Recurrent Miscarriage Thread

[blueblue]

Dairy & 2kids - sending lots of hugs

 

[Lynny77]

Hi ladies- thought I'd come and join since I'm currently miscarrying for the 3rd time. After my last mc the clinic did the rpl testing and everything came back normal. I am 37 though so maybe that's too blame? Who knows. It just sucks.

 

[Hope39]

Hi ladies- thought I'd come and join since I'm currently miscarrying for the 3rd time. After my last mc the clinic did the rpl testing and everything came back normal. I am 37 though so maybe that's too blame? Who knows. It just sucks.

Sorry you have had to join here Lynny77. I am 38 and have been trying since i was 34 so not necessarily age

Did your rpl testing include nk cells? xx

 

[Lynny77]

Hi Hope! You helped me out in the October thread I'm sad this pregnancy didn't work I really thought this was my take home baby especially after seeing a good heart beat but unfortunately no.

I never really believed age played a factor but just lately I've been reading stats online- I just googled miscarriage to see how long this would take. I've never miscarried naturally and I've been bleeding and cramping like a period since monday- and of course the article says- you're more likely to miscarry if you're over 35. At one point I read the stats on how likely are you to miscarry once you've seen a heartbeat and it was 2% but if you're over 35 then it's 16%. So that's got me all paranoid about my age. My grandmother had healthy pregnancies at 41 and 42 and I also have a great aunt who had a baby naturally at 48. So I know age isn't that big of a deal. I'm just overthinking it now.

They did the standard rpl blood testing but not sure if it included that. Squig had also mentioned a scratch test as well to look into. I just emailed the fertility clinic this morning to tell them my sad news so I'll ask them about it.

 

[hope1030]

Dairy, 2kids, lynny -- I'm so very sorry to hear about your losses. Sending hugs your way.

I have an appointment today with my new OB to discuss whether any rpl testing may be appropriate at this time (two back to back mc). Not sure where to start, but I thought it may be a good idea to at least request checking my progesterone. When we were first TTC, I kept noticing my luteal phase was a little on the short side. My old OB wasn't all that concerned about it. Anyone else have experience with luteal phase issues?

 

[Hope39]

The standard rpl testing doesnt normally cover nk cells but you are in america so could well be different for you.

I had the nk cell test after my 6th miscarriage and started the protocol to treat it, i made it to 27w with isaac and then had the abruption and im nearly 15w now on the same protocol although my consultant did add in hydroxycloroquine (anti malaria drug) , its something new that he is researching that also helps to dampen my immune issues. i just hope its dampened enough to not suffer another abruption although this time i will be in hospital from 26w so if i have an abruption at least i am there xx

Hope1030 - my luteal phase at its shortest was 10 days i think and it hasnt caused a problem for me x

 

[dairymomma]

Lyyny-I know a lady who has had 3 successful pregnancies in her 40s. Her last baby was born 10 months ago...just a few weeks AFTER her 49th birthday...I do think age can have an impact on your fertility but I also think it's typically a small impact. I know many women who have had babies well into their forties, including my mom.

2kids-I'm sorry for your losses. It's never easy and I hope you find some answers.

AFM-blah today. My bleeding is heavier than I remember having (I'm not hemoraghing but it's still heavy period flow when at this point, I'm usually down to light/med flow) but I keep reminding myself that I did miscarry twins so I suppose it's to be expected. DD is also in the bathroom with tummy trouble and I'm getting cabin fever as a result of being stuck at home this week, sick DD, and teething LO. I just want this week to be over with...

 

[Lynny77]

thank you hope39 and dairymomma! That eases my mind.

I stopped in to see my doctor today just for some pain meds to get me through the weekend and she said I was still young lol. I started this journey at 35 and didn't realize by the time I turn 38 this summer I still wouldn't have a baby in my hands. And the journey continues.

Dairy I know what you mean about the cabin fever. The waiting around is killing me. I haven't passed the baby yet and I guess if I don't by monday they'll do a dnc.

