Recurrent Miscarriage Thread

[Trying4first1]

Dairymomma I'm am not surprised that you have also suffered with depression. You have been through so much. I admire you strength and that you are seeking the answers that you truely deserve.
NK cells isn't tested for routinely here but you can go private which costs a small fortune sadly. But I think it's something I want to rule out.
Yes we call it heparin here. I have already been tested for APS and all those tests came back clear. I have heard that baby asprin is not enough alone and it needs to be used with the haparin.
I do wonder if clotting issues can be misdiagnosed. I may see if I can get retested just to be in the safe side especially if they are doing other bloods anyway

 

[Tasha]

Hi girls.

I just wanted to say I am reading everything and am here for advice and support always.

For those that don't know me. I had my first loss in May 2007, she was my third baby and was stillborn at 36+6 due to premature rupture of membranes at 28 weeks and medical negligence. I had a rainbow. After that I went through seven first tri loses between 2008 and 2010, followed by another stillbirth at 24+3 due to iugr and medical negligence in 2011. Then over the next three years I had nine more first tri loses. After my first stillbirth I was diagnosed with factor v Leiden (clotting disorder), after my second stillbirth I was diagnosed with MTHFR and a very high TEG, I also went on to be diagnosed with various deficiencies and eventually elevated natural killer cells. I had various action plans through the years and obviously nothing worked, travelled around the country.

November 2014 I had an appointment with a professor who I'd seen with my second stillbirth and then a couple of years later. Told him it was last chance saloon and was there anything they can do. They decided on high dose progesterone, high dose aspirin, lots of multi vits, anti malaria tablets, steroids and the new thing of very high dose clexane. This resulted in my little boy being born well at 36+3 in june last year.

There is a point to all of this, firstly never give up hope. Second and most importantly you can have nkc at any point, previous children or not. So if general NHS tests have failed then push for the nkc, there is some where (dr shehata in Epsom) who does it on the NHS so you may find it cheaper to travel there than pay for private nkc testing. You can be referred from any where in Britain, I've known some in Ireland, Wales and Scotland.

 

[vietmamsie]

Trying4first1 - I am sorry you are going through this. There are many women on here that have been through so many issues, and still got there rainbows. But also some, like myself, that were able to fix issues relatively easily. I had 4 miscarriages before getting pregnant with my rainbow. After the second one I started having testing done, and everything came back fine. After the 3rd I did some detoxing (went raw/vegan/cleansed my body through juice fasting) then started using stones (amber and moonstone mostly). I had a final miscarriage two weeks into wearing moonstone 24/7 and immediately fell pregnant with my rainbow. On the medical side, I started aspirin daily after the 2nd, and took progesterone from BFP.

I hope you get some answers from the testing and get you BFP soon. Hugs

 

[theiska]

Hey all. I had my babies who are now 8, 9 and 10, with no issues. I am now 30 and with a different partner. He has 3 children as well, but we just suffered our second miscarriage. No idea why. What should I check for? First was 5 wk growth, lost naturally at 7 wks. Second was 7 wks growth after we saw a heartbeat, identified no further growth at 10 wks. Misoprostol last night. Think I passed almost everything. My midwife said they can't test the tissue at this point, but I don't see why not. Too late as I didn't refrigerate it after passing.

I just want answers.

 

[Tasha]

I'm sorry for your loses. Where in the world are you? In the UK (and quite a few other countries) they won't start testing until three or more loses xx

 

[pinkpassion]

In the US it's becoming more and more standard after 2 to start testing!!! I'm so sorry you're all here. I have had several recurrent losses. 3 before my rainbow and one after and a twin during this pregnancy! I'm with an excellent dr now that has vowed to do anything and everything to help me. Advocate for yourselves lafies!!

 

[theiska]

I'm in the US.

She said it was too early in pregnancy to even check the tissue.

So in the UK do they consider 2 consecutive losses to be most likely unrelated?

 

[Tasha]

Yes, just bad luck and that statistically you're no more likely to have another than someone who has never had one xx

 

[Trying4first1]

Hi girls.

I just wanted to say I am reading everything and am here for advice and support always.

For those that don't know me. I had my first loss in May 2007, she was my third baby and was stillborn at 36+6 due to premature rupture of membranes at 28 weeks and medical negligence. I had a rainbow. After that I went through seven first tri loses between 2008 and 2010, followed by another stillbirth at 24+3 due to iugr and medical negligence in 2011. Then over the next three years I had nine more first tri loses. After my first stillbirth I was diagnosed with factor v Leiden (clotting disorder), after my second stillbirth I was diagnosed with MTHFR and a very high TEG, I also went on to be diagnosed with various deficiencies and eventually elevated natural killer cells. I had various action plans through the years and obviously nothing worked, travelled around the country.

November 2014 I had an appointment with a professor who I'd seen with my second stillbirth and then a couple of years later. Told him it was last chance saloon and was there anything they can do. They decided on high dose progesterone, high dose aspirin, lots of multi vits, anti malaria tablets, steroids and the new thing of very high dose clexane. This resulted in my little boy being born well at 36+3 in june last year.

There is a point to all of this, firstly never give up hope. Second and most importantly you can have nkc at any point, previous children or not. So if general NHS tests have failed then push for the nkc, there is some where (dr shehata in Epsom) who does it on the NHS so you may find it cheaper to travel there than pay for private nkc testing. You can be referred from any where in Britain, I've known some in Ireland, Wales and Scotland.

