PCOS Club!

April - I'm not a doctor, but I don't think the information your doctor gave you is correct. I'd push the matter a little bit and ask about the cyst as well since they are related. Do you follow any kind of diet at all?

Jasmine - That's awesome that you've lost all the pcos signs! I hope the metformin works to give you a sticky bean!

CandD - I wish I had an answer for you, but I don't. I've heard the same thing you have, but I also know that every woman is different and respond differently to ttc and pregnancy. It could be that you fall into that category, but I think the blood test would have picked it up where the poas method didn't. Have your doctors checked to see if there is unusual cyst activity?

T_anderson - My OB told me that not getting a period if you aren't going through menopause can build up your lining to a dangerous level. The provera (I'm using prometrium which does the same thing but with more of a bio-identical) will help kick start your cycle and prevent that from happening, but it's not a guarantee that one shot will be all you need. My previous OB just game me a prescription for one month and didn't advise me that I would need to take it every 6 weeks if my period fails to come on it's own. My current OB gave me an indefinite prescription and told me to continue taking it as needed every 6 weeks. As for the clomid, I can understand your worries since it can thin your lining too much. Has your doc done any u/s's to check the lining lately? Have you done any kind of special dieting to help combat the pcos? Are you on metformin?
 
dodger-I have had one u.s. and the ob said my lining was thick nothing to serious and said that the provera would take care of it,and Iam not on Metformin. I am looking forward to seeing this specialist,i love my ob dr. it just seems like hes not very enthusiastic in trying to help me.I feel like i need more testing done to find out what actually is wrong with me and how we can fix it. I know I have to be patient but sheesh! Ive been doing the same thing for 6 mo. already and nothing is working and I practically had to beg to be referred to a specialist! I dont know maybe this all is making me lose my mind! lol thanks for the reply though!
 
Hey no I get it! I felt that way with my previous OB (well except that I felt there was no real communication or understanding between us and because of that I didn't really trust her). I was so glad when my new OB referred me to an endocrinologist because that was really when we started finding out what the real problems were.
 
Well thank you for giving me hope that I will find a dr that is for me! Its great to just to vent!
 
Well thank you for giving me hope that I will find a dr that is for me! Its great to just to vent!

It took a while for me. I can look back on my life and realize that no doctor ever REALLY listened to me until this year. How sad is that? But in this year, I now have THREE amazing doctors (OB, Endo, Sleep Center) that all took time to get to know me and how *I* work and what is likely to work for *ME*. I just feel like crying because I'm so happy to finally have doctors that I feel like I can trust and that aren't just out to make a buck off of me and not really care if I get better you know?

I'm hoping and praying that you get a fantastic specialist from your referral! Oh a tip: I got onto my string of great doctors from a referral from a friend who told me about her fantastic OB. If you know anyone who loves their OB or had a great FS, you might just ask for a name and see if you can swing changing docs or get a referral to the one the friend recommends.

Good luck!
 
CandD - I wish I had an answer for you, but I don't. I've heard the same thing you have, but I also know that every woman is different and respond differently to ttc and pregnancy. It could be that you fall into that category, but I think the blood test would have picked it up where the poas method didn't. Have your doctors checked to see if there is unusual cyst activity?

Thanks for your answer! I really appreciate your point of view!
I really don't know what is going on. I dont think I have any unusual cyst activity going on... At least I hope not (that just gives me the he-be-ge-bees!!)
The last time I went to the DOc. She checked to see if I was ovulating, and did an US twice in 10 days to see if ovulation would occur or to calculate when it may happen. She didnt find anything so she said I was prob. not going to ovulate or ovulate in a long time from then. (that was the 28th of Sept).
This lack of period has really shaken me, I have started taking metformin again so hopefully it will make my AF come back.
 
I deffo have PCOS and have been perscribed clomid!! Finally getting somewhere at last!

xx
 
I deffo have PCOS and have been perscribed clomid!! Finally getting somewhere at last!

xx

Yeah I got my prescription a couple weeks ago too! I'm just waiting out this cycle to see if I get my bfp before I start it with next cycle.

CandD - yeah the cyst thing gives me the heebeegeebees as well. I know I have some but they are fairly small and inconsequential for now. I'm hoping they stay that way. But sometimes it is a reason that the witch stays away.
 
Hi
I hope its ok to post in here, but looking for advice
nearly a month ago I was diagnosed with pcos after 2 mc in less then 6 months this year, the last in august,
I had an internal scan and the dr assured me I would get a period within 2-3 weeks as she could see it all building up nicely,(the womb lining etc? she showed me, but I didn't have a clue, sorry but I don't really want to see my insides!!)
yet here I sit nearly a month later and no af, has anyone else had anything like this and its taken slightly longer then they said?
My OH and I really would love a second, we are so grateful for the one we have, don't get me wrong but my heart is aching for another, even more so since the mcs and the fact people who were due round me are dropping or others falling pregnant :( so hard

ETA what do I do now? do I see a doctor or something to find out about getting help with TTC, what have others done?
 
Hi Ladies, sorry to but in on you like this, I'm wondering if you can help as you all have been through this?

I went for ultrasound today and they said it shows signs of PCOS, but I have to have blood work done to confirm. Does this have to be done on set days?

I have already had bloods done on CD2 and waiting for second lot on CD22 (due to weekend) just wondering if these would have the PCOS ones included even though they were before my scan? Or whether I will probably have to wait yet another new cycle?

Thanks in advance xx
 
Hi Ladies, sorry to but in on you like this, I'm wondering if you can help as you all have been through this?

I went for ultrasound today and they said it shows signs of PCOS, but I have to have blood work done to confirm. Does this have to be done on set days?

