Husband has Klinefelter's

[anne86]

Hi everyone,

After a year of lurking on this forum I have decided to post!

I am hoping to meet other women that are married to men who have Klinefelter's Syndrome and what fertility options you chose to create your family.

Here is a (somewhat brief) explanation of what we've been going through:

June 2014-2015: TTC with no luck

June 2015: SA shows that my husband was azoospermic (zero sperm count)

July 2015: Husband has karyotype sent to be tested

August 2015: Karyotype comes back 47XXY

August 2015 - Present:
- Husband has been seeing a local urologist to treat low testosterone (not using hormone replacement) and his T has fluctuated but never above 200. Doctor wants to schedule MTESE for September.
- I have been seeing fertility specialists at a local fertility clinic (one of the best in the US) and I have no reproductive issues. IVF will be

During the last two years all of my best girlfriends have gotten pregnant and had beautiful little ones. I used to be jealous or sad, but now I just feel like I am loosing my spark. Honestly, I am so just SO TIRED of waiting for something to happen or some good news to come our way.

I still track my cycle and as my period approaches, I still wonder if I am pregnant. It's so depressing because I know that I cannot get pregnant naturally.

Anyone else out there who is struggling with Male Factor Infertility or Klinefelter's?

Looking forward to hearing from you!

 

[Ask4joy]

Hi Anne - we do not have the same issue but I just wanted to reach out. I know how hard it is to see all of your friends starting families and a new stage of life as parents. Being 33 most of my friends already have 1 if not 2 or more children. My fiancé and I just started TTC in March. He is quite a bit older than me and I'm no Spring chick so I do worry about our fertility but we shall see. Just wanted to wish you luck and hope you find someone in a similar situation to connect with.

 

[anne86]

Thank you so much. I appreciate your response to my post. I, too, hope to find someone in the same situation.

Best of luck with your fertility journey!

 

[BelleNuit]

Hi there Anne,

I can't relate specifically to klinefelters or male-factor infertility. We're on Cycle 7 ttc so aren't at the point yet of having tests done. But far enough along that I'm starting to get worried. Its especially difficult as I come from a large family and 5 of my cousins are pregnant already this year.

I just wanted to pass on a hello. It must have come as quite a shock for your husband to find out. Maybe check if there are any online support groups specifically for klinefelters?

 

[krissie328]

we were ltttc our first and now on month 20 of ttc #2.

We have male and female infertility so we have to treat both sides. Dh has low motility so different than your case.

I know there is a support thread for people dealing with your dh zero sperm on the ltttc board. I know some of them have used MTESE and IVF with success and some have used iui with done right sperm.

Try and stay strong, it's so hard to not fall apart in your situation. It took us 8 years to get pregnant with ds. And while going through all that I forgot to enjoy life. Pamper yourself (and your dh), do things you enjoy and most of all don't let it break you down. Someday you will hold your little one. There are many paths to motherhood.

 

[vidrav]

Hello Anne,
I'm sorry to hear about your journey. Yes, I understand the feeling of seeing and being around so many babies and feeling dejected. My boyfriend and I are in a similar situation. So long story short, I've been suspecting for a while now that my boyfriend has Klinefelters. He is tall with small testicles and sparse body hair. I insisted he get a sperm analysis and blood test. Turns out he has low T (250), high FSH, and low sperm count (<1million) but decent motility and morphology. The urologist said that we would most likely have to do IVF. He refuses to get his Karyotype done, saying there is no way he has KS. I suppose he still has sperm in his ejaculate and from what I read, most men with KS are azoospermic. I'm not sure what to think anymore as I read so many conflicting things.

We are in a bit of an impasse right now. I want him to get more tests and see an endocrinologist and for us to see a fertility specialist. He wants to forget about the whole thing and cross that bridge when it comes. I'm trying to explain to him that even if we want a baby next year or two years down the line, we have to get started sooner rather than later. What is hardest right now is that we seem to be so closed off to one another; we are unwilling to have a frank conversation without him feeling hurt and me feeling like I'm alone in this. I'm curious about how you dealt with the initial shock and took the next steps. Good luck with the MTESE.