hyperemesis sufferers unite!

[HGsurvivor05]

Hi SBL,

these are 2 links

https://www.facebook.com/groups/10679179242/

https://www.facebook.com/groups/PreventHG/

They are closed groups so any posts shouldn't show up in front of your FB friends.
I have been trying my hardest to get myself emotionally ready so time will tell. Its great to have the internet and some support groups although don't think I could barely look at a computer last pregnancy!!!

Hope all goes well when your time comes and think we are all so brave! x

 

[Boothh]

hi can i join in on this group please? suffered with HG last pregnancy and weve just started to NTNP. im really scared of it returning especially now i have two children and we dont live near family like we did last time so i wont have alot of help with them. thinking of going to see the gp and seeing what we can have put in place because trying to get meds last time was so horrible, it took weeks before anyone took me seriously

 

[HGsurvivor05]

Hi Boothh,
So you found us on FB page. Did you suffer HG on both your pregnancies? That is us just started trying after 8 years! I never thought I could go back and for years couldn't even hold a baby. THis is our last chance and maybe turning 30 last year gave me the push I needed. Like you I am petrified, one moment I am really positive then the next I am bricking it. Like you being in GB and under NHS they are hopefull. When we initially made the decision I spoke with a nurse who didn't even know what HG was, she got me an appointment with a midwife who was the same midwife as I had with DD and sadly she couldn't answer HG questions and said they wouldn't diagnose HG until at least 12 weeks! even after lots of hospital admissions last time still Dr wouldn't try meds until it was too late. As soon as I get positive I am going to DR to push for something on prescription just encase.
Just trying to get myself ready mentally!
Good luck with your NTNP
xxx

 

[Boothh]

I had severe ms with ds1 but it was a walk in the park compared to ds2! Every pregnancy, inc mcs has been worse for me so I'm scared! I'm going to go see the doc and make sure they know whats going on and that they'll be okay with giving me meds and I won't have to fight for them.

 

[Boothh]

Just to add it was my reccurent mc consultant that prescribed me meds last time, but trying to get a repeat from the gp was horrific, he flat out refused me despite me throwing up in the waiting area 4 times whilst I waited for my appointment! I had to refuse to leave his office until he called my consultant to get them!

 

[lola85]

They won't diagnose hg till 12weeks?! That's mad I'm in the uk and was diagnosed and prescribed meds at my booking appointment at 7weeks and it turned out after my scan I was only 4-5weeks then. I think I was lucky with my midwife although all the gp's I saw initially were useless took a few admissions before they would take it seriously.

 

[Boothh]

They won't diagnose hg till 12weeks?! That's mad I'm in the uk and was diagnosed and prescribed meds at my booking appointment at 7weeks and it turned out after my scan I was only 4-5weeks then. I think I was lucky with my midwife although all the gp's I saw initially were useless took a few admissions before they would take it seriously.

i was diagnosed last time at 7 weeks but it started at 4 weeks exactly, id already lost 2 stone and turned yellow by the time they diagnosed me! it was a different trust though because weve moved countys now so i need to go and see what this one will be like. the gp i have now is pretty good though so hopefully it should be smooth sailing if i do get it again. with a 4yr old to get to school and a toddler i need to know ill be supported. i had to move in with my grandad last time because dh was working long hours and couldnt afford to be off to help me and i couldnt look after myself. this time i wont have that option.

 

[Guppy051708]

12 weeks?! I would have been in very fragile state far before that! I started HG at 9DPOs and was in agony by 5 weeks. I remember when i was 5+5 i would wake up crying to DH in the middle of the night bc i couldn't handle it anymore. I was already at the end of my rope.

 

[HGsurvivor05]

I know that's how little they know about in my region and that came from my midwife!!, I lost count how many times I had been admitted by 12 weeks with DD yet they still refused to prescribe medication outwith hospital. I had really bad time with hospital from start to finish.

