Melissa x
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Sorry this is long but it maybe helpful to someone!
I don't no of anyone recalls but last week I wrote several threads about how my 5 week old baby was being very sick. I had been given infant gaviscon and told it was reflux. I had been asked if sickness was projectile to which I wasn't sure what was considered projectile. I was to later to find it was considered projectile. The sick was coming out with force.
So it began about 3 weeks ago when my baby starting being sick after some feeds. This progressed a week later to Oliver being sick after, before, or during every feed. The sick came up with force and no amount of keeping him upright worked. We tried mattress wedges, stay down formula...everything basically but he was still sick.
So last Monday I took my baby to the doctors again and was refereed to paediatrician but she said she could see o problems with my baby as he looked happy. Apparently if a baby looks happy they don't see much else! Anyway I wasnt happy still so got my baby weighed later that day to find he had lost 5oz in 5 days! Not happy so I thought I'd go to A and E.
I went into A and E and they were concerned about his weight loss so sent me up to the ward to get monitored. As soon as I saw doctor she did bloods which came back with chloride levels I think it was showing as unusually which is a sign of a condition called pyloric stenosis. However she said it was unlikely. She then watched him feed and confirmed he was projectile vomiting and referred him for an ultrasound tuesday morning. We were told we had to stay as he was beginning to become dehydrated and therefore needed to be fed by a drip and a second drip to even out potassium levels. Oliver also had a tube in his nose to his stomach which had to drain his stomach every 4 hours. It was very traumatic seeing my baby have these inserted and wouldn't wish it on anyone.
The scan on Tuesday confirmed Oliver had pyloric stenosis, which is a swollen muscle in his stomach stopping food exiting stomach into intestines. It was confirmed he would need an operation to cut the muscle. I was so upset but could see an end to his sickness which did help me get through it. Well good hope hospital didn't do the surgery so was told we had to wait for a bed at Birmingham children's hospital. Come Thursday after endless blood tests at Canucks being reinserted we were fed up and wanted our baby treated as he was of course nil by mouth and getti agitated he couldn't eat. So they said they would send us to Leicester hospital. No impressed at all by how long good hope left us.
We arrived at Leicester hospital Thursday evening and was told we would have surgery Friday. When we got to leicester we told them how Oliver had begun being sick again and turns out good hope had not put the tube in his tummy correctly and was not draingin him often enough. They began doing it 3 hourly and his sickess stooped agin. however Friday came and although we were in first other emergencies came in so we couldn't be seen. We were sad again Oliver was getting more hungry and fed up.
Saturday morning Oliver was now an emergency and a priority as it had been to long being nil by mouth. He had the surely at 8 am which lasted abut an hour and half including recovery and being given anastetic. He now has a cut abut a cm wide above his belly button, I haven't seen it yet as still covered by stitches.
6 hours later he began being introduced to fluids. I don't no what it was called but looked like water. He did bring back up odd bits but quite normal. Every 3 hours he got a little more fluid till on his milk. He only bought up odd bits so Sunday afternoon we could go home.
Sunday night we had one bottle bought up hut fingers crossed they are mostly staying down. He is a new baby and slowly looking better in himself.
Pyloric stenosis effects babies more often then we thought, we had never heard of it but it runs in families so beware. The faster you get it picked up the better. It especially effects first born males. It does worry me cute children may have it but although surgery is scary on a 5 week old it is looking worth it as my baby is now getting the nutrients he needs. It Is usually found in babies a little older but the hospitals are seeing it more often now and in younger babies. I wanted to share this with you as it has been a hard week but now things are better. Don't give up, if your doctor isnt helping don't be afraid of going to a and e. I've never done this enforce fire as I don't like people to think I'm wasting time but it's a good job I did. My appointment came throughh from doctor for next Friday, my baby may have been to dehydrated by then.
I also just want to add how fantastic the staff of Leicester hospital. They clearly care genuinely for each patient. Even the surgeons who come back on check on you. The nurses were amazing and showed love for their job and nothing was to big an ask from them.
