Hi, thanks for your messages. We met with the surgeons and he will have his op next month. I'm extremely stressed about it, after coming home from hospital and now going back and being told he may not get off the ventilator quick. We had a few issues with his np2 formula, Aaryan was not tolerating the powder so we had to switch to liquid but then the go deemed it too expensive. After lots of persuasion and a few disagreements they finally reconsidered as we explained it's only for a few months. He has been gaining steady weight so that's a big positive. I'm loving him being home its the best.