 

[2kidsplusttc3]

today just makes me so incredibly sad. I can not seem to stop crying.

how many losses can one take?

 

[Hope39]

Hugs 2kids, how many losses have you had hun?

I've had 6 first tri mc and a 27w neonatal loss xx

 

[dairymomma]

2kids-I've had 3 successful live births and 10 first tri losses and 1 early 2nd tri loss. It's not easy being here but what's kept me going is the fact that I can carry to term and I've always felt like I can't end my fertility journey with a loss. That may or may not be changing but I've got options to look into (hyper-fertility and something going on with my uterus and/or lining) so the plan is to see what a scope or hsg shows and treat the hyper-fertility thing for a few months and go from there. If the next pg is another loss, I may request a tubal but I'm not making any firm decisions right now with a m/c so recent. (I just m/c twins on Monday.) Being sad is perfectly normal. It's such an emotionally draining thing to go through once and to have been in this situation recurrently makes it even harder. Hang in there and know I'm sending lots of .

AFM-scan report came back from Monday's scan. I'd had high hopes after that one because bubs still had a hb at that point but apparently it wasn't such good news after all. I wondered why the sonographer hadn't told me the heart rate but it was down from 128 to the low 90s so a big drop and there was visible bleeding around both sacs. I'm guessing she didn't want to scare me in case this was just a blip but the miscarriage was obviously starting then. The drop in hb, the bleeding, everything is pointing more and more towards this being an egg that shouldn't have caught-which supports the hyperfertility diagnosis. But still waiting on the test results from the tissue I sent in so we'll see what that shows too and then I'll have to see what the dr feels is going on. Though I will push the hyper fertility thing...For now though, I'm doing what I can at home. I've been reading up on natural treatments and I think I'm going to add an extra fish oil and CoQ10 to my supplement routine to help strengthen my eggs, maybe try some royal jelly though I'm not as sold on that, possibly using a progesterone cream, and losing weight. I know excess fat can store hormones and hyper-fertility can be caused by hormone imbalances so just another benefit to dropping some much needed poundage, right?

 

[Tasha]

Welcome to the new ladies. I'm sorry you had to join here

I think that age obviously can be a factor but I also think it can be a lazy answer for some doctors. What I mean is that if say a woman at 25 has 3 miscarriages and a woman at 35+ has three miscarriages, they both occur in the same circumstances, they both have testing and no answers, the 25 year old is automatically classed as unexplained and the 35+ is automatically lumped into an age thing. But they can't know it's age, it's an assumption. I think it stops them looking for other reasons than just what falls in the usual rpl panel. I'm not sure I'm making sense?

 

[SweetV]

Tasha that makes perfect sense. I had to stop my doctor from telling me that age could be a factor as 2 of my mc's were very close together and in my 20's I took some time off then my still birth followed by 2 miscarriages and they tried to tell me my age was a factor.... um, no. It was just an easy answer for them as they couldn't find anything else. If I had of had the testing done in my 20's I don't think they would have been so quick to say that was the cause yet I was still having miscarriages in my 20's.

 

[Tasha]

Exactly what I was getting at sweet. I'm sorry they said that to you

 

[Lynny77]

Thanks for all the age reassurances ladies. It does make me feel better!

I'm still at home bleeding and cramping but nothing of note has passed yet. I go back to the early pregnancy unit on monday and they'll schedule me for a dnc I'm guessing if I don't pass it naturally before then.

 

[blueblue]

Dairy - I hope all your new approaches bring good results, I'm so sorry this didn't work out, we were all praying for a happy ending for you

re: short luteal phase, I had the opposite issue - my cycle was a little longer at 31 days, I started having acupuncture for two months before this pregnancy and the last cycle went down to 28 days and I had less PMT so I think it really balanced out the hormones. The acupuncturist specialises in fertility (she's Zita West affliated) - although she charged the same as normal acupuncture. It also helped so much with the grief from my previous losses, I felt pretty broken after the last one and I know you have been through many more losses than I have.

