High Prolactin & Dostinex - success stories?

[Babydustpeace]

Hi ladies,

I'm new to this forum & I'm looking for some hope! I recently had some blood tests done which resulted in me finding out that I have high prolactin levels! My Endocrinologist has asked me to have an MRI ( which us scheduled for next week) and has prescribed Dostinex ( also known as Cabergoline ) which I've to start taking after my MRI.

I am just wondering if there is anyone out there that is either in a similar situation of has had success resulting in a BFP from taking Dostinex!

Thanks!

 

[Irish_eyes]

Hi Babydustpeace,

My story is not a success story but I just wanted to reassure you that everything will be ok. I have high prolactin for years and it is controlled with Bromocriptine which I take every day. They found out about this over 12 years ago but I have no known cause for it. I got a CT scan done about 12 years ago to see if there was a tumour on my pituary gland but there was none.

I just want to let you know once you start taking the meds, your levels will be lowered and there will be no reason for you not to fall pregnant.

Yes, I haven't yet but I have other reasons for that and not the high prolactin. I have heard of others with the same thing and once it is controlled they got pregnant.

Do you also chart your cycle?

 

[Babydustpeace]

Hi Irish-Eyes!

Thanks so much for responding & giving me some hope. I'm very sorry to hear that you are long term ttc like ourselves. It really is a tough road

I do chart but I don't think I can add it to a signature yet as I have only just joined. Here is the link to my charts on Fertility Friend & I'm hoping you can access them ....
https://www.fertilityfriend.com/m/home.php/373c96

We are ttc over 10 years (we had 2 m/c). I recently had some blood tests done which showed the high prolactin levels. It turns out I had high levels 9 years ago too but the Fertility clinic I was attending never treated them !! I thought I was in good hands there and I never realised how important it was to treat the high prolactin!

Let's hope that this does the trick for us!

Wishing you all the best & thanks again for replying

 

[CareBear]

Hi, I have high prolactin levels and have been on cabergoline for about 2 years. It works well and brings the prolactin levels down quickly. I haven't had a bfp as yet but I've recently found out I have low vitamin d levels and I've been trying to put weight on as well so I'm hoping sorting all those issues will be the key for me. Fingers crossed you get your bfp once you get the prolactin levels under control. Once you do get a bfp though you need to stop taking the medication immediately. Good luck x

 

[Babydustpeace]

Thanks for responding Carebear ( I love the name it reminds me of when I was a kid!! )

It's good to know that the medication works quickly! I am hoping that this is it for us .... Ttc over 10 years & I don't know how much more I can take! It's the only thing they've ever found wrong with me (DH is fine) so I have high hopes that this might do the trick!!!

Good luck with sorting your vit D levels & putting on some weight. FX you get your bfp soon x x

 

[Irish_eyes]

Babydustpeace, I have read recently that high prolactin is also associated with low progesterone. I am not sure if I knew this back when I first starting TTC and have forgot but for some reason this is new news to me.

I always seem to spot a bit before AF to the point I was confused what to take as my first cycle day. Then I read up about B-Complex and started taking B100s. That sorted my cycle out a bit. There is a dedicated post on this and funny enough it was started by someone who had high prolactin (she got pregnant). Here is the link:

Vitamin B6 - Lengthen Luteal Phase - Increase Progesterone

I had stop taking the B-Complex and after my IVF also stopped taking my Bromocriptine. Now I am not sure if it's the lack of Bromo but I feel as if my cycle is out of whack. So back on the Bromo and the B-Complex too. B-Complex is also good for low progesterone. There is also Vitex or Agnus Castus as its also known but we can not take it with the meds they give us for the prolactin as it does the same thing. I know I can't take it with the Bromocriptine anyway.

Carebear, that is interesting to know about the Vitamin D as I read a post on that yesterday. I don't know if I have ever been tested for that but I am due to see my GP on Friday so might just bring that up.

 

[CareBear]

High prolactin does cause low progestrone and it can affect other hormones too, I believe my high prolactin levels were causing me not to ovulate. Before finding out I had a high prolactin issue my progestrone was low, since being on the meds my lh fsh and progestrone were tested again as I was considering treatment and all my results came back as good in fact my doc was very excited about my progestrone levels so I no longer have any worries about that. Just need the bfp!

 

[Babydustpeace]

Thanks again for your posts

Irish-eyes ~ I have been reading through some if the posts on the Vitamin B thread and it has really opened my eyes! I stopped off at the pharmacy on my way home from work to pick up my 1st prescription for Dostinex & I also bought some B50 ( that was all they had ) so I took 2 of them to bring me up to 100

Carebear ~ I'm so glad to hear your other bloods came back with good results!

I'm finding it difficult to go to sleep lately ... Each time I try to wind down I start to get so excited that this might actually work and can't stop thinking about it! I am wishing this week away until after my MRI on Thursday to when I can start to take the Dostinex! I don't think I mentioned that my RE wants me to wait until after the MRI just in case there is a tumor there .... She said if I start to take it before the MRI we might never know if there was anything there as the meds shrink it very quickly!!

