Recurrent Miscarriage Thread

[petitpas]

TTC, I don't think the baby karyotyping will be hugely useful in determining your and your OH's genetic makeup. After all, your baby may have developed its own translocation...
TBH, I wouldn't worry too much about your own testing until it actually comes back with an issue. Having a BT is very rare so most of the time this test is there to tick off another possibility off the list.

As for the baby's test, that can be quite useful, especially if it comes back as normal. It gives you proof that whatever treatment you were on is not sufficient and you need something else as well. There's no point repeating the experience.

My fifth pregnancy came back as 'normal'. I had been on progesterone, extra folic acid, heparin and aspirin. A doctor at St Mary's tried to tell me at first that it was still 'bad luck' but couldn't argue with the test result. It gave me the push to switch doctors and see Mr Shehata who could offer me an added ingredient for my next pregnancy (steroids). It worked with my son and now I am heading into second tri for the second time so it seems to be working again.

Unfortunately, your baby may have had a problem with it, such as a trisomy. This is also a useful result in a way. It explains what happened, it really was bad luck and you may have already found the right treatment for you, you just have to give it another try

 

[Hope39]

Hello Hope, how nice of you to pop in! That's good that there is an independent review panel, which is also looking into this. It shouldn't be up to the parents to do all the legwork (although if I was in your position I would be checking everything myself, too). I hope they can give you some kind of answer so you know what to do next. Otherwise, how are you healing from the section? I've heard crash sections can really take it out of you
Still thinking of you loads, honey

I always wanted an elective c-sect then decided i didnt so having a crash c sect concerned me a little. I dosed up on oramorph for about 24hrs then it made me sick whilst i was in my room and in nicu too. That place was so hot i thought i was going to pass out. Isaac incubator was 38 degree's. I could have sat their in a bikini.

i was up on my feet the next day with no problems at all, although adam still pushed me round in a wheelchair whilst in hospital. I was a bit sore but nothing too drastic. I rested for a good week but it's really hard to do nothing so by the second week i was doing bits and bobs.

my car insurance allows me to drive again once the doc has said i can, i havent seen the doc yet and making the most of my chauffeur.

I think i will go see them tomorrow because they need to verify my id for my medical records

xx

 

[Squig34]

Hi Hope, it's nice to hear how you are doing, I think about you a lot. I'm glad there will be an independent review of what happened to Isaac, and I hope you can get some answers.

 

[kelly1973]

ladies im guna start my progesterone tonight that i got from here as im 3dpo its the 400mg do i take them once a day or twice?

 

[Concernedfrst]

So my period isnt exactly regular. Knowing that, i still assumed i was about 6 weeks pregnant (going off of my lmp). I went to the dr and the doctor he suggested i do an ultrasound to see if its a normal pregnancy or a ectopic pregnancy. I agreed and after doing a vaginal ultrasound he found nothing. He requested blood work and i got it back and it was 176. Then i went in for my second work (2 days later) and it was only 278 and still unable to see anything. He checked everywhere again to see if he noticed anything or anything unusual but he couldnt see anything. Since i have no bleeding and pain or any unusual symptoms, he doesnt think its an ectopic pregnancy. (Mind you that hes been checking over and over again) he aaid maybe my dates are off but im not sure. Ive read many things online saying its most likely an ectopic pregnancy, however my doctor said he thinks it may be either super early or an unhealthy pregnancy where it just never got far enough to even develop into a sac. Has anyone heard of this before or experienced this? Im soo confused and scared. I thought maybe i may have cancer or a tumor but the doctor said no. Im scheduled for another blood test on tuesday but i really dont know what to think anymore. I really want to move on but i feel like i cant cause of this waiting game.....

 

[Hope39]

Your doctor is possibly right, it might just not have developed properly, could be a blighted ovum maybe x

 

[kelly1973]

does anyone know?

 

[TTC First]

I am hoping that someone can help me understand a little more about the RPL Testing. I did a bunch of testing for blood clotting disorders and the karyotyping for myself, DH, and the baby we lost. The tests for blood clotting and the karyotyping on the baby we lost is due back next week, the karyotyping on DH and I may take several months.

My question is this. Does anyone know if the karyotyping comes back normal on the baby we lost, would that mean that ours "should" be normal too? I just hate that that testing for our karyotyping will take so long so if the karyotyping on the baby can give us a hint at our results that would help.

In my experience I dot think so. It works both ways. you could have an issue with your genes and a perfectly healthy baby and you could also have no issue with your genes and have a baby with a chromosome issue. I hope that helps

Thanks floridamomma, At least it tells me that I need all the tests back and I can't rely on one or the other. I just wish the test results on DH and I were not going to take so long.