I have already had bloods done on CD2 and waiting for second lot on CD22 (due to weekend) just wondering if these would have the PCOS ones included even though they were before my scan? Or whether I will probably have to wait yet another new cycle?

Thanks in advance xx

I had my bloods done same time as my scan they didn't ask anything about cycle
 
Can I be added to this thread :)

I have PCOS..I was diagnosed in 2008. My DH and I are TTC baby #1. Is anyone else trying for #1?
 
Can I be added to this thread :)

I have PCOS..I was diagnosed in 2008. My DH and I are TTC baby #1. Is anyone else trying for #1?

this thread seem pretty quiet at mo, I have only found it a couple days ago, we are TTC #2
xxx
 
Hi
I hope its ok to post in here, but looking for advice
nearly a month ago I was diagnosed with pcos after 2 mc in less then 6 months this year, the last in august,
I had an internal scan and the dr assured me I would get a period within 2-3 weeks as she could see it all building up nicely,(the womb lining etc? she showed me, but I didn't have a clue, sorry but I don't really want to see my insides!!)
yet here I sit nearly a month later and no af, has anyone else had anything like this and its taken slightly longer then they said?
My OH and I really would love a second, we are so grateful for the one we have, don't get me wrong but my heart is aching for another, even more so since the mcs and the fact people who were due round me are dropping or others falling pregnant :( so hard

ETA what do I do now? do I see a doctor or something to find out about getting help with TTC, what have others done?

I'm not sure what to tell you, but I got lucky in that my OB referred me to an endocrinologist. I think maybe in some respects it took a bit longer to get me pregnant then it could have had I gone right to clomid or something, but my endocrinologist worked on fixing my bodies problems. I feel like my body is so much better now and in a better position for bearing and raising a child since I've lost weight, settled my hormones, lowered my blood pressure and bad cholesterol, etc.

Hi Ladies, sorry to but in on you like this, I'm wondering if you can help as you all have been through this?

I went for ultrasound today and they said it shows signs of PCOS, but I have to have blood work done to confirm. Does this have to be done on set days?

I have already had bloods done on CD2 and waiting for second lot on CD22 (due to weekend) just wondering if these would have the PCOS ones included even though they were before my scan? Or whether I will probably have to wait yet another new cycle?

Thanks in advance xx

Diagnosis of PCOS does not depend on cycle dates. At the time I was diagnosed, I'd not had a period for 8 or 9 months I think? They are going to be testing the levels of your hormones both male and female and probably some other things as well. So no, you don't have to worry about what day of your cycle you are on. :) Good luck! I'm a PCOS Club graduate as I just got my BFP last week! :)

Can I be added to this thread :)

I have PCOS..I was diagnosed in 2008. My DH and I are TTC baby #1. Is anyone else trying for #1?

Welcome to the thread! I was ttc for my 1st with PCOS up until last week. It's a bit of a scary prospect when you don't have anything to base it on isn't it?

If you ladies care to see what I've been through in getting to where I am now, here's a link to my ttc journal: https://www.babyandbump.com/ltttc-journals/792687-pcos-me-ttc-journey.html

I'm wishing all of you ladies lots of :dust::dust::dust:
 
So I also conceived with the help of metformin and my nurse practitioner from the FS told me to stay on the meds through most of my pregnancy. I took it for the first 12 weeks before a new Ob took me off. BIG MISTAKE.

Being insulin resistant already made me more at risk to develop gd. After taking me off the meds, my sugars went a little high. Then i start to read online how metformin decreases the chance of getting gd by 30%. I started taking the meds again and will continue until 35-36 weeks. I have talked to a NICU nurse who assured me there were no ill effects to the baby staying on the medication.
 
So I also conceived with the help of metformin and my nurse practitioner from the FS told me to stay on the meds through most of my pregnancy. I took it for the first 12 weeks before a new Ob took me off. BIG MISTAKE.

Being insulin resistant already made me more at risk to develop gd. After taking me off the meds, my sugars went a little high. Then i start to read online how metformin decreases the chance of getting gd by 30%. I started taking the meds again and will continue until 35-36 weeks. I have talked to a NICU nurse who assured me there were no ill effects to the baby staying on the medication.

Yep that was one of the worries that my endo had. She also quoted to me studies of ladies in Africa from the 1970's who took metformin through pregnancy because they had diabetes and had to. She pointed out that those kids are now my age and there have been no problems reported with them! I'd say that's some pretty good evidence. :) I hope everything remains good with your pregnancy!!
 
So doctor came back to me today, they referred to my bloods taken at beginning of cycle. They have confirmed pcos although bloods weren't too bad. Got appointment to discuss ovulating drugs and diabetes drugs. Thank you all for your help xxx
 
So doctor came back to me today, they referred to my bloods taken at beginning of cycle. They have confirmed pcos although bloods weren't too bad. Got appointment to discuss ovulating drugs and diabetes drugs. Thank you all for your help xxx

Glad to help! I'm sorry to hear that PCOS was confirmed, but I can tell you that I'm an example of a PCOS success story! I hope you have good luck with the medicines and getting to your bfp!
 
I'm not sure what to tell you, but I got lucky in that my OB referred me to an endocrinologist. I think maybe in some respects it took a bit longer to get me pregnant then it could have had I gone right to clomid or something, but my endocrinologist worked on fixing my bodies problems. I feel like my body is so much better now and in a better position for bearing and raising a child since I've lost weight, settled my hormones, lowered my blood pressure and bad cholesterol, etc.

Well I know were it went, I'm 7 weeks and 5 days pregnant! thank you for this reply though
 
I'm new here. I also have PCOS. Currently at 10 PDO. Having frequent heartburn and don't know what to expect. Is this normal? Can't wait to test!
 

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