Told 1 in 13 High risk after nuchal screenings

[ceebs2013]

Thank you so much Wriggley and Emma! I will have to try and take your advice and at least try and give myself the weekend off from worrying! We are off to see family this weekend so that will help keep our minds off the rest of what is to come at least for a while. Now a week and a half countdown until the full results and heart scan! Thanks again all xxx

 

[Emma867]

We have got two weeks til our detailed scan for heart and kidneys so we are trying not to clock watch...impossible!

 

[Miss Bellum]

ceebs2013- fantastic news, really pleased for you x x

 

[maxalias]

So sorry you have to go through this xxx Last august I had my nuchal scan and we were told it was one of the largest cystic hygromas they had seen for a long time. It was 10.6mm. My wee baby had fluid all over her body and swelling in her brain. I was booked to go to Thailand the very next day. Our family went as we had to wait till 15 weeks until the amnio anyway and I thought it might take my mind off it. It didnt. I was glued to a computer the whole time researching. It all sounded bad, I was told to expect to mc while away a there was a very obvious abnormality with our baby. We got home and the night before our specialist app (18 weeks my dates, 16.2 theirs) I started getting a stringly brown discharge, sorry tmi, I knew baby had died. The next morning before the amnio we had a scan and instantly I could tell there was no life. It was the saddest moment but I also felt like a weight had been lifted off my shoulders as baby had gone in her own time and I didnt have to make a decision I may have lived to regret. I was given 2 pills and asked to come back in 2 days for labour and delivery. It was a heart renching day. After I gave birth I was shocked with how (they told me she was a he!) looked. She was very swollen and as I held her all the liquid came out and after 3 hours she looked really good. Her wee ears were down under her chin and she didnt look quite right. I asked for a post mortem to be preformed. After 5 long weeks I found out my little boy (who I called Ricky after her grandad) was actually a girl and that she had edwards syndrome and a congenital diaphramic hernia is what cause her death so early. I am pregnant again and I am due for my nuchal scan next friday. I am beside myself with nerves. I hope I am not so unlucky that it happens aagin. We were given a 1:1200 odds of having edwards syndrome after the combined screening and a 1:15 of downs so I was very surprised that was the outcome. I am going to be 35 when this bub is born so I am really hoping we have a good out come this time. I am thinking of you and hope your wee darling is healthy. And if not, You will get through this xxx

 

[ceebs2013]

Thanks MissBellum!

Emma it sounds like we are on pretty much the same countdown! You will have to let us know how yours goes Fingers crossed for you!

Maxalias I am so sorry to hear of your baby girl, that sounds devastating I bet it is so scary going through pregnancy again and worrying that something similar might happen but I haven't heard many stories of people who have gone through something like that more than once. Rich coming from me I know but try to stay positive I have everything crossed for you xxx

 

[Emma867]

So sorry to read your story maxalias. Let us know how your NT scan goes xx

 

[pip2009]

That is fantastic news ceebs2013, I am so pleased for you! Fingers crossed for your next set of results xxx

maxalias - so sorry to hear your story, my little girl also had edwards syndrome and we said goodbye to her at 15 weeks. I am now pregnant again (will be 35 when this one is due too) and like you, absolutely dreading my 12 week scan. Have got my fingers crossed that all is well for you on Friday. Big hugs xxx

 

[BrightLights]

That's brilliant news ceebs2013!

My little one last scan nuchal translucency was 8mm at 12 weeks. I have scan tomorrow as an early anomaly scan and to check the heart, I'm terrified but thinking positive!

 

[ceebs2013]

Good luck to everyone on their scans! Let us know how they go! xx

 

[Leesy]

Thinking of all of you awaiting results! Big hugs to you all, I've been there and we were one of the lucky ones so praying you all are too. xxx

 

[chocolatecat]

Good luck ladies. Hoping you all have happy healthy scans. Xxx

 

[Emma867]

^Love your pic chocolate cat

 

[maxalias]

Hi xxx My scan today was perfect!!!!!!!!!! I couldnt believe it! I was very ready for bad news. i just have to wait for the bloods now but they couldnt see anything that would make them think anything was wrong! So so happy. I hope you all have positive outcomes too xxxxx

 

[ceebs2013]

That's great news Maxalias! Congrats! At least now you can hopefully relax and enjoy the rest of your pregnancy! xx

 

[littleone2010]

Ceebs I'm so pleased you got good news. I had an abnormal nt measurement yesterday, I'm waiting for my bloods to come back in the next few days and have to go for specialist cardiac scan in London on wednesday. So worried and nervous. I was so upset yesterday but tody I'm trying to have my practical head on. Good luk with the rest of your results, I'm sure everything will be just fine xxx

 

[ceebs2013]

Sorry to hear that littleone it is such a horrible time. What was your measurement? Did you have a cvs? We have also got a cardiac scan on wednesday - I am literally counting down the hours and have everything crossed. I hope yours goes ok, let me know! xxx

 

[littleone2010]

Hi Hun. My measurement was 3.6mm. I have to wait for my bloods to come back for the risk before having cvs. If the results come back on Monday as high risk I will be having the cvs, I think they will try and get me in asap. They Did a very in depth scan of the heart when they saw the nt measurement was high and said the Heart looked absolutely fine but they want me to go for a specialist scan. I can't stop thinking about it and I'm just so worried

 

[littleone2010]

It's the waiting that's the worst and this weekend got n the way of me getting my results tomorrow

 

[ceebs2013]

How far along are you? The waiting really is the worst. I had an 8 day wait between finding out about the measurement and then getting first lot of results from cvs. Then another 12 day wait between that and the cardiac scan and getting full results. Once this weekend is done the time will fly by until wednesday. I wish I could give some wise words but I know how hard this situation is and nothing anyone can say will make you feel any better until you have some answers. All I can say is 3.6mm isn't too big, ours was 7.3mm and most of the threads I read seem to be at least 5mm. So at least there is a strong chance that it will resolve itself as it isn't too big to begin with. I have my fingers crossed for you hun, I hope it all turns out ok for you xx

 

[Wriggley]

How far along are you? The waiting really is the worst. I had an 8 day wait between finding out about the measurement and then getting first lot of results from cvs. Then another 12 day wait between that and the cardiac scan and getting full results. Once this weekend is done the time will fly by until wednesday. I wish I could give some wise words but I know how hard this situation is and nothing anyone can say will make you feel any better until you have some answers. All I can say is 3.6mm isn't too big, ours was 7.3mm and most of the threads I read seem to be at least 5mm. So at least there is a strong chance that it will resolve itself as it isn't too big to begin with. I have my fingers crossed for you hun, I hope it all turns out ok for you xx

hay hun im confused by the thread lol have you had the full results back yet??