To add to my worry we just started TTC last week and hubby has been made redundant we are devastated he worked for the company for 20 years since he left school never thought we would be in the position so looks like we will be back to WTT

Hope everyone is hanging in there x

 

[Guppy051708]

My little miss should be arriving soon which means (thankfully!) my battle with HG will be done FOREVER!!! It might sound horrible but im honestly counting down more towards the fact that i wont have to deal w HG anymore than i am for my baby to arrive of course i am thrilled and beyond excited for her arrival (im 39+1 today) but HG has been one of the worst experiences of my life. DH got a vasectomy last month, thats how horrible it's been and i honestly cant be any happier that our family is complete and i will never ever have to deal with this again...i hope i dont sound like a terrible mother or person, but honestly HG was/is so bad that im totally and completly turned off to the idea of every reproducing again. I cannot wait until the day she arrives and the last day of my battle...finally, victory...i can taste it. (err...maybe that was a bad unintended pun )

 

[Vicki_Cream]

I was diagnosed with HG at 8 weeks, but it started at 6 weeks. I've been admitted three times and given various medication to try, and am now on ondansetron which is working pretty well. My GP, midwife and local maternity unit have all been fantastic and have always acted so quickly when I've been admitted, or giving me new meds to take. I really hated being pregnant up until a few weeks ago, and now the sickness is relatively under control I have begun to enjoy my pregnancy. My doctor wants to try and wean me off the meds soon so see if I'm naturally passed it...not looking forward to that!

 

[HGsurvivor05]

oh wow Guppy not long now keep us posted!

HG does the strangest things to you. I am a nursery nurse and love kids but took until last year for me to actually hold one and think 'aw your kinda cute' I don't know if i resented other babies/mums for what I went through. I loved DD from the minute she was born and we are very close but babies after HG scared the living day out of me!
I remember feeling really ill and broke down as was sure I was preg on taking test it was negative and it turned out to be really bad flu, I lost 9lb in one week and felt very similar in the fact I was so dehydrated. I really can't believe we are going back. Its been a really hard decision and taken months of getting myself emotionally ready although if it hits I know I will crumble but hurts so bad that DD longs for sibling and was one of the hardest decisions we have made. I just hope its a bit tamer than last time if I get it.
Good luck with labour and the end is now in sight

 

[HGsurvivor05]

I was diagnosed with HG at 8 weeks, but it started at 6 weeks. I've been admitted three times and given various medication to try, and am now on ondansetron which is working pretty well. My GP, midwife and local maternity unit have all been fantastic and have always acted so quickly when I've been admitted, or giving me new meds to take. I really hated being pregnant up until a few weeks ago, and now the sickness is relatively under control I have begun to enjoy my pregnancy. My doctor wants to try and wean me off the meds soon so see if I'm naturally passed it...not looking forward to that!

Hi Vicki,

Is this your first child?
I hope this is it eased for you. I will fighting so hard for them to listen to me if it hits. Can I asked what medication you have tried? it has been so long since I had HG forgotten what they did eventually try me with. Having an upto date list of whats out there on NHS may come in helpful!!!
We have just started TTC no.2 after 8 years! although go a big blow on Fri as Hubby lost his job of 22 years. We are staying positive and hoping he gets something soon. He is going to do offshore training and hoping to pick up some self employed work till everything hopefully falls into place. We have had some challenges thrown at us this year and he wants to keep trying as he says it will eventually be a happy ending after all the crap we have been through.

Keep us updated on your progress?
Can I ask if you were or are working and if so how have your employers been? xxx

 

[lola85]

I've been really well weaning off my tablets for the last month feeling great and gaining weight then today I feel like HG has returned with a vengeance so upset I thought it was over. Meds won't stay down and been throwing up bile every hour since 8am feel rotten and just want to cry! Only been back at work 2 weeks and off sick again fortunately they have been great. Hope everyone else is having a better day

 

[Vicki_Cream]

I was diagnosed with HG at 8 weeks, but it started at 6 weeks. I've been admitted three times and given various medication to try, and am now on ondansetron which is working pretty well. My GP, midwife and local maternity unit have all been fantastic and have always acted so quickly when I've been admitted, or giving me new meds to take. I really hated being pregnant up until a few weeks ago, and now the sickness is relatively under control I have begun to enjoy my pregnancy. My doctor wants to try and wean me off the meds soon so see if I'm naturally passed it...not looking forward to that!

