Endometriosis Diary

[Fliss]

Oh wow - have you tested yet?????

 

[babyvaughan]

AF got me this morning at 4 days late

 

[Fliss]

Oh babes that sucks I am so so sorry

 

[lilsoybean]

Hi ladies!

I was hoping I could join your thread. I was recently diagnosed with endometriosis but they won't know for sure unitl I have my LAP in October.

My hubby and I have been trying for our first child since June 2012. We did conceive in May 2013 but it ended in miscarriage late July. We tried all last year and were finally referred to a fertility specialist in July 2014. That is where I recieved my diagnosis because of the horribly painful period cramps I had been experiencing. From what I've read on this thread, they sound very similar to what most of you have been writing about....terrible pain, can find comfortable position, can't decide wether I'm going to puke or pass out from the pain (and have done both)...all the fun stuff.

So far, they have tested my Ovarian Reserve, which is better than normal for my age (34), and I'm having an SIS test on Friday to check the endometrium for polyps and the general thickness. They have put me on BCP until the surgery in October so we are technically on a break at this time.

I'm just hoping to find some support as I keep on trucking down this long, unexpectedly bumpy, road.

 

[Fliss]

:wave: Hiya and welcome

Yeah lap is the only concrete way to diagnose endo atm.

I've agreed (though I need to sign the paperwork) to give them samples whilst I'm under to aid in research into the possibility of a blood test for diagnosis - which IMO would be amazing.

So 5 days til lasers and hopefully sorting me out a bit.

I still think that once we've decided 'no more babies' I'll be trying to stop my periods in every way possible that doesn't involve radical surgery... not looking forward to this.

Still, my mom has actually offered to have Nathan for a few days so that's one less thing to worry about.

I am concerned though that I've been told to lift nothing heavier than a full kettle for at least 2 weeks... that's going to be... fun...

 

[lilsoybean]

Wow! That would be great to have it diagnosed through a blood test!

That is nice to have family around when you need them. It's going to be very hard not to lift anything so light when you already have a little one....seems very limiting.

Are you still in a lot of pain? I really hope they don't find anything too crazy once they get in there. We really can't afford to do IVF and I've heard the success rate with IUI isn't that great.

 

[Fliss]

On our way to Wales to spend the day tomorrow. Then when we come back we will be minus one small boy who will stay with Nanny and Granddad until after my operation.

Not even there yet and I'm already missing him.

Most unlike me!

 

[Fliss]

Less than 12 hours til I head in.

I miss my boy.

My mum is attempting to potty train him which will be fun...

 

[lilsoybean]

So you are having surgery today?!? Good luck!

 

[Fliss]

Well I'm out.

In a lot of pain but good drugs.

Been vomiting a lot so anti emetics.

Banned from food for now.

Should hear from the surgeon tomorrow but from start to finish it took over 4 hours.

 

[Fliss]

So I'm signed off for SIX WEEKS!!! That is 4 more than I originally was told.

Pain meds are good but make me pukey.

I was/am a total mess internally and Nathan is a miracle apparently.

Not sure how I feel about that - but my tubes are blocked and my surgeon "had seen healthier" - she has been totally honest with me and told me not to expect three babies. I'll be lucky to have two.

It's a lot to process.

 

[lilsoybean]

That would be really hard to hear but at least she is up front with you and you were able to have the one child. I know it still stinks but just trying to look on the bright side. I hope that the pain subsides soon and that you have a speedy recovery!

It will be pretty boring in my life until my sugery Oct. 9 so nothing new to add on my side....just more BCP's which make my boobs sooo sore. I thought that would have subsided by now.

 

[Fliss]

That is true and I am so grateful for him.

Okay so I'm home. Still 6 weeks signed off which I am now completely grateful for.

It's not totally doom and gloom.


Yesterday the surgeon was talking about me trying for 9-12 months before we went straight to IVF.


As we have Nathan there's no way we'd qualify for free treatment so I don't think we will be going there but we have time.

There IS still a 6-month window for this procedure. So I think we will start full on TTC from January.

I still have my coil in (and it's a mirena) and I need to heal.

Money is still an issue so Nathan NEEDS to be three before a baby arrives for childcare reasons but being told "now or never" has spurred me.

It's something DH and I had talked about but I think we viewed it differently.


I knew it as a real possibility (despite what the MRI said I *knew* this was coming) and he saw it as "worst case scenario"

He's worried and he's right to be but we can't lose this chance. I can't cripple us financially for IVF so I have to give this a go.

If I hadn't have told them about wanting baby #2 I do have to wonder if they'd have just advised me to have the hysterectomy...

 

[babyvaughan]

Craziness I'm sorry but I just got similar new's. In fact I wasn't feeling up to talk about it until now. So I met with OB she read through my surgery notes and explained everything to me. The only problem is my tubes are being constricted on the outside from the scar tissue which is not allowing my egg to drop to be fertilized. She said nothing but IVF will get me pregnant. We discussed that we will go for IVF next year in October if we are able to financially. Otherwise she said I would be totally fertile as can be if it weren't for my scarring which was created from my past 3 major operations. Its hard because a year feels like 10 years but I know god has a plan for us and it will all workout.

 

[Fliss]

https://img.tapatalk.com/d/14/09/16/ajupu2at.jpg

The expression "buggeration" springs to mind.

I've had my cry.

Now to pick myself up, brush myself off and adjust plans accordingly.

I've ring my surgeon's secretary to request clarification as she said we should TTC. Which we will now do as soon as I'm healed up and get my coil taken out.

DH and I have talked - properly talked - and we have contingency plans in place now.

 

[Fliss]

So, my coil removal is booked for 2nd October at 9 o'clock - I'm really pleased about that as it's sooner than I thought it could be knowing how busy our GP Surgery is.

 

[babyvaughan]

I'm glad you are getting everything fixed!! So happy! I wish they could have done that for me ;(

 

[Fliss]

Oh lovely I'm not fixed - not as far as my tubes are concerned - they are still blocked - but there's a tiny chance so we are going for IT and praying.

I've begun to accept that we will need to save for IVF most likely, but we have to try first xxxxx

 

[Fliss]

So my BBT thermometer arrived today along with all my IC tests. I was more than a little suspicious of it since it looked nothing like my last one, but I've tested it and it works and goes up to two decimal places in degrees C so I'm happy.

Since I'm having my coil out in a week I may as well start charting now and see what we see.

No point checking cervix or CM til after my first post-coil period.

If I'm honest, it's that that I currently have the biggest mental block about. I'm terrified of it.

I still need to buy my Vitamin B6, my AC and I've heard something about serrapeptase being handy so if I can substantiate that I don't see how it could hurt to try it.

Looks like a trip to Holland and Barratt's next week methinks.

 

[babyvaughan]

Oh sorry I just skim read, well were in together my tubes are blocked too just from outside! I've been calling around finding out the details and pricing for IVF so I know how much we need to save! Its going to be a lot! ;/