hyperemesis/excess saliva.. FED UP!

rachw16

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Hi :-)

Dont really know where to start, but i'm getting abit desperate and would love to hear from anyone with the same problems.
I'm 19 weeks pregnant with my first child and was diagnosed with hyperemesis at 5 weeks preg, in and out of hospital a few times. ondansetron wasnt stopping the sickness but when put on cyclizine aswel it finally made it stop. still suffered with severe motion nausea though, and although it's all calmed down alot now i still have a unsettled stomach often throughout the day. im also on omeprazole as suffering from acid reflux, it stops the heartburn but my food/drink still regurgitates and wont settle, i still have to eat slowly and small amounts but often. On top of that i'v been constantly bloated still since the start, so uncomfortable all the time, and very constipated. its been a lonely world going through hyperemesis as doctors/midwifes and consultants didnt really understand and have any answers. I got depressed very quickly and stopped talking as I just felt so ill and helpless. Iv had low blood pressure and extremely weak since the start, which the consultant hadnt heard of before. has anyone else suffered from weakness especially legs?? I cant stand for long, or look after myself. I'v also had excessive saliva since about week 6, it makes dealing with everything else twice as hard. Eating and drinking give me relief from it but I can't do that all day, also when i talk it doesnt produce as much. It dries up througout the night and i'v found the more of it i swallow it produces just slightly less. I have to spit it out at least once every twenty seconds I can fill cup fulls. Sometimes it makes me gag and tastes disgusting. My mouth also went through that horrible metallic taste stage and although thats gone now my food and drink still linguire horrible overpowering tastes. 1 doc weve seen says the saliva could be related to the excess acid in my belly and the salivas supposed to nutralize it, but I dont think its that. also the cyclizine side affects are dry mouth so could I be producing more due to that?? A consultant has said he doesnt want to give me a spray thats supposed to dry your mouth up because i'm already on alot of medication. We have tried EVERYTHING to ease all of this.. sea bands to stop sickness, sunflower seeds/chewing gum for saliva, low fat diet to help bloatedness, as much fruit veg I could eat, charcoal tablets for bloatedness, been on steroids to help my appetite (they made me more ill), so many more things but I cant think of them all!
If anyone has any experiences of any of this I would really appreciate to hear about it, thanks!!
 
Hey, I am 29wks now & suffering with HG, I thought it was starting to ease a few weeks ago & then this week it has gradually got worse again, yesterday all i kept down was some potato & now i'm sat here at 1am having thrown up again & my throat is burning from all the acid & i dont know what to do..............

Doc's & midwifes seem pretty useless with advice, my legs are getting weaker & I've been having pain at the very top of my right leg & bottom of my abdomen this week, the only comfort i have is that the baby is moving a lot so that tells me he must be ok.

It's so upsetting everytime im sick now I just want to cry, i was taking gaviscone for heartburn too until that started making me sick too !

I hope you find some relief soon, I dont see a midwife for another 2 weeks & the consultant in 4 weeks so Im stuck til then.

Let me know if anything works to ease things for you :-) Xxx
 
You poor thing; I'm afraid I can't offer any advice but just wanted you to know you're not alone.

I had hg with my son right up until he was born. Cyclizine helped but was still sick after most meals. I was exhausted the whole pregnancy and was off work for months.

I have it again but much worse with this one. Ondansetron helps but again sick several times a day.

The one thing I would say to you is that when you lay eyes on your baby it all becomes worth it. Hell, I'm doing it again eight months after my first so it must be worth it!

Big hugs to you and just concentrate on that end result - I promise you it will be worth all the pain xxxx
 
I am sorry for all your suffering as well. I have the excessive saliva and it is horrible! I can spit all day too. Eating helps but feel sick after I eat. Is the medicine you take for the excessive saliva? I think if I could get rid of that I wouldn't be so sick to my stomach. Hope things get better for you soon.:hugs:
 
it's so reasuring to hear other people's stories thankyou :) it's a shame that with it being so rare theres no easy way of talking face to face with other sufferers.

