High Prolactin & Dostinex - success stories?

[CareBear]

Irisheyes if you're worried about vitamin d levels get some high dose tablets from holland and Barrett that way you know you are getting a decent amount into you and try to spend some time out in the sun so you get it naturally as well. Then if it is on the low side your levels will come back up.

 

[Babydustpeace]

Just a little update from me ... RE called today with the MRI results ... It was all clear so that was good news

I've taken the dostinex a couple of times now ... I was fine at first but have noticed some dizziness on and off. Has anyone experienced this? I'm not complaining ... If this little bit of dizziness gets us our then I'll gladly take it ... I'm just curious to see if anyone else noticed anything similar.

How are you ladies doing?

Irish-Eyes ~ did you get your results back yet? Hope the pains have eased from running x

 

[Irish_eyes]

That's brilliant that they found nothing so it's probably the same as mine, no known cause.

I haven't found dizziness from taking my meds but I am taking a different one that you but what I do do is just in case I get side effects, I take it just before I go to bed.

Still no results yet but going back to the docs on Friday so hopefully he'll have them in. Still getting the pains from running. We are in Carlingford for the week and last night we ran home from the pub, lol. And today I am still sore but going to book a psyhio appointment when I get home.

 

[Irish_eyes]

Hi ladies, just wanted to let you know that I got my prolactin results yesterday and they are 98!!!! The range starts at 102 but my GP was not worried about it being too low as it's just a small bit. I thought I seen the range measurements in miu/l which I always thought it pmol/L. Not sure if there is any difference in that though.

That is the lowest my levels have ever been! So shocked at that as I thought they would have been still high since I stopped taking my meds for a good while. It just shows you the meds work.

Babydustpeace, how you getting on with your meds?

 

[Bea1986]

Hi Ladies, can i join this thread? I was diagnosed with high prolactin last year and i had an MRI which found a 5mm tumour on my pituitary gland. I am taking bromocriptine and my levels are now really low. The fs says it isnt stopping me from getting pregnant any more. I am now on clomid as well to help boost ovulation, although i have unexplained infertility now.

I'm really glad the scan was clear Babydustpeace, you must be relieved and happy to start the medication. Most people do manage to conceive shortly after starting it. i think i have other issues. x
Hi Carebear and Irish_eyes as well its nice to find other ladies on here with the high prolactin issue as well.

 

[Irish_eyes]

Hi Bea and welcome. I have had the HP issue for over 12 years and have been on BnB for nearly 6 years and this is the first thread really that I know dedicated to it and it's nice to have others to talk to about it. I am also unexplained and taking Bromo. I also have never seen a BFP in the almost 6 years actively trying and I have a failed IVF behind me too. My prolactin levels are the lowest ever so clearly not the prolactin issue is the cause.

I posted a link maybe somewhere on the first page about B vitamins and low progesterone which you may be interested it. The original poster also had HP and got pregnant.

 

[Bea1986]

Thank you for welcoming me Irish_eyes, i was really pleased when i found this thread. I think high prolactin is quite rare, i know my pharmacy have to order my bromocriptine in on special order, they don't stock it, so it must be quite unusual. I have such low levels now as well. I often wonder whether it is a hormonal imbalance still stopping me from getting pregnant, but the endocrinologist is baffled.

I'm sorry about the trying and the IVF not working. Do you plan on having any more cycles of IVF?

Thank you for the vitamin B advice, its very interesting to me, i am 8dpo today and this cycle i have taken 1000mg vitamin B complex daily this whole cycle. I am hoping it helps. I always spot from 10 dpo.

Have you tried clomid at all? x

 

[Irish_eyes]

I spot a bit too. Going to have a look at progesterone cream to take after O.

Unfortunately we don't have the funds to do a private round of IVF. We had sourced some funding a few months after but if fell through. I would love to do another round but DH is not too fussed about it. He said it was our dark year.

 

[Bea1986]

i wonder if the spotting is slightly related to our prolactin issues. I have tried progesterone cream and it didnt do anything for me unfortunately. please let me know how you get on, i am open to giving it another go if you find it helps.

IVF is so ridiculously expensive, its so unfair. And the emotional side of it is even worse. I have been offered IVF but i have put it off for now, i don't feel ready and it really scares me to think about it. I hope that you get your natural BFP very soon. x

 

[Irish_eyes]

I do think it's related, maybe it's low progesterone that does it although I have mentioned umpteen times to my doc and FS about the spotting and they never seem to think it's an issue nor have they ever said I had low progesterone.

 

[Irish_eyes]

What cream did you use? I haven't a clue where to get it though.

 

[Babydustpeace]

Sorry I have been MIA ... I was in Portugal last week and our internet wasn't too good so I didn't get to reply!

The dizziness seems to have gone so maybe it was a side effect at the start until my body got used to it!

