LTTC #1 9 years, awaiting IVF

[LornaMJ]

Looking for buddies to share my journey with who understands what I am going through. We have been TTC for 9 years. In thsi time I have had 2 miscarriages and an ectopic for which I lost a tube. These were all natural BFP's however since losing a tube and finding out my AMH is very low, we are now awaiting IVF hopefully end of the year. My DH also has low motility and count!! I am sure many of you can relate when I say how very hard thsi journey can be, month after month of BFN's is really taking it out of us and sometimes I just want to cry. As I am 34 I am watching more and more family members and friends have babies after babies and I am really struggling with this. However I have a wonderful DH and I am sure we will very soon be parents Look foward to sharing my journey with some of you. I also have a journal which explains my journey so far!!

 

[Crosby]

I feel for you, I have only been trying for 2 years but I haven't had a BFP and also awaiting IVF. Good luck and I will stalk this thread for updates and also post mine

 

[Melbram]

HI there, OH and I have been TTC for 3 years which feels like a lifetime. I am in the middle of round 2 of IVF. Primarily male issue for us.

Cant imagine how I would feel after 9 years of this crap - I have everything crossed for a BFP following your IVF x

 

[LornaMJ]

Hi Crosby and Melbram

Crosby when are you expecting to do IVF?

Melbram..crossing fingers for you that this IVF works for you

And yes after 9 years it certainly sucks and does not get ANY easier however after TTC just after 1 year and onwards this journey is challenging for most of us

 

[Crosby]

Hi Lorna, I'm waiting for a letter from hospital to come for plan, had my referral already. Things aren't moving very fast for me.
I am hoping for a May IVF. What about you?

 

[Molae06]

LornaMJ, nice to meet you. It's going on 6 years for us. So sorry to hear your pain.

A few years back I lost one ovary and tube due to a grapefruit sized dermoid cycst that had been growing inside for the dr thinks 5 or 6 years, but no one had ever caught it and it never cause me problems...so no one knew it was there.

Last year in March I got my first BFP ever with a round of Clomid and then m/c a few weeks later. Since then I have had no sign of another BFP and we have been doing IUI's while taking Femara. Last month during my routine u/s they found a gold ball sized cyst on my last remaining ovary and I go back in 2 weeks to see if anything has changed, but my dr is already talking surgery so I've been all freaked out. I am so terrified of losing my last ovary and losing all chances of having a biological child.

We have decided it's time to do IVF, we are having a house built that will be ready to move in, in September and I told dh if I am not pregnant by the time we move in we will do IVF. I am currently researching clinics in my area and trying to see what kind of financing is available.

Sorry to go on, but I don't have many people to talk to, looking forward to staying in touch.

 

[LornaMJ]

LornaMJ, nice to meet you. It's going on 6 years for us. So sorry to hear your pain.

A few years back I lost one ovary and tube due to a grapefruit sized dermoid cycst that had been growing inside for the dr thinks 5 or 6 years, but no one had ever caught it and it never cause me problems...so no one knew it was there.

Last year in March I got my first BFP ever with a round of Clomid and then m/c a few weeks later. Since then I have had no sign of another BFP and we have been doing IUI's while taking Femara. Last month during my routine u/s they found a gold ball sized cyst on my last remaining ovary and I go back in 2 weeks to see if anything has changed, but my dr is already talking surgery so I've been all freaked out. I am so terrified of losing my last ovary and losing all chances of having a biological child.

We have decided it's time to do IVF, we are having a house built that will be ready to move in, in September and I told dh if I am not pregnant by the time we move in we will do IVF. I am currently researching clinics in my area and trying to see what kind of financing is available.

Sorry to go on, but I don't have many people to talk to, looking forward to staying in touch.

Hi Molae, so sorry to hear everything you have been through, life can be so unfair. You can go on all you like that is what is great about the forums so you can meet people in similar situations and have a good talk to someone who can maybe understand what you are going through. I hope its good news for you in two weeks and I hope you get to do IVF. Good share this journey with people

 

[LornaMJ]

Hi Lorna, I'm waiting for a letter from hospital to come for plan, had my referral already. Things aren't moving very fast for me.
I am hoping for a May IVF. What about you?

