Recurrent Miscarriage Thread

[dan-o]

Thank you for all the sound advice ladies, so sorry for what you have been through.

I am going to do the erpc on Friday. I phoned EPU today and they have requested genetic testing on the baby (about time!) and this is the best way to do this, plus my hcg was 87,000 yesterday so I won't go naturally any time soon. Medical management would be logistically very difficult for me, plus I'm not bothered about seeing the baby like I would be further on. (If that makes sense)

Sunshine I never felt safe until my rainbows were home and gaining weight, both my boys slept next to me until about 8 months, I only moved them to their own rooms because they got fed up! Even now I watch the rise and fall of their chests when napping and will go and check on them if they don't move on their camera monitors at night.

 

[garfie]

Dan-o - so sorry to read this - no words just BIG hugs Hun.



X

 

[mowat]

I ended up with Asherman's after several D&Cs. You can ask to have more of a suction procedure (as opposed to the scraping of a normal D&C). Not sure what it is called.

 

[floridamomma]

Dan-o, there are several issues that become worse with time. With thrombophilia age definitely plays a role so you might have been fine before but not anymore. Antiphospholipid syndrome, an autoimmune disorder, fluctuates almost like flare-ups. Apparently so do nkcells. My nkcells were classed as aggressive before I had my son, afterwards they went back to normal.

You can try and get an NHS referral to Mr Shehata's recurrent miscarriage clinic, in which case you will probably be ready for testing by the time you see him/his team. Normally, you should wait six weeks from your last pregnancy before having any tests.

Florida, if all the usual tests have come back as normal, have you considered NKcells as a cause? Can you get tested for that where you are? Or just treated with steroids?

I'm in the states. I don't know if anyone tests for it. What exactly are nk cells.

 

[sportysgirl]

I have been to my gp today following my third miscarriage to see if she can help.
She took lots of information and said she wanted to read around the subject and ring me later.
She did ring and is booking me in for a scan ans some bloods.

 

[Hope39]

Sporty - is she referring you to a recurrent miscarriage specialist too?

Xx

 

[sportysgirl]

I think so, she said she would refer me once I have had a scan ans blood tests. X

 

[dan-o]

Hi ladies. Baby did go off for genetic testing yesterday, it was already arranged by EPU, I didn't have to whinge lol.
My ERPC was actually done by the head gyne from my hospital, he was really nice and came to see me afterwards, explaining that the results take ages and not to pin my hopes on finding anything. It's also being to tested for molar (had partial mole and chemo in 2009) but there was nothing suspicious with my scans or hcg levels.

RMC clinic appt came through in the post this morning, which was a nice boost, it's only 8 weeks away, so I have some light at the end of the tunnel now. I can't see me even getting AF by then, so definitely won't be pregnant by then.

 

[dan-o]

Hugs sportysgirl, hope you can get some answers too xxx

 

[Hope39]

Hi ladies. Baby did go off for genetic testing yesterday, it was already arranged by EPU, I didn't have to whinge lol.
My ERPC was actually done by the head gyne from my hospital, he was really nice and came to see me afterwards, explaining that the results take ages and not to pin my hopes on finding anything. It's also being to tested for molar (had partial mole and chemo in 2009) but there was nothing suspicious with my scans or hcg levels.

RMC clinic appt came through in the post this morning, which was a nice boost, it's only 8 weeks away, so I have some light at the end of the tunnel now. I can't see me even getting AF by then, so definitely won't be pregnant by then.

The genetic Testing can take about 6-8 weeks, the only one I tested was a normal girl

I wouldn't pin your hopes on it either, with so many losses you have an underlying issue I think

My af arrived about 6w after erpc so it might arrive by then

You need to make sure you don't get pregnant until you have had your results from the testing your rmc consultant does , that's about another 8 weeks, maybe 6. You need to see whether you need any meds to assist our next pregnancy

4 months isn't a too bad a wait, I've had 2 periods in the last 4 years where I couldn't ttc for 9 months, I'm now on my 3rd break, it sucks big time

Xx

 

[dan-o]

Thanks hope, sorry you are on a break. I guess what you've just been through will take some time to get over physically? how old are you now?

It all just takes up so much time, doesn't it? The waiting kills me inside each time, I'm not good at it at all!! I had a massive wait after the molar/chemo and it traumatised me so much I then became sub fertile! I seem to have the opposite problem now, my body is allowing everything to implant! Maybe I'm just getting too old, I don't know!

 

[Hope39]

I'm 37 now, will be 38 when we next ttc

It takes up loads of times, 2010 i got my first bfp

I quite enjoyed my last break, I lost loads of weight and got myself ready for that bfp

Back to losing weight again, boring, mind you the amount of stress I've had this week it should fall off

Xx

 

[dan-o]

We are the exact same age then! Xx

 

[kelly1973]

I think you ladies are the strongest I ever met xxx

 

[Hope39]

I think you ladies are the strongest I ever met xxx

Anyone on this journey is strong Kelly, if we weren't strong none of us would be here now xx

What don't kill you makes you stronger

Xx

 

[Tia30]

Very true Hope, even when your worst nightmare is realised, you somehow find the resolve to carry on.

