The steroid junkies' perfectly unscientific medical trial

[tansey]

Hi Ladies :wave:

I've been following the thread for a while but haven't posted for a couple of reasons
1. I didn't know if I had uNK cells
2. I can't get pg easily

But I've just had an email from Prof Q and the biopsy showed that I have a level of 6.9% with 5% being the upper limit of normal. I have to ring Prof Q tomorrow to discuss these results.

I hope I can get pg soon to try out the steroids and join you all properly.
I wish you all loads of luck!

 

[filipenko32]

Glad you got a result tansey! All the best of luck to you!

 

[lexi374]

Hi tansey, i found out i had high uNK cells at the end of November 10.2%.

I dont get pregnant very easily either and am still waiting for a bfp so i can try out the steroids. Good luck to you!

 

[hopeful23456]

good luck tansey!

lexi - i would get AF about 2-3 days after stopping prog, one time i even got AF while on it but it was a very early chemical preg.. I would start prog at 48 hours after ovu.
if AF doesn't come after a week, call the dr. if it takes a LONG time, they can give you a shot to regulate your system again.

i'm down to 2.5 mg of prednisone a day and done on Monday! I did wean off (saw there was a question on that)

did 20 mg/day at bfp
went to 15 mg/day beg 13 wks
down to 10 mg/day beg 14 wks
down to 5 mg/day beg 15 wks
down to 2.5 mg/day beg 16 wks and done after this week.

i really didn't have any side effects but the extreme hunger early on which was probably due to being preg too. i took it at noon every day.

 

[lexi374]

Hopeful thanks for the reply, its been 4 days now and no sign. My doc told me to start them at 7dpo for 7 days, she said not to start straight after ov as this could cause an ectopic! I only did 5 days as i knew i wasnt preg then, and didnt want to prolong the cycle, i assumed i would bleed 2-3 days later as this seemed the norm. Im worried now ive screwed things up, never used them before. Will give it a week then contact the doc.

 

[tansey]

Lexi how are you so sure you're not PG? With progest pessaries while doing IVF I had spotting before AF.

 

[lexi374]

I tested friday, saturday and yesterday!!

 

[tansey]

Oh no! I hate it when there's no sign of but the tests are NOT that, that happens much to me!

 

[lexi374]

Yeah its crap, its the first time ive used them, im not sure whether i will again! I thought it would help!

 

[hopeful23456]

lexi - I did IUI with the cycles I used them on so I know exactly when I ovulated (due to meds) - so it was exactly 48 hours after ovu/IUI. it would be harder to determine if you were doing natural cycles...

you didn't mess anything up, sometimes it just takes a little longer to get AF for some girls.

 

[petitpas]

Lexi, how annoying!
I did the same as hopeful, started prog at 2-3dpo (I confirmed with temping). I know you're supposed to make sure you have definitely ovulated (otherwise you can screw it up) and that opks aren't reliable enough to be sure, but 7dpo seems a bit late? Like hopeful, I got af within the 14 day timeframe. I always had a short lp so it is possible that the progesterone prolonged things by 2-3 days. I only took them for two pregnancies and one non pregnant cycle so I don't have much to go by, sorry.
Do you have a chart we can look at?
Are there any signs of a possible impending arrival?

Tansey, welcome to the thread! I am keeping my fingers crossed that you can soon join us in successfully testing out your steroid treatment on a pregnancy fxfxfxfxfx

I'm going to add you to the first post right away...

 

[petitpas]

Lexi, you're ib the first post now, too!

 

[lexi374]

Well ladies im at least 15 dpo today, had some cramps last night so thought thank god shes finally on her way, woke up this morning to slight temp increase tested again and got a super faint line!! Im in shock!!

Spoiler

 

[lexi374]

Clear blue digi says not pregnant though but think these are less sensitive! Have always had a positive by 10 dpo before, am now crapping myself!! Thanks for your help ladies

 

[leylak]

congrats lexi! those lines don't seem faint to me

 

[tansey]

Great Lexi!

 

[petitpas]

What lovely lines!
FRERs test down to 10miu, digis pick up somewhere from 25-50miu so there can be a few days before they show up.

Hip hip hooray!

 

[hopeful23456]

lexi - that's great! stay on the progesterone! (it's ok if you stopped but i would start them again)

 

[filipenko32]

Ha Lexington?!!!!! You were so sure too! can DEF see a good line there!

 

[lexi374]

Thanks ladies!

Have had a nightmare day trying to get hold of theses steroids, my gp is such a pain in the arse!

Anyway to cut along story short DH was in birmingham today for a meeting, so he managed to go to coventry after and get the prescription from Prof Quenby herself as gp was not co-operating. She has spoke to my gp and i will get the cyclogest from her tomorrow. (yeah hopeful, i had stopped it fri!) I have 4 weeks of Prednisolone, then Quenby said i should be able to get them from EPAU! We will see i guess.

Yeah fili i was so sure i was out, Ive never had a bfp this late before, now im stressing over the fact ov was late, and then the egg has been floating around for like 2 weeks before it implants. No symptoms. Arggh this is all just 1 big worry will just have to hope and pray as always.