Borderline bilateral ventriculomegaly at 22w - support thread!

[ShanR]

Awesome thanks, thats good to know. they have ruled out hydrocephalus, they said there is no blockage, they said it is due to the brain not developing, mind you I could be a little wrong as went you are getting told this information you kinda shut down a little. I'm hoping Tuesday it better.

 

[phoebewyatt]

hi just thought id give you's and update, had another scan yesterday and baba's head is to far down to have a good look but from what they could see the vents were measuring at 11mm could even be smaller than that so thats great!! have one final scan on tuesday in newcastle but im not sure they will see must more as babys head too far down already. only 4 weeks to go till my little boy due and im sure everything is going to be fine regarding his vents thank god

 

[Tulip]

That's fantastic news Phoebe! Whoop! Best of luck and sending easy labour vibes for his birthday

 

[phoebewyatt]

had my scan in newcastle and vents now measuring at 7mm!!! so have sorted themselves out just have to wait till he's born and they will do a scan thru babys softspot so check vents are still ok very happy

 

[Tulip]

Clever baby!

 

[nickibrum]

had my scan in newcastle and vents now measuring at 7mm!!! so have sorted themselves out just have to wait till he's born and they will do a scan thru babys softspot so check vents are still ok very happy

Hi Phoebe

My baby has a mild case at the moment with 13mm. Have you done anything yourself that could be accounted for the decrease? Or is it literally just something that could decrease as time goes on? Im 21 weeks and found out for sure yesterday.

Happy for you aswell hun that its going down- I can only imagine the relief you must be feeling

 

[phoebewyatt]

had my scan in newcastle and vents now measuring at 7mm!!! so have sorted themselves out just have to wait till he's born and they will do a scan thru babys softspot so check vents are still ok very happy

Hi Phoebe

My baby has a mild case at the moment with 13mm. Have you done anything yourself that could be accounted for the decrease? Or is it literally just something that could decrease as time goes on? Im 21 weeks and found out for sure yesterday.

Happy for you aswell hun that its going down- I can only imagine the relief you must be feeling

i didnt do anything just kept going to have scan's to check on the progress

 

[Sweetk1]

Hi I just wanted to update as I haven't been on in a couple of months:
My son was diagnosed with Unilateral Ventriculomegaly at 33 weeks. His right ventricle measured 12.6mm at birth.
My son is now 7 months old and is just fantastic. He's just starting to sit up on his own now.

A few things about VM for those new to it:
Unilateral ventricles are common in the general population.
Mild VM is up to 15mm
Vents upto 12mm have a 97% chance of normal development.
Vents 12-15mm have a 77% chance of normal development.
Something like 60% of VM resolves in uteruo.
30% of VM remains stable.
10% increases and turns into Hydrocephalus.

Since our diagnosis I have become friends with many many ladies in the same situation and I know children in the 97% bracket doing great and kids in the 3% bracket sergeant disabled.
This is a great site but I would highly recommend having a read of the I-am-pregnant Ventriculomegaly board. There are literally thousands of posts and I have to say that site and the ladies on it kept me sane.

Best of luck to all you ladies. The statistics are in your favour.

 

[phoebewyatt]

i have 9 days to go and im getting very impatient anyone got any tips for bringing on labour?

 

[janey1975]

I walked a fair distance and had sex which I think helped to bring on labour but it may have been a coincidence! Still, my husband enjoyed it! (the sex not the walk so much - he he!) Best of luck Phoebe and do let us know - how exciting!

My baby is a year old today and I will warn you that the first year absolutely flies by so try to enjoy it, even when the sleepless nights make you feel like you are going insane!

Love to you x

 

[Tulip]

I tried everything and still went 6 days over Phoebe! X

 

[phoebewyatt]

i went 12 days over with my first and have 4 days left before im due with this one hope i dont go over this time fingers crossed, ive tried lots of stuff already like curry, sex, pineapple, walking but he doesnt seem to want to make an appearance just yet. so i think its just a case of waiting until he is ready but im very impatient !! lol

 

[Angie2185]

Hi Ladies, Im new to all this and stumbled across this group googling!!! We have 2 healthy daughters who are 7 and 3. We had our 20 week scan on Wednesday. The hospital have a brand new scanner in so i was being scanned on that. Our lil baby BOY is perfect and everything looks fine and normal apart from his Right ventricle is a little more prominemt than his left side. The lady measured his right side to be 10.3. She asked us to come back in 2 hours to see the consultant. We went back, turns out he was the hospitals top man He had a look at our boy again and said he looks perfect and when looking at his right ventricle he was getting 9.8. He said he is happy with it and to not go away worrying (but i do lol) and he will see me in 3 weeks to be reassured. My notes say......The brain structure, ventricles and cerebellum all appear normal. Right side is a little more prominent than the left, but the internal brain structures appear normal. Diagnosis.....The scan is reassuring today with no problems identified. The limitations of ultrasound disgnosis have been explained. Sorry for the long post but wanted to give you ladies as much info as poss as you prob have more experience than me. xx

 

[Tulip]

Hi Angie and welcome!

Id say that sounds really positive and sounds very much like my experience (except my scans were a week apart). Sounds to me like your original sonographer wasn't measuring at quite the right angle.

Hope your appt in three weeks can away your fears - enjoy your little man in the meantime xx

 

[chigirl22]

At 20 weeks all measurements were normal. Then at 28 weeks on of the lateral ventricles was measuring at 1.2 cm.. The tech had the doctor come in to measure it and she got it at 1.1cm. She said it's enlarged but with in normal range. I'm getting it checked again at 32 wks which is in three days. After doing research i feel light headed now. I've had a tooth infection, took antibiotics. Taking meds for crohns. I have too much going on and now i'm blaming myself. I hope it resolves by then.

 

[chigirl22]

wow thanks for the information... I'm stressing over 12mm... max... and when the doc scanned it was 11mm

 

[Tulip]

Hi Chigirl and welcome. It's always so easy when something like this happens to pick over everything we have ever done/eaten/thought and blame ourselves. Chances are this is just a 'normal' measurement for your LO I hope Tuesday brings great news for you

 

[Agiboma]

I dont mean to hijack this thread but tulip how are you doing, i dint even know you went through this expereince with Dilan, just thought i would pop in and say hello. Micah is great, doing everything he should and a whole lot more.

 

[Tulip]

I dont mean to hijack this thread but tulip how are you doing, i dint even know you went through this expereince with Dilan, just thought i would pop in and say hello. Micah is great, doing everything he should and a whole lot more.

Hi Mandi I saw your post about Micah's birthday, he is awe-inspiring! Can't believe how quickly our boys are growing up. Dillon is just great - he is so funny, has almost 50 words now I think, physically very confident - nursery say he's very advanced with his gross motor skills, loves to push his teddies around in his cleaning trolley and his favourite things are slides and cake I'm so lucky that he's mine!

Congratulations on your new pregnancy! Please tell me you have time for a parenting and pregnancy journal?? xx

 

[phoebewyatt]

hi just thought id give you an update im 5 days overdue now and very fed up have tried all i can to try and start labour off but no luck, if he doesnt come before 31st august i will be induced but until then i just have to wait