 

[TTC First]

TTC, I don't think the baby karyotyping will be hugely useful in determining your and your OH's genetic makeup. After all, your baby may have developed its own translocation...
TBH, I wouldn't worry too much about your own testing until it actually comes back with an issue. Having a BT is very rare so most of the time this test is there to tick off another possibility off the list.

As for the baby's test, that can be quite useful, especially if it comes back as normal. It gives you proof that whatever treatment you were on is not sufficient and you need something else as well. There's no point repeating the experience.

My fifth pregnancy came back as 'normal'. I had been on progesterone, extra folic acid, heparin and aspirin. A doctor at St Mary's tried to tell me at first that it was still 'bad luck' but couldn't argue with the test result. It gave me the push to switch doctors and see Mr Shehata who could offer me an added ingredient for my next pregnancy (steroids). It worked with my son and now I am heading into second tri for the second time so it seems to be working again.

Unfortunately, your baby may have had a problem with it, such as a trisomy. This is also a useful result in a way. It explains what happened, it really was bad luck and you may have already found the right treatment for you, you just have to give it another try

Thanks petitpas, that is a lot of valuable info.

Good to know that it's not likely that the problem will be found in DH and I as these are the longest tests to come back. DH just wants to test for everything just to be sure.

The doctor did mention that there is a 75% chance that the problem is chromosomal with the baby. I am kinda hoping that's not the case because I hear that there is nothing that can be done about that. We will be on our 4th IUI and injections so it gets a little costly to try again. I struggle with it being a chromosomal issue with the baby because I have lost 3 babies in the last 7 months and have never had a successful pregnancy.

I guess it's just a waiting game now.

Best of luck with the rest of your pregnancy.

 

[Hope39]

does anyone know?

I took mine twice a day from bfp hun

Never took it past ovulation myself, sometimes it can interfere with af

Xx

 

[Tia30]

...

 

[dairymomma]

Concerned-I had this nearly exact same thing happen with my 3rd pg (and ultimately 3rd loss). In my case, the ultrasound at 7 weeks showed an empty uterus with a thickened lining, a suspicious lump on my right ovary, and very low but slowly rising hCG levels. My dr diagnosed an ovarian ectopic pregnancy and I was treated with the methotrexate shot. A followup scan the next week showed the lump was the same size, my uterus was still empty, and my labs showed my hCG was dropping faster than it had risen. My dr revised her diagnosis to a missed miscarriage/possible blighted ovum in the end and the radiologist confirmed the lump on my ovary was a benign ovarian cyst that resolved itself in the next 3 months. I had no prior bleeding or cramping until the scan showed things weren't right. Then I had heavy bleeding, lots of cramping, and passed a golf-ball sized object that we figure was the sac.

Kelly-I take progesterone from bfp to 14 weeks and since I'm on the oral type, I take 200mg AM and PM (400mg total per day). My dr won't prescribe me the meds until my pg is confirmed via blood test so that's why I have to wait.

Tia-I hope you get some answers. I know how hard it is to not have a reason for why it happened.

Hope-you are a true inspiration to so many people on here. I hope you know that. and prayers.

 

[Hope39]

Aww, thank you dairy. Kelly you also said something the other day that was nice and I didn't thank you so thanks

We all look to someone for Inspiration, my inspiration was LeeC & Tasha

When you've clocked up as many losses as I have, you need inspiration to keep going xx

Tia - I will have a read of that poem, Isaac wasn't stillborn thou, well he was sort of but they revived him. We had 2 days with him before we said goodbye

Xx

 

[ginny83]

Hey Hope, so nice to see you're up to posting x hope you're doing ok, been thinking about you lots x

 

[dan-o]

99% certain I'm coming back yet again. Lost all symptoms suddenly, can't find baby on Doppler any more and have 'that feeling' I've unfortunately come to recognise.

 

[dan-o]

Hope I've also been thinking about you, we haven't really crossed paths much, but I was devastated to read about what happened and it's played on my mind often.

 

[ginny83]

How far along are you now dano? I have had a few scary occasions with my Doppler, but ultimately one time when I couldn't find anything for a couple of days it was right. Really hoping you'll have one if those good scary stories x

 

[Hope39]

Hey Hope, so nice to see you're up to posting x hope you're doing ok, been thinking about you lots x

Ginny how you getting on? You must be past that dreaded milestone now?

Xxx

 

[ginny83]

Actually today is my 'most pregnant' day being 15+5. With my loss in Oct 12 the last time I heard the heartbeat in my Doppler was 15+4. Was so scared using it today!

 

[dan-o]

I'm at EPU now, just had it confirmed baby's died measuring 8 1/2 weeks, so last 24 hours . Its grown so much since last week (although I don't think they measured properly last week) and again everything looks perfect, but sadly not enough. Just thankful it's early.
Miscarriage #3 this year, or #4 if you count the chemical as well.
9 overall. Starting to think im broken