Maybe this will be a lucky thread ladies .... FX for some on here soon!!

I will be keeping my fingers crossed for you both x x

 

[Babydustpeace]

Oh I should have also mentioned that I was taking Vitex until I went to the RE last week & she told me to stop taking any herbs that I was on. If I hadn't been referred to the RE, I was planning on taking the Vitex as it's supposed to naturally treat high prolactin but can take 3-6 months! I also read that Barley Grass is good for lowering Prolactin too ... I am taking shots of those (yuck!) and will continue with them as they have lots of other health benefits too!

 

[Irish_eyes]

By the time I got to the stage for getting all the tests done (progesterone etc), I had already been taking my meds for months so they all came back fine too.

My prolactin problem started when I came off the pill many years ago and didn't take a period for 2 years! I was so naive back then though and that didn't bother me at all! Imagine! Obviously wasn't wanting to get pregnant so didn't really know if I was ovulating or not.

Carebear, so glad that all your tests are fine.

Babydustpeace, start off with taking one B50 first to see if that is enough to make changes and them increase. Also is would wait until after your MRI though like your RE suggested.

Yes Vitex is meant to lower prolactin but you can't take it with your meds. Really hope your MRI goes well. I only had a CAT scan and that was bad enough never mind going into one of those MRI machines!!!! They never found a tumour.

Carebear, did they find I tumour with you?

In a strange way it's nice to have people in the same situation for the support. I hope both of you get your BFPs soon. xxx

Babydustpeace, what part of Ireland are you from?

 

[Babydustpeace]

It really is crazy how we don't pay much attention the these things when we are younger. I wouldn't wish this on anyone

Thanks for the advice on the B6 ... I took 100 yesterday & today so I will decrease it to 50 from tomorrow! I hope the MRI goes ok too ... I'm not looking forward to getting in that machine!!

I totally agree that is nice to have support from people in the same situation it really does help.

I am originally from Dublin ( still work there & have family there ) but we live in the Midlands ( Laois ). We love the peace & quiet of the countryside. We hope that we might have a little one to enjoy it with us too ... Hopefully soon

 

[Irish_eyes]

I'm from the North. Originally Belfast but moved to the Mournes 10 years ago as that's where my hubby is from. Far better place to raise kids than the city so hopefully we will get our BFPs soon.

 

[Babydustpeace]

It seems we both have the same idea of getting out of the city to raise little ones ... Now we just need our

I have a good feeling

 

[CareBear]

I had an MRI but they didn't see a tumour so they reckon I have a micro tumour. I had meds and came off them for a couple of months and my levels went straight back up so I will be in meds now until I go into menopause

 

[Irish_eyes]

They said mine was idopathic hyperprolactinemia and I also came off my mess and my levels shot up too.

 

[Irish_eyes]

Meds not mess....predictive text!

 

[Babydustpeace]

Just a little update from me ...

I went for the MRI yesterday. I was a little scared at the thought of going into that machine ... It's so big & noisy! The guy doing the MRI was really nice & put me at ease right away. He gave me headphones which blocked out most of the noise ... There was a radio station on ( like something from the 70s ) .... So I just closed my eyes, relaxed and listened to the radio. It lasted about 20 minutes. The results will go back to my RE early next week so I will know more at that point.

I took my first Dostinex tablet last night so FX there are no side effects!

On another note ... My sinuses are playing up so I going for Acupuncture tomorrow morning to try get that sorted too as it's causing me to feel a little dizzy

How are you doing?

 

[Irish_eyes]

That's brilliant that's it's over with, felt slightly nervous for you. Hopefully you get the results soon. I was really worried about taking the Bromo but I don't seem to have any side effects. I take two 2.5mg a day.

I was at my GP today about pains I am getting after running. He just referred me to a physio. But he also asked about taking my Bromo and I explained to him I am still waiting on results from the hospital for my last test so he has asked me back in 2 weeks. I also mentioned the Vitamin D test and he thought I didn't need it. Oh well.

 

[Irish_eyes]

I was doing acupuncture but I stopped as I just never felt relaxed during it. Also didn't help that my practitioner hardly spoke.

 

[Babydustpeace]

I haven't had any side effects so far which is good! I just need to take the Dostinex twice per week.

Hope you get your test results back soon ... All this waiting is not nice

Sorry to hear you have pains from running and I hope you get sorted with a good physio!

I love Acupuncture & I think it definitely depends on who you get. My AP is amazing, I've been going to her for about a year. She does reflexology on me too which is sooooo relaxing We worked together to get me balanced from a Traditional Chinese Medicine perspective & it was her who suggested some blood tests which is where I discovered the high prolactin. It had been on my mind to get some bloods done anyway but she just gave me a nudge in the right direction!!

I will keep you posted. Happy Friday & hope you have a great weekend