Anyone attending ACU ninewells hospital Dundee??

[Wallie]

Keep on at Ninewells ladies, otherwise they seem to forget about you. Although they probably hated me in the end as I was relentless with getting in touch and pushing things on.

I've never heard of them doing a dummy run though, what's the real reason for that? I would have hated to have done that and not actually gone through with any EC or ET. Jings, must be doing your heads in that?

I had three unsucessful rounds with Ninewells and I'll next be trying with the GCRM in Glasgow. It's a helava running around but I just have to give it one last go before that's it!

 

[Minno]

Hi wallie. Yep, doin my head in just about sums it up! I think they've introduced the dummy run fairly recently. It's an attempt to try and get the drugs regime right before you go through with the real thing. May only be used for ed recipients? In their blurb online they say they do it 1-2 months before treatment but the nurse I saw last week says it could still be up to a year before we are seen. So frustrating. Sometimes I wonder if they just say a year to shut you up. I try to keep on top of them too but think they're kind of sick of me already! Lol

Hows it going with gcrm? We had a consultation with them too and may go with them if Dundee doesn't work out and we have any sanity and money left! X

 

[Minno]

Pcct, we were told 3 months for initial appt but it came thru much quicker after about a month. Hopefully will be the same for you. I think they give blanket timeframes and I wonder if they have a policy of doing that so that they don't get complaints?

Yeah me as well I'll let u no if I ring and see what they say! Coz am just at the very early stage of ivf am still quite unsure what is what . I havnt been for my first appointment yet , I was told in April I should get a letter 3-4 months time for a consultation

 

[pcct]

Pcct, we were told 3 months for initial appt but it came thru much quicker after about a month. Hopefully will be the same for you. I think they give blanket timeframes and I wonder if they have a policy of doing that so that they don't get complaints?

hi, yeah thats what i think as well i keep saying am going to phone but at the same time i dont want the stress of trying to get sum1 to give me a answer lol

 

[pcct]

yuss! came in from work to a letter from the clinic we have our first appointment on the 25th june realllllly can NOT wait

 

[Minno]

That's brill news hun. As suspected the wait was nowhere near as long as they said initially. Now let's just hope the same applies to treatment waits!
I've been up and down there this week as they try to sort my lining out. It is thickening up but slowly and I've had a bit of a bleed just to add to the fun. Dunno why. Have to go back up at the end of the week for yet another scan. Still shouldn't complain. If we can get thru this bit it's just waiting for a donor.
Just she says!! Lol. Xxxx

 

[pcct]

Yeah here is hoping as it has een rather fast from day one

Hope u haven't had to travel far its sh** when u have things holding u back! hopfully u get a donor fast as well then u can get on with ur treatment Have you been waiting long from now since ur first initial app? xxx

 

[Minno]

Our first appt was in September last year, so around 7 months to get to this point. The dummy run is a new thing they've only recently introduced and I'm pleased cos if they can get it right it means better chance of success when the real treatment cycle comes along. We have been told we will get treatment this year but then again it does seem to dependnon who you speak to. I think the business manager is the person who runs the show. Dr Kay is my consultant, I really like her. She was quite reassuring. What are your hopes for treatment up there hun? X

 

[pcct]

thats not too bad but its still a long time to wait every day seams like a month
Dummy run does sound fab! makes sure ur getting the right treatment ect. Yeah my letter says that if i have any questions on waiting times ect to speak to the business manager what any time. Still un sure who am going to be seeing. will let u no tho What do you mean what r my hopes for up there? sorry i can be so rubbish at all this at times haha. xxx

 

[Minno]

Sorry hun, just meant what treatment are u going for? Is it ivf with your own eggs? I have two colleagues/friends who did it with ninewells. Both were successful, one with twins - well actually two sets of twins! She went back an did it again a couple of years later!
The unit is nice up there now that they've refurbished and the staff are friendly. First consult is really interesting as they review ur history and make suggestions for treatment. They may get bloods and consents done at the same time too - that's what they did for us. I'm back up soon for yet another scan... The journey just goes on and on and yep, every day at the moment just seems forever xxx

 

[Wallie]

