The steroid junkies' perfectly unscientific medical trial

[beachlover1]

Beach it helped me to put them in just before I went to sleep

yes i agree this works!! BUT i have to do them twice a day.....in the mornings too so im finding i wake at 5am to stick em in.....not exactly conducive to a great sleep LOL all for a good reason though

 

[petitpas]

Beach, what dosage are you on? I was on 400mg once/day. I used to take them in the front but because I constantly needed the toilet it'd often trickle out. So I used them up the back. Unless I had bowel issues. Then I'd go back the other way

As for the steroids, Mr S prescribed them to me privately initially but then my GP wrote out the prescriptions. There are many reasons for pregnant women to take steroids so the striking off comment was an overreaction. However, the NHS trial for nkcells is not yet complete so your doctor may not believe in the treatment. It isn't proven and there are no guidelines so if your doc is not a believer she is perfectly within the NHS rules not to prescribe. It is odd, though, that she will not take guidance from your specialist. Can't you ask Prof Quenby to give you a prescription?

As for the aspirin and heparin, I believe the general idea is to stay on aspirin until around 36 weeks. It is known to prevent preeclampsia amongst other things...
Heparin is another matter. If you tested negative for all clotting issues and antiphospholipid syndrome and there is no family history of clots then most doctors will prefer to take you off the injections after first tri. If you tested positive for a clotting issue or are high risk due to your family history then I think you will probably need to stay on the injections until six weeks after delivery.

When I was weaned off the steroids most of the belly fat disappeared and my bbs grew

 

[beachlover1]

just a little update....had another scan today, i couldnt wait 2 weeks, not during my dodgiest time so they took pity on me and had me back in after a week, all good baby has had a growth spurt in the last week, now showing at 9w4d jumped up a whole 3 days

so all right on track..........PLEASE let me be over the hurdle!!!!!

hope all are well!

 

[filipenko32]

Brilliant beach!!!!!! X x

 

[petitpas]

Wohoo, beach! You made it past the eighth week!

 

[lexi374]

Congratulations beach im so pleased for you x

 

[filipenko32]

Lexi how are you doing?

 

[petitpas]

Fili, I updated the first post with your results

 

[filipenko32]

Thanks pip, I just tried calling Louise Simmonds but she doesn't work on Fridays. I think we will definitely try the steroids again until we have a normal loss. But hopefully no more losses! What shall I do about trying straight after? I ov in 5 days?! Shall I opk and steroid munch until af? But hopefully no af. Dr s says wait for one clear cycle though but I don't want to do that. Plan to say it was an accident again if I do get preggo! You know on a non preg cycle taking steroids do you just stop cold turkey?

 

[petitpas]

I stopped cold turkey after ten days of taking steroids. To be honest, I don't know what the cut off is requiring weaning. Maybe Louise can answer your question.

 

[lexi374]

Lexi how are you doing?

Im blah!! Another bfn for me! Just waiting for AF then onto the next cycle! It seems like everyone around me is pregnant except me!!

Getting sick of trying...... but hey ho cant give up!

How are you hun? Are you going to try again straight away?

 

[petitpas]

Oh sorry, Lexi!

Remind yourself that you might be waiting a little longer but your next one will be a sticky one!

 

[lexi374]

Thanks im trying!! Dh has brought some steaks and pink champagne for tonight so gonna make the most of that!

Its good to see success stories on here though, it keeps me going!

 

[filipenko32]

Lexi I often think that those women who seem to have a slightly bigger gap between mc are more successful, pip is right your next one is definitely going to stick and it won't be long now.

Yes we are going to try to catch the egg next week before af but I'm doubtful I will as we never do! Then I'm back on the steroids at ov next week as my last lost was trisomy.

 

[beachlover1]

Ah Fili...sorry about that result!!

Id just go straight into it, your body will be geared up etc. Then re the steriods and cold turkey, i was told that a short course is ok to stop but more than a couple of weeks you really need to go 20, 10, 5 stop. just so you know your body is making cortisone on its own. But 10 days im sure would be fine to stop. .....but im not a doctor!! ;-)

 

[lexi374]

Lexi I often think that those women who seem to have a slightly bigger gap between mc are more successful, pip is right your next one is definitely going to stick and it won't be long now.

Yes we are going to try to catch the egg next week before af but I'm doubtful I will as we never do! Then I'm back on the steroids at ov next week as my last lost was trisomy.

Thanks, i hope so!

Sorry to read that your last loss was trisomy 18 (i had to google what that was) but hopefully your next pregnancy will be ok and the steroids will work for you.

 

[lexi374]

Ladies quick ? how long after stopping progesterone pessaries will af return? I thought it was a couple of days but i had my last 1 fri am and still no sign of af, and temp was still a little up this am (def not preggo!) Just want af so i can get on with next cycle!!

 

[filipenko32]

Not sure lex as I've never taken it on a non preg cycle. How much were you taking? Still it's only been a couple of days, bet you get it in the next day or 2 x x

 

[lexi374]

It was the first time ive used it. I was on 200 x twice a day, still no sign.. hope it hasnt totally screwed my cycles up!

 

[filipenko32]

Lexi I'm sure af will arrive today or tomorrow x x