

 

[Sproglett]

i am so sorry you went through this, as my earlier post said, i have myself had an ectopic pregnancy and unfortunately had to have part of my right tube removed, the operation took place on 6th May 2011, i then had a d&c aswell to clear out my womb because of my previous missed miscarriage. a week after my op i had a random cycle (which i shouldnt have had) but then was back on track 4/5 weeks later, i did fall pregnant again in the august but unfortunately had a miscarriage in the september. But i'm now happy to say i'm 16w and baby is doing really well, i wish you all the best in the future x x

 

[keepholdingon]

Sorry to hear you are going through that!!! keeping you in my thoughts xoxo

 

[lanicol12]

I'm so very sorry to hear that x

 

[bexxc]

i am so sorry. i hope your heart heals quickly. i wish you didn't have to go through this at all

 

[marymoomin]

I have had two: an early diagnosis at 6 weeks which was treated with methotrexate and a late one that nearly killed me at 8 weeks which ruptured and I lost the tube. The not knowing is awful. Thinking of you.Please pm me if you need to chat xxxx

 

[chistiana]

I m so so sorry hun. I know nothing we say will make what you re goig through easier but i just wanted to tell you that even though nobody guarantees this after a mc you are way more fertile and most women go back to normal cycles very soon. I conceived my rainbow only 5 weeks after my 2nd mc without even having had an af. I wish you all the best for the future, find comfort in you dh n get all the support you can from friends and family. Pm me of you need anything

 

[Tawn]

I have now started bleeding heavily, and now we just have to worry about whether this is a normal miscarriage or a rupture, but we are leaning towards m/c.

Thank you everyone for the support. DH and I have spent most of the day grieving together but we are determined to try again as soon as possible. We both desperately wanted this baby, and I didn't think it was possible to be more sure that we want to have a family together, but we now know that there is nothing we want more.

Bless you all for offering support during this difficult time.

 

[Leese]

I have now started bleeding heavily, and now we just have to worry about whether this is a normal miscarriage or a rupture, but we are leaning towards m/c.

Thank you everyone for the support. DH and I have spent most of the day grieving together but we are determined to try again as soon as possible. We both desperately wanted this baby, and I didn't think it was possible to be more sure that we want to have a family together, but we now know that there is nothing we want more.

Bless you all for offering support during this difficult time.

Aww chick so very sorry to hear this, u will bounce back stronger from this and I pray u get ur sticky lil bean ASAP you seem like a lovely woman an I hope u an ur hubby can support each other through this

Sorry again lovely hugs xxxxxxx

 

[destynibaby]

So very sorry for your loss. I hope you get your rainbow baby soon, and we see you back here.

 

[digs]

Hay just spotted your post and wanted to let you know, I went through similar last year. I knew something was wrong and went to my dr, they sent me for a scan and said they couldn't see anything anywhere. Did a blood test told me I must have already lost it (and not noticed - I've lost 3 you would notice) then a day later I got called in to hospital on a sunday at 6pm had to get someone to look after my son, they were just about to put a drip in and said I would be in for the night, then the dr got called out, when they came back they told me I could go home and they would repeat the bloods in 2 days, they called me the same day I had the blood repeated and said I needed to come in for emergency surgery the next morning, so I googled things.....NHS guideline say that if you have low levels lower than 1500 (I was about 1102) then they can offer you an injection that will cause you to lose the baby on your own. All of this freaked me out, I went in the next day and said I wanted the metotrexate injection instead they agreed. I lost it and left the hospital just felt forced into it, I felt fine and was so sure I would miscarry on my own. In the end a stiff talking to from my hubby and I went back and had the injection, I lost the pregnacy 7 days later (how they couldn't see that on the scan beats me and if you ask me if that had been in my tubes they would have ruptured - I was about 10 weeks) I don't know if they got it wrong or not but i hated the experience, just added to my hate of hospitals.

All in all though I have come out the other side and pleased to say I am expecting again. Due in October. Chin up chicken if you want to chat further let me know.xx

 

[md13]

I have now started bleeding heavily, and now we just have to worry about whether this is a normal miscarriage or a rupture, but we are leaning towards m/c.

Thank you everyone for the support. DH and I have spent most of the day grieving together but we are determined to try again as soon as possible. We both desperately wanted this baby, and I didn't think it was possible to be more sure that we want to have a family together, but we now know that there is nothing we want more.

Bless you all for offering support during this difficult time.

I am So sorry for your loss Tawn i hope you get rainbow soon x

 

[katherinegrey]

So sorry for your loss honey xx

 

[Misdiagnosed]

misdiagnosed ectopic,given methotrexate on face book... it has info and support.
I have a little girl who is 6 now who made it through the MTX and I have done years of research on this please find me on face book.

 

[Misdiagnosed]

sorry mis read.