Went to the gp today, for some reason being there made me feel like an emotional wreck. God only knows why, I see babies and pregnant women everywhere but for some reason it bothered me for the first time there.

The GP was cold. Clearly hadn't even given my patient notes a quick scan, she talked to me like my baby was living and I just your average post natal woman with a suspected infection. I don't know what I expected, maybe a 'how are you coping' would have been nice.

I hope you are all good. I shall be trying after my next cycle. Not sure I'm 100% ready but I don't think time will change how I feel. Onto the 6th pregnancy I will go, hoping for my rainbow.

I hope you all get your rainbows soon. Xx

 

[Hope39]

Tia - I despair at the medical profession sometimes . I ended up at the gp last week too for an infection, thankfully he had read my notes

It's a shame the minor injuries unit couldn't access my info.... A stitch appeared out of the infected area Friday so I nipped to minor injuries

They asked me tons of general questions including any major op's so I said a c sect, baring in mind I had told reception I wanted my wound looking at.... I showed the nurse the area and she said "oh have you had a small op lately", my reply c sect, her reply "oh lovely, how is your little baby doing" !!

My best mates 3yr old also asked me how old my baby was now!!

Tough week for me last week

I don't see too many pregnant ladies or babies because i work from home, i rarely go out

Fingers crossed for next cycle x

 

[Tia30]

That sounds like a very tough weeks Hope. PALs have asked to record my debrief on Monday. Not sure how I feel about that to be honest. Laurie looked perfect when she was born, everything where it should be, except she wasn't alive. That bloody doppler is haunting me, started having nightmares about it recently. Not sure how I will cope next time. I dreaded scans before this happened anyway.

Guess my association was always a negative one. Maybe they will admit me for the last 12 weeks of pregnant. That was my consultants suggestion when I was rocking on the delivery ball when he last saw me. Maybe he felt sorry for me. Who knows.

I know in my heart that they missed something on the Friday night. I'm convinced my placenta hada partial silent tear that they missed or clots. I drive myself crazy thinking of this.

my cousin was due a week before me. Single mum, abusive ex, but she doesn't have a hostile womb.

I prayed everyday for her to be ok. Feel like there's nowhere left for me to go now. My friends don't understand. One of my closest friends said she couldn't come to the baby's funeral as she had work. I haven't seen her since. I don't think I can after that.

I need all the luck in the world Hope, and then some more. And I wish you all the luck in the world too xx

 

[tubs]

Hi all! Can I join? I'm sorry I haven't read previous posts. I'm pretty certain in having my 5th miscarriage. A scan tomorrow will confirm. I have a baby boy and to this day I wonder how that pregnancy was successful!! I have been on every drug under the sun on all my previous pregnancies. This time I'm just on progesterone, high strength folic acid, aspirin and eltroxin for my thyroid.
I keep thinking back to my successful pregnancy and thinking what was different, why did that work out? I just realised that a few months before I found I was pregnant with my son, my doc had upped my dose of Metformin to 1000mg. I have PCO.
This time around I'm not on metformin at all, I'm wondering is that the extra medication I need to sustain another pregnancy?

Sorry I'm rambling now. I feel sad about this loss but I honestly don't want to even shed a tear. I've done all that over and over again! I just want to focus on moving on.

 

[Hope39]

Whats the debrief Tia? I will be putting in a complaint so no doubt will have to go through this

Isaac was also perfect, everything there just very small. The events of that day still haunt me too, your not alone hun, i know deep down things could have been different.

Little things pop into my head that make me think they should have acted quicker. After she did a scan she then placed her hand on my stomach and said i was contracting. So i was contracting and gushing blood yet they still pissed around for probably another hour. It wasn't as though they kept doing different things, i had a doppler check, a scan, an internal, a trace and then another scan, then i was put to sleep, and isaac was born, all of that took 1hr 50m!

I just wonder whether there wasnt a theatre available or they was waiting for someone to finish theatre? how may theatres do the labour dept have? The obstetrician kept disappearing out the room too or she was dealing with another patient, i really dont know, something isnt right and i cant put my finger on it. Another lady was in hdu when i got there

She was meant to be one of the best obstetrician they got, my endocrinologist rang me to see how i was and her words were "Mrs A is a top obstetrician, i cant comment on your thoughts but she made a judgement that day that was obviously the wrong one" No shit did she make a wrong judgement, and the ambulance service too, ignoring what the hospital had told us and didnt blue light me

Tia if you are on facebook and want to hook up then pm me, i am deactivating my old facebook account today due to some evil cow that thinks it funny i lost isaac, she also plastered a pic of my house, address and tel no on there too with a load of shite that she is going to rob us, dumb idiot, nothing that the police cant sort later when i show them all her evil messages and threats

My new facebook account is purely family, close friends and baby and bump girls ( i have more baby and bump friends than i do my own family and close friends put together)

I shared a pic of isaac on there too, i never put a pic up on my old facebook acc, i felt a bit protective of him and didnt want the world to see. My OH shared a picture though, its his little boy too and he wanted to. whereas i am, noooo, i dont want everyone to see him.

Keep strong hun and we are all here for you

We both need a shit load of luck to get us through our next pregnancy, i cant get admitted to hospital unless i want to sell my business which i dont xx