Irish-Eyes ~ I'm delighted to hear that your levels are low!!! I wouldn't imagine the teeny bit outside the range is anything to worry about. How are you doing? Did you get to go for some physio?

Welcome Bea It's good to have someone to talk to about these types of issues that don't seem to be very common. So glad to have you join this thread!

I didn't temp when I was away so I have no idea how this cycle looks temp wise. I haven't had any symptoms at all really ... just slightly sore boobs every now and again. They certainly aren't anything like as sore as they normally are ... I guess that is the Dostinex doing it's job Also, I ovulated extremely early this cycle ... I have never naturally ovulated earlier than CD20 but this cycle I'm pretty sure (I'm not 100% as I didnt temp when I was away to confirm shift for 3 days) it was CD17/18 ... so definitely something is changing already.

I tested yesterday and today and BFNs .... I know it's still early but I am loosing hope already. When you see lots of ladies getting their BFP on FF really early you start to feel that it's normal to see a positive test early on .... I just feel a little deflated right now

 

[Bea1986]

Hi Irish_eyes, I just got my cream from Holland and Barratt, I can't remember the exact name, I'll see if I still have it in the cupboard later.

Hi Babydustpeace thank you for welcoming me on to this thread. I'm glad the dizziness has subsided. Wow that's great about your earlier ovulation. I found the same thing happened with my meds, I used to ovulate cd 18 to 22 but now its always CD 11 to 14. See it as a good sign that your prolactin must be coming down and the meds are doing the trick
Are you a POAS addict like me? I can't help myself. Don't worry about the BFN, you are never out until AF shows.

 

[Babydustpeace]

Thanks for your positive vibes Bea

I am a bit of a POAS addict at times ... I'm actually almost out of them and don't plan to buy any more! When they run out I will only test if AF is late ... Well that's the plan ... I only end up torturing myself anyway!!

 

[Bea1986]

hehe! thats a good plan! i like! i have ran out this month so need to wait for more to arrive in post, its stopping me from testing every day!

 

[Irish_eyes]

Hi ladies, well went to psyhio yesterday and have to quit running at least until she see me again next week. She did say the pain is coming from my sacroiliac joint and because I continued to run on it I have tightened the muscles in my glutes and back. So have a few stretches to do and thankfully I am allowed to still do spin.

At the moment my boobs are aching but that always happens and don't have any symptoms so think I am out. I uses to poas all time but now I don't buy them. I am also with view that if AF is late I'll get them but that has never happened.

My O is always late...ish! Well Oing around CD18-19 at the moment. Would love for it to go down to about CD16 but that's nothing to do with the prolactin anyway.

 

[Babydustpeace]

Irish-eyes ~ Glad to hear that you went to the physio and that you are taking some rest from running. Hopefully it will do you good and give your body some time to heal. What DPO are you now? Did you test at all yet or is it too early?

Bea ~ How are you doing? How many DPO are you?

I am not even sure what is going on with me this cycle I think I am 13DPO with high temps. I was expecting a drop in temp this morning as I always have AF by now (my LP is normally at most 12 days). I tested again yesterday and this morning and both were BFN so either my LP has lengthened with the Vitamin B complex or I possibly ovulated later than I think! Not sure what to think!

I'm pretty sure I am out so hopefully it is the B complex helping I need to take some positive out of it

 

[Bea1986]

Hi Irish_eyes, i hope you feel better soon and manage to get back to running quickly. How are you getting on cycle wise this month? Any more symptoms? x

Hi Babydustpeace, thanks for asking after me. My AF came yesterday on 12DPO. I don't think the vitamin B lengthened my LP all that much but it did reduce the spotting. I had minimal spotting the day before AF and that was it. Usually i spot for 3-4 days before AF comes so i see that as a positive.
Wow you are doing well, its great news that your temperature is staying up.I hope stays away for you x

 

[Babydustpeace]

Oh Bea, i am so sorry the showed her ugly head but it is good that you saw some positive changes from the B Complex! That sounds like a huge improvement down from 3-4 days spotting!!

I guess for me I will just have to wait until she shows her ugly head for me too!! I always try to take some positives too so hopefully I am right and the B complex is helping me!!

Let me ask a stupid question about setting up a signature ... I was trying to insert my FF chart but when I insert and I preview it only shows the url ... Can you lovely ladies tell me how to mask the url with a description? I hope that makes sense !!

 

[Irish_eyes]

Hi ladies.

Bea, sorry the witch got you but great news about the lack of spotting. That is sure a good sign.

Babydustpeace, that is also great news about your LP and hopefully it's a BFP.

I am currently on 10DPO and so far no spotting for me either. I have looked back at previous months and its seems that it starts at 9DPO so either I have O wrong or the B100s are working. Although I do feel as if AF is coming and all I need to do is a BM and it will show....sorry that is TMI.