I tried coming off ondansetron last week but nausea soon came back,so back on them again. I feel lucky that I dont bring EVERYTHING back now,if it means eating limited food when I can then so be it. I really feel for you still being sick :hugs:

as for the saliva no there is no medicine :( but the consutant told me months ago that theres some sort of spray that is supposed to dry mouth out,but I was on so many diff meds at the time he didnt want to give me anything else.I see him again in 2 weeks and am going to beg him for it! il put the name of it on here if it does come to anything so you can mention it to your doctor!

am 22 weeks now thank god over half way!
the amount of meds and trauma its such a relief to know my babygirl is normal and all is fine with her.

the weakness is one thing that really gets to me its scary cos no one seems to have an answer when i know its clearly not normal. even if I wanted to move outside the front door its not long until I start to look drunk from weak legs. my doc this week has finally realised it needs looking into more so she did calcium iron and organ blood tests which the iron has come back very low (I was told at my 12 week iron blood test that its low but stable so if it gets lower il need meds for it) well how were we supposed to know its gotten lower if for 10 weeks no one has done another test of it!! im now waiting for the results of a full blood test check as doctor wanted me to have everything checked again. I looked at anemia systoms and I can relate to alot of them,aparently weak/achyness can also be through low iron so it's frustrating knowing that this might be the answer and I could of had help weeks ago for it.

yeh the thought of having baby here is the only one keeping me going and now I can feel her id do it all again if it meant having her here.

your very strong to go through it all again 8 months later!:hugs:

thanks guys :flower:
 
I have gotten ondansetron from my doctor but it isn't doing a thing! I go Wednesday and am going to beg for the spray too. I don't know if I can do this for 7 more months.
 
they say ondansetron is meant to be the strongest but it didnt work for me either. theres quite a few you could ask to try the others. have you had any luck with this spray with your doctor? I see consultant next thursday it cant come quick enough now!! 5 months of it and im so fed up with it.my doc has never heard of a cure for it but I know consultant def said it!
 
My doctor said there is not a spray he can give me. I am in the US...not sure where you are. He gave me Phenagan or something like that? I started taking Zyrtec (sinus med) and I actually think it helps some. I was thinking I wanted to die and now I just feel sick so it has to be doing something. I sure hope you find something to make you feel better.:hugs:
 
I just googled both them meds you mentioned and it says there allergy treatments.. I dont get the connection did the doc explain why them meds to you? ah im in the UK, would of thought meds arnt that diff between countries tho. It dont make sence cos my doc not heard of spray either, just 6 days and I can finally ask this consultant what he was on about!

how far gone are you?

I went through a wanting to die stage around 8-12 weeks, it's so awful to live through but it does get better. chin up we'l get there:hugs:
 
I am 8 weeks and 3 days according to my scan. I know it is an allergy med but for some reason they recommend it for morning sickness. I think I read that it dries up fluid in the ears and maybe the stomach? My doc also said I could try Benadryl. I PRAY that I feel better soon! Keep me posted if you find something that works. :hugs:
 
oh right that's strange.have you got extra mucus aswel then? i had like a mucus lump at back of throat for months doc said its just protection from saw throat from sickness.its gone now but its still like i have a cold when i don't,so much mucus. are all them meds for excess saliva then, not sickness? i will, im gonna try some other remedies soon.fingers crossed xx
 
I mentioned the extra saliva and this is what he suggested. I do not have allergies. I have tried 2 prescriptions with no luck but I swear the Zyrtec is helping! You should most definitely try it! Oh and it took a full 48 hours to kick in. I still have it bad on some days but like right now, I am sitting on the couch and do not even have a napkin to spit in. LOL. Such a horrid feeling to constantly want to spit.
 
Hi ladies
I am on pregnancy number 4. I had HG with the first 3 and am only 5+3 today but can feel the nausea coming. I went to the Dr today and he has given me Metaclopramide to start with. It is an antihistamine which is for allergies but i am not sure how or why that would work but as long as it does I will be happy. I had cyclizine with number 3 and it made me very drowsy. I have also tried Bucastem, stemetil suppositories (which were quite good) sickness bands, sweets, ginger......you name it. Apparently Thiamin, which is a B vitamin can work and the Dr said I could try that is this doesn't work.
The thing that worked best for me with number 3 was eating chocolate as soon as I woke up in the morning. I am sure that Morning Sickness has something to do with low sugar and that made me feel a bit better some days. I lived on flakes!
I hope you are all feeling a little better and are not suffering too much. Keep smiling as the little bundles are worth the sickness in the end!
C


