shelley22
Mummy, Daddy and Oliver
- Joined
- Jan 5, 2011
- Messages
- 384
- Reaction score
- 0
I'm not really sure why I am posting, I think I'm after some support and see if anyone is in or has been in the same position.
My son is 14 weeks, he didnt have a great start to life with an infection plus lots and lots of testing. He is behind in his development, he has a weak sucking reflex so has an NG tube and he has weak muscle tone and he also has little tremors. He has been to Birmingham Childrens Hospital, he is under various teams: speech and language, physio, neuro, community nurses but they cant give us any idea of what they are actually looking for and what is wrong or really give us any answer as to why he is like he is.
I know in theory there are many people who are worse off than us and have children who have lots of special needs which I feel awful about moaning about the few little things Oliver has but Im finding it really difficult that all anyone can say is basically wait and see.
Sorry for the moan I suppose I just want some advice
My son is 14 weeks, he didnt have a great start to life with an infection plus lots and lots of testing. He is behind in his development, he has a weak sucking reflex so has an NG tube and he has weak muscle tone and he also has little tremors. He has been to Birmingham Childrens Hospital, he is under various teams: speech and language, physio, neuro, community nurses but they cant give us any idea of what they are actually looking for and what is wrong or really give us any answer as to why he is like he is.
I know in theory there are many people who are worse off than us and have children who have lots of special needs which I feel awful about moaning about the few little things Oliver has but Im finding it really difficult that all anyone can say is basically wait and see.
Sorry for the moan I suppose I just want some advice