Recurrent Miscarriage Thread

[confuzion]

Still thinking of you LPF .

How are the rest of you ladies doing?

Update on me in spoiler.

Spoiler

I got a BFP 3 days ago at 9 DPO. Early days. Had a freak out and crying fit last night Because my line got lighter. Then it was darker again later and this morning. I hate early pregnancy.
I was so excited to try again I never dreamed it would happen the first month when it never has before. Now I'm in official early pregnancy limbo (will be thinking the worst until I get a few good scans) and almost wish it would have taken a little longer. Just feeling so fragile. A fifth loss will break me.

 

[Hope39]

Congrats confuzions, lovely Xmas present for you

Stop piddling on sticks too now you got your bfp, I see you all drive yourself crazy looking at lines and panicking it's got light

Xx

 

[Tasha]

Congrats confuzion. I agree with Hope, stop poas. She will tell you I'm usually exactly like that but this time I poas three times I think (and once was a week after I was told I was waiting to miscarry so wanted to see what was happening). I just decided lines won't change the outcome just stress me out and that I want to enjoy every moment (not always easy but doing a better job at it), that way no regrets. We are here every step of the way

 

[sportysgirl]

Congratulations Confuzion! Just seen the progression on your journal looks fab!

 

[Hope39]

Congrats confuzion. I agree with Hope, stop poas. She will tell you I'm usually exactly like that but this time I poas three times I think (and once was a week after I was told I was waiting to miscarry so wanted to see what was happening). I just decided lines won't change the outcome just stress me out and that I want to enjoy every moment (not always easy but doing a better job at it), that way no regrets. We are here every step of the way

I never thought I would see you writing the above

 

[Tasha]

Hahahaha. I know it's the complete opposite of normal me isn't it? Where I poas two or even three times a day for as long as the pregnancy lasted. You know though I'm convinced it helped this one stay sticky.

 

[LPF]

Thanks all for the well wishes. I've had a terrible Christmas. I had my MRI / X-rays on the 23rd and I've just got to wait to find out my fate. I've convinced myself it's the end for me and it's spread everywhere as I have pain and discomfort in different places. I've been crying constantly and I just want this over.

I won't keep posting here as it's not fair on you all to be dragged down even further by me but thank you so much for the kind messages as it's really helped x

 

[petitpas]

LPF, don't leave your support network! You need to vent and voice your concerns somewhere
Keeping my fingers crossed for you that the news is better than you anticipate. I think your hubby needs to whisk you away for a fun filled couple of days somewhere before your big operation... Is that a possibility?

Of course you are crying and it is a terribly scary diagnosis to come to terms with but notice how you are probably very tense physically at the moment. Your jaw is probably clenched, so are your hands, you must be very angry, too. All this is causing havoc with your body and therefore aches and pains will arise anyway. Gosh, you must be so exhausted dealing with this! I hope they give you your results quickly

 

[LPF]

LPF, don't leave your support network! You need to vent and voice your concerns somewhere
Keeping my fingers crossed for you that the news is better than you anticipate. I think your hubby needs to whisk you away for a fun filled couple of days somewhere before your big operation... Is that a possibility?

Of course you are crying and it is a terribly scary diagnosis to come to terms with but notice how you are probably very tense physically at the moment. Your jaw is probably clenched, so are your hands, you must be very angry, too. All this is causing havoc with your body and therefore aches and pains will arise anyway. Gosh, you must be so exhausted dealing with this! I hope they give you your results quickly

Thank you, that's very kind x

Unfortunately in 10 days my husband starts a new job 3 hours a way.....our plan was to do a phased move over the next 6 months as and when work came up for me and minimal disruption for ds who starts school in the autumn and dh was going to come home at weekends.

Now, I'm going to be home alone with a 4 yr old and I'm terrified of how bad the diagnosis will be and what I'm going to do. I can barely make it through the day doing nothing let alone looking after ds. Dh is amazing and I don't like to be apart from him at moment. It's all so complicated as I want to have the treatment (whatever that will end up being) at my hospital and recuperate in my own home....but I don't know if I can and it's worrying me even more.

 

[Mrs Reineke]

LPF, first of all I am so sorry you haven't had a good Christmas. I can't even imagine all of the different emotions you are dealing with right now. My aunt was diagnosed with breast cancer not too long ago and she was positive it had spread and it was the end for her as well. Well when she got the results back, it hadn't. She had to have chemo and radiation for a while along with having both of her breast reduced to clear it out. But today, she is in remission and doing well. I'm praying they caught it early enough for you. I think they did. With the amazing advances in treatment these days, you have an amazing chance of coming out of this very good! Please keep us updated on how things go. I will be praying for you.