:flower:
 
haha wow you were lucky no tissue to spit in,im sat here with a mouth full! I will most definetly try it il go first thing in morning to get some lol.
it's obvo all related cos they suggest antihistamine meds for alot of pregnancy symptons like this.
strange how choc worked for you i was a chocoholic before i fell preg yet spent the first 20 weeks sick at the sight of it, anything with sugar in now i feel repulsed by.iv been eating salty foods as i swear it helps with the saliva too.
i have been constantly drowsy from the start and im on cyclizine, just cant live without it yet tho.
jesus baby #4 all with hg i dunno how youv done it.this is my first and iv already decided perhaps going thru all this once is enough lol your a brave lady! xx:hugs:
 
I think I have a very short memory! ;)
Feeling very nauseous today but holding out on the drugs! Have eaten choc and gum and that is keeping me going. Keep smiling as it will get better at some point. I know it doesn't feel like it but I promise it will be worth it! Always here if you need a rant. Am sure I will return the
 
Oops pressed send. I was going to say I will return the favour soon!
 
Hi ladies.
I am not pregnant at the moment but have been through HG 4 times. First 2 successful pregnancies, 2nd 2 not. Currently trying for baby #3 with new (and WONDERFUL partner) but am on clomid because I have PCOS so don't ovulate on my own. The irony hey - need drugs to ovulate then will need drugs to even half function when I have HG!

Anyway I saw this thread and just wanted to touch base because....well...Ive been there! Have you seen the 'Hyperemesis sufferers unite!' thread? It's a long one but lots of stories there and it really helps to know you are not alone and you are NOT a failure!

Just wanted to quickly share what I have learnt re HG because I did A LOT of research on it before trying again.
While there does not seem to be a cure, I did find one very small study that suggested if you take odansetron right at the beginning of your pregnancy (or the moment you feel sick) that you may drastically reduce or even eliminate HG! Not much good to you now but maybe something to consider next time. I'm certainly going to give it a go and have already stocked up! Now I just need to get pregnant!
There also seems to be some suggestion that HG is worse with girls.
While there's a good chance if you've had it before you'll have it again, I have read that it peaks in your 3rd pregnancy (and that certainly was the case for me, it was unbearable)! When I get pregnant it will be my 5th pregnancy so I'll let you know how I go!
Sometimes taking odansetron during the day and restavit at night helps. The restavit just makes you sleep but if you can sleep you'll have more strength to face the next day.

Finally, and I KNOW this is easier said than done, but the best thing you can do for yourself is to keep hydrated! I couldn't stomach liquids so I know it's hard but with my last (short-lived) preg. I found home-made lemonade (soda water, lemon juice, sugar) I could actually keep down & I felt so much better for it!
Don't worry too much about food if you can't eat but DO try & drink. Even just tiny sips here and there.

One of you mentioned feeling weak all the time. I was exactly the same with EVERY pregnancy. If I could make it to the end of the my very quick shower I was doing well! One time I did actually collapse in the shower because I actually blacked out. Checked myself into hospital after that! Be wary of showers, the warm water coupled with dehydration is not good.

Thinking of you, and even though I dread the sickness, I'm hoping to join you in pregnancy soon.
xx
 
Hi Micha2
Thanks I much for your message! So nice to hear from fellow sufferers of the evils of HG. I hope that you have success getting pg very soon...am keeping fingers and toes crossed for you. Just to throw a spanner in the works, I was more ill with HG with my boys, def number 1 anyway. Anyway, I am hoping HG has got bored with me and I will have a sick free PG.
:hugs:
C
 
Oh I am so happy to find this thread! I am 14+2 with my first and I NEVER thought pregnancy could be like this. At home with home IV fluids, ondansetron and a Reglan medication pump. And still feel like crap most days.
I signed up on one website for a support buddy but her last was 5 years ago so she definitely has some memory loss. haha!
I need other support buddies who are currently going through this. We can check the days off together and countdown to the happy ending. I am new to this site. How do I bookmark this thread?
 
Hi 1Timer29
You poor thing! You sound really poorly! Are you in the US? I have never heard of being home with IV meds. First of all I would like to say it is worth all the yuck in the end - I don't think I would be doing it again if it wasn't - or maybe I have a memory like a goldfish! Hang on in there - we are all here to support you through each day of the evil HG! Rest is the key. Lying down is good and sleeping is the key for me! I have managed 3 short naps today and I feel almost human! Don't feel bad about doing nothing at all as it is the best thing you can do. If you need anything at all, don't hesitate to shout!!!!
As regards to bookmarking, the replies to this thread should show up when you go into your profile - the bit where it says USER followed by your initials!
Keep us posted on how you are doing and try to keep smiling!!!
C
:hugs:
 

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