?DLA

[LittleAurora]

Hi all

My son has aspergers and I was told I could claim DLA for him....has anyone done this? Im not sure if I want to, it seems hard and I dont want to put my son thru any distress if they has to assess him.
thanks xx

 

[Snugggs]

Hi LittleAurora,

Who ever told you that is very much correct . My son is autistic, but my friends son is High-functioning borderline aspie and she receives the same level as DLA as DS does.
Have you ever been intouch with Cerebra?
They are such a valuable source and they have a fantastic DLA guide to use also a great parent support area online.... try this link https://www.cerebra.org.uk/parent_support/DLA_guide

It's always a terrifying desision when it comes to our children, we just want to wrap them in wool. But, i'm now happy i put Josh through the process. We can now use the money for private assessments to jump huge waiting lists, help pay for social events that aren't funded through Aiming High... the list is endless.

Good luck and message me if you need to x

 

[LoraLoo]

My son has ADHD and the HV told me to apply, i didnt like the idea at first as didnt want to be seen as 'making money from my sons disability' iykwim? But my Mum said apply and if he is entitled to it then its your right. So I did, I was honest in the whole application form. People told me to lie or exaggerate but i refused to do that They contacted his consultant and about 4 weeks later we got a letter confirming he was entitled at the highest rate. He didnt need any assessments, I would definately apply xx

 

[LittleAurora]

thats alot. Ill send of the form and see what happens! ill let you guys know!!! im just being honest and the money would help pay for things like you said loraloo.

thanks again!!

 

[Twinminator]

Totally agree with Loraloo, my little girl is 2 and has been diagnosed with autism, she has a fixation with climbing, it's virtually impossible to take her anywhere, etc. I too felt odd about claiming but at the end of the day I can now spend that bit extra to give her opportunities that she can't get from a simple walk in the park (because she'd go sprinting off and escaping or something!!) And like L said, you just fill out the boxes (it's not a yes or no form, there's plenty of space to describe how LO behaves, I actually found that better/easier) as honestly as possible. I too was stunned to get the highest rate, but I think when you live with their disability day in day out, you stop seeing it as difficult, it's just normality, and you are always shocked when it's judged as more than that.
Good luck anyways xx

 

[Snugggs]

I also sent off copies of josh's assessment and reviews to help our case. I think the more information you can share with them the better. We now get the higher rate for care and the lower rate for mobility. This also means that I qualify for carers allowance, which is a blessing in disguise because it's expensive having to keep fixing the holes in the walls and door, and his bed when he smashes it and the endless amount I'd tv's he's broken...... Good luck xx

 

[LittleAurora]

Thanks!! I have sent of the form with lots of supporting letter!

fingers crossed! How long did it take from start to finish?

thanks

 

[LoraLoo]

Thanks!! I have sent of the form with lots of supporting letter!

fingers crossed! How long did it take from start to finish?

thanks

About 4 weeks and they kept me informed that they were contacting consultant etc inbetween. As someone else also said, if you do get the DLA and you dont work or earn under a certain amount (think its about £100 per week) you can also claim Carers Allowance- I sent off the forms and got the payment, backdated, into my account 12 days later. Was rather useful too, right on Xmas lol. Inform Tax Credits if the DLA is awared too as this also goes up a bit. Good Luck xx

 

[moomin_troll]

i think its worth looking into gettting any kind of finacial help u can. my brother is autistic as wel as other mental problems and he gets DLA and my mum gets carers allowence as she is his full time care giver

 

[LittleAurora]

Thanks Ill look into carers allowence as well if the DLA comes in! I am a full time mum atm. I think if I get the higher rate Ill be looking into sending my son to a better school for him!

 

[moomin_troll]

my brother went to a "special" school as my mum called it and it was so much better for him. the teachers actualy understand how to handle the children and take care of their needs.

my mums always been able to get carers allowence so its worth looking into if u can get the help i say go for everything. i cant give u any info on it as ive never really asked

 

[LittleAurora]

https://www.holywood-steiner.co.uk/index.php?option=com_contact&view=contact&id=1&Itemid=12

this is where I would like him to go.

 

[moomin_troll]

unfortuantly there isnt enough of these schools available in my opinion.

good luck

 

[littlepeps]

I ve seen the Steiner school when driving by, is it equipped to deal with autistic children too ?? I thought it was just for main stream children ??

 

[AP]

Please don't feel like you shouldnt be enetitled or making money out your sons disability.

I had an awful time dealing with our highest care award. I had been told by the lady who helped me that id prob get lower rate. But after a statement was requested from the hospital they confirmed Alex was entitled to higher rate.

I had been in denial tbh, but I realised why the moneys there, what its meant to help us with.

Higher rate DLA entitles you to claim Carers Allowance too if you require. x

 

[Stargazer77]

Yes apply for DLA but be sure to focus on night time care. DLA only award high rates for care and mobility if the child has care needs during the night.

If you don't get awarded DLA, appeal. They usually cave second time around.

 

[Midnight_Fairy]

Ours took 23 weeks :/ My son has High Functioning Autism. We do also get a bit of mobility too. Our claim must have gone from piller to post! I had to do a form, the GP did, The Pead did, The ed physc and school did etc, I think everyone had a say lol. Goodness knows why it took so long but they did backdate.

He gets higher care, I do also get carers for him. I dont feel bad for it, it makes life easier and it means for now I do not have to work because that would be a nightmare, it also means we can do the extra costs each week, taxis etc etc xx

 

[Midnight_Fairy]

https://www.holywood-steiner.co.uk/index.php?option=com_contact&view=contact&id=1&Itemid=12

this is where I would like him to go.

The DLA has no input on schools whatsoever hun. You need a statement for that which is a whole different battle, nothing to do with DLA award. Good luck x

 

[LittleAurora]

my son is statemented so hopefull that speeds things up

 

[LoraLoo]

my son is statemented so hopefull that speeds things up

Did you get much support from the school when applying, if you dont mind me asking? Our head told me not to even bother trying xx