I don't no of anyone recalls but last week I wrote several threads about how my 5 week old baby was being very sick. I had been given infant gaviscon and told it was reflux. I had been asked if sickness was projectile to which I wasn't sure what was considered projectile. I was to later to find it was considered projectile. The sick was coming out with force.
So it began about 3 weeks ago when my baby starting being sick after some feeds. This progressed a week later to Oliver being sick after, before, or during every feed. The sick came up with force and no amount of keeping him upright worked. We tried mattress wedges, stay down formula...everything basically but he was still sick.
So last Monday I took my baby to the doctors again and was refereed to paediatrician but she said she could see o problems with my baby as he looked happy. Apparently if a baby looks happy they don't see much else! Anyway I wasnt happy still so got my baby weighed later that day to find he had lost 5oz in 5 days! Not happy so I thought I'd go to A and E.
I went into A and E and they were concerned about his weight loss so sent me up to the ward to get monitored. As soon as I saw doctor she did bloods which came back with chloride levels I think it was showing as unusually which is a sign of a condition called pyloric stenosis. However she said it was unlikely. She then watched him feed and confirmed he was projectile vomiting and referred him for an ultrasound tuesday morning. We were told we had to stay as he was beginning to become dehydrated and therefore needed to be fed by a drip and a second drip to even out potassium levels. Oliver also had a tube in his nose to his stomach which had to drain his stomach every 4 hours. It was very traumatic seeing my baby have these inserted and wouldn't wish it on anyone.
The scan on Tuesday confirmed Oliver had pyloric stenosis, which is a swollen muscle in his stomach stopping food exiting stomach into intestines. It was confirmed he would need an operation to cut the muscle. I was so upset but could see an end to his sickness which did help me get through it. Well good hope hospital didn't do the surgery so was told we had to wait for a bed at Birmingham children's hospital. Come Thursday after endless blood tests at Canucks being reinserted we were fed up and wanted our baby treated as he was of course nil by mouth and getti agitated he couldn't eat. So they said they would send us to Leicester hospital. No impressed at all by how long good hope left us.
We arrived at Leicester hospital Thursday evening and was told we would have surgery Friday. When we got to leicester we told them how Oliver had begun being sick again and turns out good hope had not put the tube in his tummy correctly and was not draingin him often enough. They began doing it 3 hourly and his sickess stooped agin. however Friday came and although we were in first other emergencies came in so we couldn't be seen. We were sad again Oliver was getting more hungry and fed up.
Saturday morning Oliver was now an emergency and a priority as it had been to long being nil by mouth. He had the surely at 8 am which lasted abut an hour and half including recovery and being given anastetic. He now has a cut abut a cm wide above his belly button, I haven't seen it yet as still covered by stitches.
6 hours later he began being introduced to fluids. I don't no what it was called but looked like water. He did bring back up odd bits but quite normal. Every 3 hours he got a little more fluid till on his milk. He only bought up odd bits so Sunday afternoon we could go home.
Sunday night we had one bottle bought up hut fingers crossed they are mostly staying down. He is a new baby and slowly looking better in himself.
Pyloric stenosis effects babies more often then we thought, we had never heard of it but it runs in families so beware. The faster you get it picked up the better. It especially effects first born males. It does worry me cute children may have it but although surgery is scary on a 5 week old it is looking worth it as my baby is now getting the nutrients he needs. It Is usually found in babies a little older but the hospitals are seeing it more often now and in younger babies. I wanted to share this with you as it has been a hard week but now things are better. Don't give up, if your doctor isnt helping don't be afraid of going to a and e. I've never done this enforce fire as I don't like people to think I'm wasting time but it's a good job I did. My appointment came throughh from doctor for next Friday, my baby may have been to dehydrated by then.
I also just want to add how fantastic the staff of Leicester hospital. They clearly care genuinely for each patient. Even the surgeons who come back on check on you. The nurses were amazing and showed love for their job and nothing was to big an ask from them.