Lynny - I also think they blame age when it's not always the cause. I think they don't know what else to say when the screening comes back clear. As part of the RPL testing I had my TSH, LH and AMH (ovarian reserve) levels checked to see if everything was ok. I know it's not quite related but I can think of 3 or possibly 4 friends/friends of friends who are in their 20's/very early 30's and have struggled to conceive, sometimes for years and then have miscarried their first pregnancy.

I hope everything passes for you soon

 

[mamadonna]

Hi everyone,not sure where to start really,firstly just wanted to say sorry for all your losses girls I know how truly heartbreaking it is!
Secondly me and my husband have been trying for baby number 6 for 5 years in that time I have had 3 losses one including my left tube!anyway I have had all sorts of tests oh and my thyroid removed also due to graves,anyway 12 days ago on my 40th after 3 years since our last mc we got a bfp,I couldn't believe it!but early hours of this morning the bleeding started I'm beyond gutted I really can't keep doing this,all my past tests came back fine, what on earth is wrong with me?
Sorry for the long message I just don't know where else I can put this xx

 

[Tasha]

That was true for me blue, my first loss was a stillbirth and she died on my 22nd birthday, my next loss (first tri loss) was the beginning on my recurrent losses, I was 23 and 2 months, since then I've gone on to have 15 more first tri loses and another stillbirth, I'm 30 next month.

Mama, I'm so sorry. life sucks sometimes. What tests did you have? Did they include natural killer cells?

 

[dairymomma]

*sigh* one of 'those' days today...I'm avoided Facebook as much as possible atm because literally every other post in my feed is about babies, pregnancies, and newborn announcements. It's not that I'm unhappy about this news because these are all women I know and care about but it's heartbreaking for me because that oh-so-strong-and-horrid feeling is back...You know the one...That one that makes you feel so desperate to get pg again and as soon as possible? Yep, that's the one. I keep telling myself it's for the best, that I NEED this break for not only my physical health but my mental and emotional health as well but the rational side of me isn't winning the battle against my insanely irrational side. I wish there was an 'off' button for that side...I know it'll be better in a few weeks when this isn't quite so fresh in my mind but right now, it just hurts. And I'm jealous. Oh so jealous. Doesn't help that I had to cancel a date with DH for today because I've sinus stuff for the last 2 days, LO is teething so crabbier than all get out and only wants Mom, and I had a mini-migraine this morning that laid me up until just a few hours ago. Whatta day. Whatta week actually. I can't wait for tomorrow to start and for it to be a fresh start...

Momma-I'm so sorry for your losses. Have you had your thyroid function numbers checked lately (esp when you get pg)? What does your dr say about your losses? And are you on any medications while pregnant-progesterone, baby aspirin, lovenox or heparin, steroids, etc.?

 

[Lynny77]

blueblue thanks for the age reassurances!

mommadonna I'm so sorry for your recent loss. Big hugs. Is that sweet little cavi in your pic?? We have one and he really is the light of our life. With this recent loss we're getting another cavalier! He'll be ready to come home in may. I may not have babies but I'll have puppies!

Dairy I know the feeling well. I'm still bleeding and want to try right now! Hope your sinus's get better and tomorrow is a new day.

So last night I passed the baby. It was more painful than I could've imagined. It lasted a couple hours and I wouldn't wish that on my worst enemy. I was howling in pain but as soon as baby passed I felt better. I wanted to save him but we just couldn't. Lot's of blood as well. It is a relief that it's finally over. It was a week of waiting for it to happen. I woke up feeling empty and sad. Now it's hitting me that I'm no longer pregnant but I kept myself busy and did some retail therapy and that helped. I still have my appointment at the hospital in the morning and they'll do blood and lord knows what else. Hopefully it won't drag on too long.