We have been told possible November IVF but that is because it is public funded. Be great if you get a date for May that is only next month you must be feeling excited about. All fingers crossed for you

 

[xxshellsxx]

hey there I'm not waiting for IVF as i can't afford to do that (and i'm not entitled to it on the NHS, but will fight that corner when i've exhuasted all other options lol) but i'm 35 and also a 12 year LTTTC and understand the pain that goes with that xx I'm at the FS tomorrow for my next plan of action, so hopefully i'll have something to report as a plan Hoping i don't need a plan as i'll be 7dpo tomorrow... but deep down i know i will need a plan as hope doesn't seem to be making a baby lol x

 

[Crosby]

Nah I'm only HOPING for may lol knowing my luck it could be later

Have you got any plans till November? Like clomid or iui or anything else?

 

[Crosby]

Shells why are you not entitled to NHS? You got kids already?

 

[xxshellsxx]

I haven't but DH has from a previous relationship which means i can't have it xx

 

[Crosby]

Oh yeah that's true. Stupid rule I think NHS should totally lax this. Unfair isn't the word.

 

[xxshellsxx]

good thing is as of today the PCT no longer makes those decisions!! You apply for funding to a new board of local DR's who then decide based on your situation... i'm awaiting info from my step sister who works for the boss of local board with how i go about applying and what their criteria

 

[LornaMJ]

Nah I'm only HOPING for may lol knowing my luck it could be later

Have you got any plans till November? Like clomid or iui or anything else?

Already done IUI, clomid etc so IVF is the only route left!! Hope you do get a May date, you never know

 

[LornaMJ]

Welcome Shells, sorry you have also been through so much! really hope ypou get a plan sorted soon. Shame you are not entitle dto funded IVF, would you consider egg donation to help subsidise the costs?

 

[xxshellsxx]

I have given consideration in the past to egg donation and i couldn't do it! If IVF failed for me ... i would always wonder if part of me was running around somewhere with another mummy and daddy.

I was at the FS today - again, everything is looking absolutely fine, but i've finally been scheduled for the HSG i've waited all these years for. If this comes back normal there is nothing else they can do for me Then i will begin the challenge of trying to get funding for IUI/IVF on the NHS under the new regime! x

 

[LornaMJ]

I have given consideration in the past to egg donation and i couldn't do it! If IVF failed for me ... i would always wonder if part of me was running around somewhere with another mummy and daddy.

I was at the FS today - again, everything is looking absolutely fine, but i've finally been scheduled for the HSG i've waited all these years for. If this comes back normal there is nothing else they can do for me Then i will begin the challenge of trying to get funding for IUI/IVF on the NHS under the new regime! x

I can understand about the egg donation I feel the same way it is certainly not for everyone and I would also hate it if IVF failed and then in years to come they came knocking on my door What is the new regime in the UK, I left in 2009 and having a postcode lottery meant I had to wait until I was 31 to have a funded and then I would only be entitled to 1 round. Well we left for NZ before I turned 31!! Have you researched into IVF abroad?

 

[Crosby]

I totally agree that Shells should look into IVF abroad, eg Hungary do IVF for half the price of the UK treatment. There is a thread here about it.

Girls have you tried immunology testing?

 

[xxshellsxx]

when i was with my ex i was waiting for ICSI with TESE - our only option and i had to be 30 before i could have it... i found this out at the age of just 25 after 1 year of trying and another year getting all the testing done. So in those 5 years while waiting, he turned into a control freak and after he knocked the crap out of me i fell out of love and knew one day i'd find the strength to leave him and we'd never make that list. At 29 i left him.. so maybe the 'have to wait til your 30' was a blessing in disguise for me, now i have nothing to do with him (he's married and adopted a child now).

I was told again today that because DH has 2 kids from a previous relationship IVF and IUI are not an option on the NHS - these rules are ludicrous! I believe that now the PCT are no longer in charge of the funding, it has been passed to local core groups from my understanding, and you apply to them now for funding, but i imagine the rules are still the same- but i will challenge them! I've been in contact with the infertility network UK and they have letter templates for appealing those decisions. So after my HSG i'm going to be at a loss really as where to go - other than to start the stressful process of challenging the government guidelines and keep plodding along with being hopeful that one day it might just happen! x