IVF - NHS waiting list?

[TrixieLox]

This is really interesting. I think it's a year in the Bucks area. Me and hubby have already discussed we'll go private if we have to wait that long, maybe go abroad. We've been saving for a few months for quite a while for when we have a baby but seeing as we're - hmmmm, a YEAR off track - I think we can use some of that dosh for private treatment IF we need it (setting ourself deadline of end of this year then we get the ball rolling). Costs about 3.5k for 4 rounds, less if abroad from what I hear. x

Wow - which clinic is that for? We paid just over 4k for 1 round. Seeing as we need to go again due to our early MC, if we can get treatment loads cheaper by going to England, then I'm defo in!!

I read it a looooong time ago that we get 2-3 free rounds if we go private for 1. Might be totally different now.

 

[roobie74]

I live in Nottingham and had IVF in May 2008. I can't say for sure how long this areas list is because there was a cock up and I was never actually put on the list, but here is my timescale:

March 2007 - Laparoscopy diagnosed my only fallopian tube blocked & consultant said he would put me on the IVF waiting list.

October 2007 - Rang to chase up appointment & discovered I wasn't on the list. Consultant apologised and said he'd try and rush me through.

December 2007 - Got NHS funding

January 2008 - Appointment at private clinic and told ok to proceed as soon as the clinic had NHS funding confirmation in writing

March 2008 - Chased again & found that the private clinic was still waiting for confirmation. Then discovered NHS were still waiting for letter from private clinic confirming they could treat me. Stupid, stupid excuses from both sides & more apologies.

May 2008 - Began Long Protocol for IVF.

So apart from all the cock up's I suppose I could have started a lot sooner. Just highlights the fact that you can be forgotten about if you don't pester them. I didn't because I felt grateful to even be able to get funding, but had I been ringing a lot sooner than I did, would have discovered they had forgotten about me twice.

In the end though I got pregnant on my first IVF cycle and am nearly due to have my twins so I am very happy

Good luck to all who are waiting to try

Snow girl - congratulations - I wish you the best of luck xxx

 

[Brambletess]

I am in Somerset PCT and we can choose which clinic we want to go to and they will fund two cycles. I have been told at my follow up appointment from lap and dye yesterday we will hear back in a week about the NHS funding (amazing they make a decision in a week). Once that is back we will be referred to Bristol Repromed for our initial consultation. MY FS reckons we could start treatment as early as end of April. I am very excited as that is very soon, considering I went end of October for my first appointment with the nurse. It seems unfair that other people in other areas have to wait for ages. I think that was the case with Somerset PCt until recently when they changed the protocol.

 

[brokenbits]

Wow, thanks brambletess you've just answered a question i've been searching for the answer to for ages!! Lol, i'm also in Somerset PCT so that was very interesting to me. Thanks again.

 

[w8n 4 miracle]

i live in oldham, near manchester, and for us here it's a year on the waiting list. we have to give up drinking and smoking (i don't smoke but my husband has now cut down with the intention to stop), and we go back to see the gynao in 3 months, this is even BEFORE they even put us on the waiting list. the nhs waiting list don't have people on there who are drinkers/smokers, they don't even put you on the list if you drink/smoke.

i think the year waiting list is the minimum, certainly ain't the max! it takes the p1ss i think, which is why we're looking into private clinics that do heavily discounted ivf if you're willing to share your eggs, which i am. i'd love to help someone who's eggs aren't good, like if they have a disorder and don't want to pass their disorder onto their child, then why not! if a woman wants to become a mother she has the right to do so!

 

[MissAma]

I read it a looooong time ago that we get 2-3 free rounds if we go private for 1. Might be totally different now.

I'm afraid Maz has the right figure. I think you'll find the cheapest you can get one fresh go (even in places like Spain or Greece) for is at around 4000 Euro which is probably 3K pounds these days. The cheapest there is is a 3 tries pack in India for the equivalent of 5K pounds from what I know.

 

[jeanettekaren]

I'm in Trafford and the hospital told me it was only a couple of months wait for IVF here.

 

[kat08]

That's really helpful Jeanette I am in Trafford too and think I will be referred to St Marys in October but not sure how long it will take to then start treatment

 

[Tory123]

Hi

I am in Havering and have an appointment with the consultant on the 7th Aug to discuss IVF. The FS told me that the waiting time is 18 weeks with 3 IVF trys. I will know more on the 7th. Already me and my DH have had to be tested for HIV, Hep b and C apparently standard........ I hope so.

Tory x

 

[jeanettekaren]

That's really helpful Jeanette I am in Trafford too and think I will be referred to St Marys in October but not sure how long it will take to then start treatment

I'm under Wythenshawe hospital so don't know if the waiting time differs much between here and St Mary's but I do know that we are very lucky to get three funded IVF cycles, and they don't mind that my OH already has kids from his first marriage. I love Trafford PCT, lol!!