Hi Vicki,

Is this your first child?
I hope this is it eased for you. I will fighting so hard for them to listen to me if it hits. Can I asked what medication you have tried? it has been so long since I had HG forgotten what they did eventually try me with. Having an upto date list of whats out there on NHS may come in helpful!!!
We have just started TTC no.2 after 8 years! although go a big blow on Fri as Hubby lost his job of 22 years. We are staying positive and hoping he gets something soon. He is going to do offshore training and hoping to pick up some self employed work till everything hopefully falls into place. We have had some challenges thrown at us this year and he wants to keep trying as he says it will eventually be a happy ending after all the crap we have been through.

Keep us updated on your progress?
Can I ask if you were or are working and if so how have your employers been? xxx

Hello!

Yes, this is my first child but my second pregnancy, the first resulted in ectopic (and I didn't develop HG in that pregnancy). The HG seems to have been under control thanks to Ondansetron since about 17 weeks, and I have managed to wean myself down to just one tablet a day but haven't tried going completely off my meds yet. If I'm late taking my tablet I can feel the tell tale signs that HG will rear it's ugly head very soon. I had previously tried cyclezine (which I ended up reacting to and it made me vomit more), metoclopramide and a few others (which I'm failing to remember right now!)

I work full time, and our HR lady was effing diabolical with my sickness at first. After my second hospital admission, upon my return to work she tried to tell me that my sickness was grounds for disciplinary and that I wouldn't be getting the pay rise everyone else was getting due to my sickness. I promptly pointed out that according to advice from the CAB (I'd already looked into it just in case) they cannot penalise me for pregnancy related illness, and reminded her that my condition has been well documented by the various doctors and registrars that I have seen. She soon changed the subject, and I got my pay rise. I think since then she has actually looked into what she can and can't do to me, and she has been nice as pie since then. Win!

I'm sorry to hear about your husbands job, I'll keep my finger crossed that he finds something else soon.

Did you suffer badly with HG in your first pregnancy?

I will definitely keep everyone updated with my progress xxx

 

[Vicki_Cream]

I've been really well weaning off my tablets for the last month feeling great and gaining weight then today I feel like HG has returned with a vengeance so upset I thought it was over. Meds won't stay down and been throwing up bile every hour since 8am feel rotten and just want to cry! Only been back at work 2 weeks and off sick again fortunately they have been great. Hope everyone else is having a better day

Oh no! Sorry to hear you had a bad sicky day Lola, are you feeling any better now? xx

 

[lola85]

I've been really well weaning off my tablets for the last month feeling great and gaining weight then today I feel like HG has returned with a vengeance so upset I thought it was over. Meds won't stay down and been throwing up bile every hour since 8am feel rotten and just want to cry! Only been back at work 2 weeks and off sick again fortunately they have been great. Hope everyone else is having a better day

Oh no! Sorry to hear you had a bad sicky day Lola, are you feeling any better now? xx

Yes thanks somehow managed to keep metaclopramide down before I went to bed so now back on that and ondansetron and feeling ok. They can sod off with there weaning off the tablets! Although work have been amazing I'm worried about having too many triggers for being off sick and being forced to take mat leave early! X

 

[Vicki_Cream]

I've been really well weaning off my tablets for the last month feeling great and gaining weight then today I feel like HG has returned with a vengeance so upset I thought it was over. Meds won't stay down and been throwing up bile every hour since 8am feel rotten and just want to cry! Only been back at work 2 weeks and off sick again fortunately they have been great. Hope everyone else is having a better day

Oh no! Sorry to hear you had a bad sicky day Lola, are you feeling any better now? xx

Yes thanks somehow managed to keep metaclopramide down before I went to bed so now back on that and ondansetron and feeling ok. They can sod off with there weaning off the tablets! Although work have been amazing I'm worried about having too many triggers for being off sick and being forced to take mat leave early! X

Glad you are feeling better! I know what you mean about your worries, I have been worrying about the same thing. x

 

[Guppy051708]

HG has come back in the last few weeks...today is due date, still no baby...this is so cruel

 

[melissa84]

Hey ladies, has anyone here tried the HG protocol by Shonda Parker? The link below really has given me hope for my next pregnancy. Definitely going to get some milk thistle and B6. What do you think?

https://www.helpher.org/forum3/viewtopic.php?f=33&t=29124

??