Peace what immune testing did you have done?
Did you get the intralipids on the NHS?
I agree with taking info, I printed some info off Dr Shehata website re treatment for thyroid antibodies and think I have persuaded my consultant to prescribe steroids
Xx
Hi Hope!
Great work on persuading the consultant.
I took the standard NHS RMC tests but then "filled the gaps" by doing the more advanced immune tests privately. I saw Dr Amin Gorgy at the Fertility & Gynae Academy. He does lots of different tests and doesn't believe in focusing just on the NKc test in isolation. Usually, he first tests for hidden infections that could be causing the immune upheaval. I chose him because he is very flexible and gives the patient the choice of which tests you wish to spend your money on. Generally the most reliable testing is done in Chicago so he sends it out there. But there is a lab at St Heliers Hospital in Epsom that has started doing some of the tests. They are less expensive and accept a GP signed test request form. Here they are: https://www.ri-centre.co.uk/ However, the results can only be interpreted by an immune specialist so you still need to see someone privately. Lots of UK ladies are flying out to Spain and the Czech Republic to get the tests and treatment there - cheaper and very accessible.
Re:intralipids I got the initial prescription from Dr G and showed it to my GP. I wanted her to provide me with a repeat prescription and she did that but as a private prescription. Still it only costs £13 a bag and I go to a nursing company in central London to administer it. It still costs far far less than many of the doctors charge! Please feel free to pm if you'd like more info.
Petitpas, thank you for the good wishes
I was sceptical about the test too but after talking to various US specialists I understand where the misconception lies. They believe that you can't rely solely on the total NKc count and that the more relevant result is the killing power of the NKc. Thats why most immune drs look at the entire spectrum of immune cells and subsets of cells in addition to the NKc.
Yes you're both right Petitpas & Tasha, it would very difficult to get a large trial done because there are so many combinations of issues that different ladies will have. But the clinical evidence of the all the IVF clinics that use immune treatment speaks for itself. With the NHs there will always be the political wrangling in the background and the competition for research funding. Sadly, for most women the treatment will remain inaccessible for the forseeable future.
everyone
currently 4po so fingers crossed for this one he hasnt given me cleaxane as nothing wrong with antiphoslipids just a bit worried incase i would be better off taking them anyway. I am to test on the 30th nov as ovulated the on day 14 started steroids on day 15
As you still have a few extra days to go until ovulation I really wouldn't worry just yet.