 

[beauty]

I live in trafford and under Trafford and didnt no we got three IVF goes, see i get told all different things, i got told its only one try!!

Not near IVF yet, but its nice to know these things.!! x

 

[beauty]

That's really helpful Jeanette I am in Trafford too and think I will be referred to St Marys in October but not sure how long it will take to then start treatment

I'm under Wythenshawe hospital so don't know if the waiting time differs much between here and St Mary's but I do know that we are very lucky to get three funded IVF cycles, and they don't mind that my OH already has kids from his first marriage. I love Trafford PCT, lol!!

What is your consultant name huni? I bet your seeing same person i am!!
I find them crap to be honest, lost my whole file! Didnt book me on the HSG scan when i had my internal scan so now behinde! HSG scan booked for October time and no further on then i was this time last yr!
x

 

[shopaholic28]

Hi, i'm new to these forums, been trying to conceive since April 07 and have been under South Manchester with St Mary's hospital. We apparantly 'joined' the waiting list in October 08 but nobody-not even the consultant, could confirm how long the waiting list was. Don't ask me why, it's an absolute farce! We still have no idea, and are waiting for an operation for my hubby to try and see if they can retrieve sperm (he suffers from azoospermia). He's had blood tests lost, he had his original sperm test lost, it's always us contacting them, its like we've been forgotten about and I still don't know how long the list is!! although if it's only a year then we should hopefully start the ball rolling in October this year!-if anyone has a positive story from St Mary's I'd love to hear it! )

 

[brumbar]

6 months to 2 years for the London area.... they offer 2iui + 1 ivf or 2 ivf cycles regardles of the cause (I've got undiagnosed endo with only symptom infertility.... ;-( ).....lets hope we manage to do it ourselves b4 they decide to contact us.

 

[Ena]

I was on the waiting list exactly 1 year before I started my 1st IUI. Hopefully none of you will have a long wait

 

[Manchester_Lu]

I'm under Wythenshawe hospital so don't know if the waiting time differs much between here and St Mary's but I do know that we are very lucky to get three funded IVF cycles, and they don't mind that my OH already has kids from his first marriage. I love Trafford PCT, lol!!

Hi, I live in Trafford and was also under Wythenshawe Hospital but the gynecologist there told me that he couldn't refer me for anything to do with infertility within Wythenshawe hospital so he referred me straight on to St Mary's in central Manchester.

I don't know what he said but I was seen within a couple of weeks, I've now had my initial tests and internal scan and been given an appointment date for 1st december. So far I feel I've been lucky not to have been waiting for months or even years.

By the way I have a 6 (nearly 7) year old from a previous relationship by my current partner has no children. i have had fertility ptoblems for many years though but my partner hasn't as yet been tested so i will be asking them to do this. They have apparently changed the rules to allow couples like us to receive assistance rather than exclude us because I already have a child.

 

[fifi-folle]

I'm not at the point of going for IVF yet, not been TTC long enough, but gynaes think it's likely, due to my endo, that I will need help to get pregnant. So when I was told this I thought I should find out how long the waiting list is, in Edinburgh there is up to a 3 year waiting list, although if you live in the Borders it is only 3 months to get referred to the same hospital! Thinking that we may just move to the Borders!!!
Interesting to see the differences in waiting times. Cost seems to be much the same, in Edinburgh it's £3500 if you pay for your own treatment.

 

[noddysgirl84]

Hi, I am in Ipswich and my IVF clinic is in Cambridge, The NHS waiting list is 15 weeks back in July and we get 6 embro transfers - I think?? I was referred in July, My consultation was at the beginning of October and I get my first cycles drugs in December.

 

[wannabump]

Hi, I am in Ipswich and my IVF clinic is in Cambridge, The NHS waiting list is 15 weeks back in July and we get 6 embro transfers - I think?? I was referred in July, My consultation was at the beginning of October and I get my first cycles drugs in December.

Hi noddysgirl84, I'm in Ipswich too! Just got my first referral to the FS at Ipswich Hospital for male factor infertility (DH has low morphology). It's nice to hear from someone in the area and it sounds like Suffolk PCT is pretty good for funding IUI/IVF. Do you know if you have to go Cambridge? I thought there was a clinic in Colchester, which is obviously closer.

I will keep track of your progress, because I am not far behind you. Best of luck with everything!!

Cheryl x

 

[Lobbie]

Hi Wannabump and Noddysgirl...I am in Ipswich too, we have had 4 cycles of clomid with no success and are going back to Ipswich Hospital to see Mr Boto (FS) on 31st March. If he suggests IVF, how long are we talking do you think to start the treatment. Hubby has low sperm morpholgy and motility. I haven't had a lap and dye yet so think they might do that first. We have been ttc for 20 months. Good luck to you all