HELP reflux, intolerances + Allergies Nutramigen Lipil

[holidaysan]

Just looking for a bit of advice really....

My first LO had moderate reflux which was managed with SMA Staydown. I tried him on it myself and basically got no help from ym GP who was clueless. LO's reflux symptoms were projectile vomiting milk and acid, screaming and arching his back. He also sometimes had mucus in his poo. After trying gaviscon given to me by the GP i put him on SMA Staydown which made it better but didn't actually solve it. He grew out of it completely buy about 11 months. I found out a few months ago that LO is allergic to egg, everytime we give him egg he comes out in a red itchy rash. He also has suspected asthma.

Ive since found out that 2 of LO's cousins on his dad's side had to be put on soy milk. They live in another country where options are limited. My brother also had bad reflux and bad eczema when he was a baby, he still gets exzema sometimes and has asthma and hayfever. I have hayfever but am not allergic and intolerant to any food. I think it comes from his dads side.

With all of the information ive gathered i really think LO had an intolerance or allergy which could have been managed much better. After reading a few things i think it is likely my next LO with have the same problems .

An article ive read has said that with family history of allergy/intolerace its wise to start a new baby on a hypoallergenic formula and it will lessen the chance of developing an allergy or intolerance. This was an article from the US so not sure if its the same in the UK. I'm thinking of starting LO off on Nutramigen lipil but not 100% sure if its wise to do so. Does it contain less nutrients than other formulas? And am i actually allowed to do it? I know its more expensive than the normal formulas but im not bothered about that and i obviously wouldn't be allowed it on prescription as LO won't have a proven problem for sure. I'd just rather use the Nutramigen lipil to start with the gradually introduce normal formula and see if there is a problem. Ive also read that its harder to get an older child to take it if its needed. Does this make sense? I just figured starting off the other way around would make more sense so we'd be avoiding a problem rather than trying to solve

Sorry for the long post. Just looking into all of my options. Thanks

 

[holidaysan]

Anyone ?

 

[holidaysan]

Nobody

 

[Bernie16]

I don't see why not really, I know you can buy Lipil 1 & 2 (for over 6 months) over the counter - they usually just have to order it in. It won't do any harm having it and if it makes you feel better... Nutritionally as far as I can tell it is pretty much the same as normal formula it is just the way the proteins are broken down. Given your concerns about the family history I woujld probably do the same. My little man was on SMA to begin with and started Neocate at around 8 weeks. We now use Nutramigen AA and have been for a month or so (he's now 6 months). We certainly didn't have any problems with him taking the Neocate at 8 weeks but god it s awful compared to standard formula!

Go with your gut instinct, from my experience most doctors, gps and dieticians are useless!

xx

 

[holidaysan]

From starting the neocate hoe long was it untill noticing an improvement? xx

 

[Crayz]

Strong connection between reflux and milk protein/soy allergy.

We use the Similac Alimentum, and it takes about 24 hours for you to see a difference.

Just a warning as PP stated, it STINKS. Don't be surprised if your LO doesn't like it at first. And there is no harm in trying it, especially if they do have an allergy, it might end up being the best thing for them.

Good luck!

 

[wifey29]

Our pediatrician pescribed nutramigen lipil 1 for our son's severe silent reflux. He has a suspected allergy as he is permanently covered in a rash, green mucousy poo, the works. He's been on the new milk for five days and he's a different baby. His rash has gone, normal nappies, no screaming at feeds. It's amazing. I should mention that he's also on ranitidine and domperidone which help the reflux too.

It's well worth a try. We got lo to take it by weaning him off his sma staydown over two days and mixing it. It really does smell and taste awful. Our lo has always taken his milk at roomtemp, but will only take the nutramigen wam so this might be worth trying too.