Tegans Mama
home edding mum of 2
- Joined
- Dec 6, 2007
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For the past few days Tegan's right foot has been twitching. She doesn't have a lot of movement due to her SB, but this twitch started when the physiotherapist came and did some weird stuff with her legs that we are meant to be doing SIX TIMES A DAY and I have no idea how to do it - plus she cries, it looks stupidly uncomfortable and has made her foot start twitching!!
I am taking her to the doctors this afternoon to try and find out what it is. It only happens when she is awake - so I am thinking maybe it is caused by her trying to move? It looks so odd!
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Also wanted to say that I noticed something today. When she had her EVD (external drain) in, CSF would gush out when she sneezed/coughed. I have noticed that her soft spot sometimes goes hard, and then she will cough/sneeze/laugh and it will go soft again!! The pressure is set very high because her hydrocephalus is very mild - docs thought she might cope without a shunt, she coped for a week and a half and then they put her shunt in Asked the neuro's and her soft spot going like this is normal, just funny
I am taking her to the doctors this afternoon to try and find out what it is. It only happens when she is awake - so I am thinking maybe it is caused by her trying to move? It looks so odd!
----------------
Also wanted to say that I noticed something today. When she had her EVD (external drain) in, CSF would gush out when she sneezed/coughed. I have noticed that her soft spot sometimes goes hard, and then she will cough/sneeze/laugh and it will go soft again!! The pressure is set very high because her hydrocephalus is very mild - docs thought she might cope without a shunt, she coped for a week and a half and then they put her shunt in Asked the neuro's and her soft spot going like this is normal, just funny