Hi wallie. Yep, doin my head in just about sums it up! I think they've introduced the dummy run fairly recently. It's an attempt to try and get the drugs regime right before you go through with the real thing. May only be used for ed recipients? In their blurb online they say they do it 1-2 months before treatment but the nurse I saw last week says it could still be up to a year before we are seen. So frustrating. Sometimes I wonder if they just say a year to shut you up. I try to keep on top of them too but think they're kind of sick of me already! Lol

Hows it going with gcrm? We had a consultation with them too and may go with them if Dundee doesn't work out and we have any sanity and money left! X

I suppose the dummy run is a good idea but jings just another waiting game really. Surely if everything seemed to go perfectly for you they could just to EC and ET, no?

I have my 2nd appt with GCRM tomorrow! I must say as everyone else had said they are on the ball, very quick but that must be the difference with a private practice rather than NHS. All seems good just now. I just have a bad feeling about Ninewells but that's only because I never got my BFP.

 

[pcct]

Sorry hun, just meant what treatment are u going for? Is it ivf with your own eggs? I have two colleagues/friends who did it with ninewells. Both were successful, one with twins - well actually two sets of twins! She went back an did it again a couple of years later!
The unit is nice up there now that they've refurbished and the staff are friendly. First consult is really interesting as they review ur history and make suggestions for treatment. They may get bloods and consents done at the same time too - that's what they did for us. I'm back up soon for yet another scan... The journey just goes on and on and yep, every day at the moment just seems forever xxx

Hey yeah it will be ivf with my own eggs i have blocked tubes. I was looking into doing egg sharing but i haven't fully read up on it but have been told u have to be mentally ready for it. Am reall looking forward to going to my first app I have both consent forms here for us to sign along with all the history stuff. glad i have all the papers to look thru coz am still not 100% how it all works xxx

 

[Minno]

Hi Wallie. I think they do the dummy run with egg donation ivf to make sure the recipient is ready for transfer as they said they have had some ladies with lining problems. We still have to wait for a donor though and actually, cos we are private, the waiting list is shorter at Dundee than GCRM for egg donation ivf. GCRm are 15-18 months. WE've been on 7 months now though so hoping that it won't be too much longer - Dundee is 12-18 months.

Still a waiting game though thats true. Got to jump through the hoops I guess. Not sure what my thoughts are about Dundee - bit mixed so far xx

 

[Minno]

Hi Pcct - ooo that would be wonderful if you joined their egg share programme. Cheaper ivf for you and the chance to give another lady a shot at a family. Its a wonderful thing and I am so so grateful to the ladies who do it as otherwise I don't think we would be able to have any more children. You would get an appt with a counsellor to discuss everything fully - there is a lot to think about. There is a national shortage of donors though so egg share is a fantastic way forward with benefits on both sides. xx

 

[pcct]

yeah i would love to give another woman the chance as well it would just be amazing to know i have helped someone we r both looking into it and will look it all up so that we fully understand as right now am still working out how ivf work and all the treatment. I knew of egg sharing and without thinking about anything i would gladly do it! but then was told i have to be mentally ready for it. It will be something i think i will bring up at the app xx

 

[Minno]

Great idea! Who knows, you might even end up being my donor lady lol x

 

[pcct]

hehe i know you just never no had a look thru my info pack and the prices for treatment and the drugs i dont understand it all haha! xx

 

[Minno]

I know, it can be so confusing. Price for ivf is about 2.6k plus about 700-800 for drugs , so about 3.4k all in. Dundee is non profit so even if u selffund there like us you get it at cost price (ie the same price they charge the health boards for patients having nhs treatment out of area). That's partly why we chose dundee, as we can have two goes there for what we would pay for one elsewhere. Also, their published success rates for last year were 55% for ed! That's good!! X

 

[pcct]

Thats actually really good price I think thats why my local hospital choose ninewells as they have a good success rate. Am sure i get 2 shots as well at it! I just think its crazy that depends on where u live depends how long and how many goes u have at it :O xx

 

[Minno]

I agree. Something like this should never have to cone down to costs and money but sadly it does. I feel very lucky we can at least have a go at it. If we have any frozen embies we may even get more than one shot in the first round of treatment. Makes you feel that at least there is a chance.
Lining scan tomoro - ughhhh xx