Confuzion, congrats!!! I got my faint BFP at 9 dpo 3 days ago too!!! I pray this is going to be a sticky one for you!! Keep me updated on how you progess.

 

[confuzion]

LPF - please don't go! I am so sorry you are having such a tough time and at this time of year no less. I hope you get good news when your results come in and we find out it hasn't spread. Sending every ounce of positivity your way.

Hope and Tasha - sound advice from both of you. The tests have been reassuring the last two days so I think I will try to ease off the testing a bit! Wanted to be sure it wasn't a chemical. I've only experienced one of those. Feeling pretty good that it's not. Now hoping it's not another MMC, my body seems to like those.

Mrs.R - congratulations! FX this is sticky for you as well, so many BFPs around BnB lately. Big baby boom in 2015. I have an appointment this Monday with my FS. Hopefully we can get some betas and have my progesterone checked.

 

[Mrs Reineke]

Now are you taking progesterone currently confuzion?

 

[confuzion]

No not yet. I have some progesterone left over from my last pregnancy at home but not taking it until I'm super positive my doc wants me on it (which I'm almost sure he does). Will find out this Monday. In the previous pregnancy when my progesterone was low it didn't drop drastically until later on (like the 7th week) so I've got a little bit of wiggle room.

 

[Mrs Reineke]

So did your doctor think your progesterone dropped because you were miscarrying and decided to put you on it just in case?

 

[Hope39]

Thanks all for the well wishes. I've had a terrible Christmas. I had my MRI / X-rays on the 23rd and I've just got to wait to find out my fate. I've convinced myself it's the end for me and it's spread everywhere as I have pain and discomfort in different places. I've been crying constantly and I just want this over.

I won't keep posting here as it's not fair on you all to be dragged down even further by me but thank you so much for the kind messages as it's really helped x

LPF there is no need to leave, we are here for all types of venting

I want to try and reassure you a little, I'm hope it doesn't worry you... I met a lovely lady a few years ago (in her 50's) who went into hospital for a bowel operation, when they opened her up it was discovered that she had cancer, quite bad. In the end she had to have her ovaries, Fallopian tubes and womb removed . She went through the chemo, then treated herself and is now in remission .

Treatment is so advanced now, they can do amazing things hun,

Xx

 

[Squig34]

LPF, so sorry it's stress upon stress but as other ladies have said, please don't leave - we are all happy to offer you whatever support we can, & will be thinking of you & wondering how you are doing. When will you get your results? Obviously I hope it's nowhere near as bad as you're imagining, but once you know what you're facing, it may be easier for you to gather your strength & fight. So sorry that you're going through this though

 

[Squig34]

PS- congratulations Mrs R

 

[confuzion]

So did your doctor think your progesterone dropped because you were miscarrying and decided to put you on it just in case?

Well I'm with a new doc now but my old doc decided NOT to put me on progesterone after my first MC even with the low progesterone. They thought it was dropping because the pregnancy was failing and not the other way around.

They checked my progesterone in the following pregnancy, and my progesterone was nice and high so they said supplements were unnecessary. Chromosomal abnormality so that one didn't end because of progesterone issues.

BUT, they did decide to put me on progesterone with my 4th loss because I'd had a chemical a couple months before and just overall with my history they thought it would help and not hurt. Still lost that pregnancy anyway. And it was the only one I actually needed a D&C for and I wonder sometimes if being on progesterone somehow contributed to that (even though I had stopped it for about a month before the D&C and nothing happened).

This doc is new and I'm not 100% on what he will want to do (will find out Monday), but from first meeting with him I did get the sense that he was leaning towards supplementing me with the next pregnancy.

 

[sandpmove]

Hi all - lots of hugs to you ladies who are going thro losses. My heart goes out to you. I am going in for a D&C on Monday, this is my 6th loss which likely another chromosomally abnormal baby. My previous ones were a chemical pregnancy in IUI, ectopic in IVF, chromosomally abnormal baby in FET, chromosomally abnormal baby in IUI, blighted ovum we didn't do testing naturally, and then this 6th one which is likely to be chromosomally abnormal baby as well.

I've had the RPL panel done - all clear. I seem to have MTHFR so am taking cerafolin high dose folic acid daily. I have a thyroid condition and take 88mg of medication daily. Apart from that, the doctors haven't found anything abnormal with us.

Given these losses my doctor is recommending a change in plan, and discouraging us from trying naturally to avoid the pain of a miscarriage from a chromosomally abnormal baby. He is asking us to consider IVF with PGD, or donor eggs.

Have you ladies heard of cases where the couple has had success after so many losses? Is there hope? I am looking for some positive energy to get through this MC.

 

[confuzion]

Hi sand - have you and your husband had karyotype testing done?