Tasha- thank you so much for sharing your story. I want to first of all say how sorry I am for all of your loses. I can't begin to imagine the pain you have been through. I admire your strength and how you have carried on searching for the answers that you deserve. I am so happy that you now have your little rainbow. Such a blessing.
I often wonder what is the cause of our recurrent MCs as I know that there are so many avenues to be explored. I see an NHS consultant in three weeks time, very shocked as I though it would be a longer waiting list. We will go through all of the tests that they recommend minus the APS blood test as I have had that already and that came back clear.
Thank you for informing is about the NK testing. I did t know this could be done on the NHS. This is something I am looking into if all else fails and NHS testing comes back clear. Is this the new life clinic in Epsom? I was thinking of using them. I have their brochure here and have been reading it this evening. I am definatley wanting the immunology tests that they recommend. I think that anything is worth a try. My cousin has high NK cells and with the clinics help she is now 15 weeks along and all is well so far.

 

[Trying4first1]

Trying4first1 - I am sorry you are going through this. There are many women on here that have been through so many issues, and still got there rainbows. But also some, like myself, that were able to fix issues relatively easily. I had 4 miscarriages before getting pregnant with my rainbow. After the second one I started having testing done, and everything came back fine. After the 3rd I did some detoxing (went raw/vegan/cleansed my body through juice fasting) then started using stones (amber and moonstone mostly). I had a final miscarriage two weeks into wearing moonstone 24/7 and immediately fell pregnant with my rainbow. On the medical side, I started aspirin daily after the 2nd, and took progesterone from BFP.

I hope you get some answers from the testing and get you BFP soon. Hugs

Vietmamsie- thank you so much for sharing your story with me. I am so happy that you got your rainbow baby but am sorry for the losses that you had.
I am hoping that out problems are a quicker fix but time will tell. I am remaining hopeful and I am trying to stay positive.
Once I have had my D&C tomorrow I can then start to recover and re-build my strength. I think once I see the consultant I will feel that things are at least going in the right direction.
I feel that my losses have made me a stronger person and I appreciate the little things in life much more. If I am lucky to have a rainbow I will appreciate him/ her so much and I will feel like I'm the luckiest woman in the world. Im sure that you must have felt the same

 

[Trying4first1]

Hey all. I had my babies who are now 8, 9 and 10, with no issues. I am now 30 and with a different partner. He has 3 children as well, but we just suffered our second miscarriage. No idea why. What should I check for? First was 5 wk growth, lost naturally at 7 wks. Second was 7 wks growth after we saw a heartbeat, identified no further growth at 10 wks. Misoprostol last night. Think I passed almost everything. My midwife said they can't test the tissue at this point, but I don't see why not. Too late as I didn't refrigerate it after passing.

I just want answers.

theiska- I am so sorry that you now find yourself here. I remember you from the August Sunbeams thread that I made on the PAL board.
I too had a missed MC. Baby also had a heartbeat so really no idea why this one also went wrong.
Praying that we both get our rainbows soon.
I don't see why they wouldn't test the tissue? I am having my tissue tested this time. I will double check tomorrow when I go in that it is def on my notes as I feel that this time it needs doing.

 

[Trying4first1]

In the US it's becoming more and more standard after 2 to start testing!!! I'm so sorry you're all here. I have had several recurrent losses. 3 before my rainbow and one after and a twin during this pregnancy! I'm with an excellent dr now that has vowed to do anything and everything to help me. Advocate for yourselves lafies!!

Pinkpassion- so sorry for your losses. I am so pleased that all is going well for you and that your rainbow is growing well.
I think that a great Dr makes all of the difference. I really hope that mine is going to be good. Just under 3 weeks now until I meet him.

 

[theiska]

Yes, just bad luck and that statistically you're no more likely to have another than someone who has never had one xx

Wow, but that isn't what the stats show. Women who have 2 consecutive have a 25%-29% chance of the next pregnancy ending in miscarriage. Women with none have a 15% chance.

I think I might have hypothyroidism, honestly. Once I get over the bleeding etc. I am going to have my TSH testes. I have all the other symptoms too, except being overweight. Fingers crossed that a simple diet change can fix this.

 

[theiska]

Trying, thanks for the kind words. I'm sorry about your loss too. I think the odds of this being a hereditary chromosomal issue are really slim for me. 2-4% for any couple. I should have advocated for it last night, but the tissue is wrapped in plastic waiting to be buried now, not in the refrigerator. Too late.

I honestly think because of other symptoms I experience (acne, anxiety, thin hair, cold hands and feet all the time, brittle fingernails) that I have hypothyroidism.

 

[Tasha]

Yes, just bad luck and that statistically you're no more likely to have another than someone who has never had one xx

Wow, but that isn't what the stats show. Women who have 2 consecutive have a 25%-29% chance of the next pregnancy ending in miscarriage. Women with none have a 15% chance.

I think I might have hypothyroidism, honestly. Once I get over the bleeding etc. I am going to have my TSH testes. I have all the other symptoms too, except being overweight. Fingers crossed that a simple diet change can fix this.

I've definitely read statistics that show it isn't more likely so as with a lot of things with recurrent loss, there's lots of contradictions

 

[Trying4first1]

Trying, thanks for the kind words. I'm sorry about your loss too. I think the odds of this being a hereditary chromosomal issue are really slim for me. 2-4% for any couple. I should have advocated for it last night, but the tissue is wrapped in plastic waiting to be buried now, not in the refrigerator. Too late.

I honestly think because of other symptoms I experience (acne, anxiety, thin hair, cold hands and feet all the time, brittle fingernails) that I have hypothyroidism.

Thank you theiska! Yes I got told today before my D&C that it is very unlikely that the genetic tests would turn up with anything. Also it will be several weeks before we hear anything. Are you going to plant a special plant near where your burying your little one? I want to do something to remember my angels but not sure what. Was thinking of a piece of special MC jewellery with my babies would have been birth months birth stones incorporated (one would have been a November baby and two would have been an August baby).

It is possible that you could have hypothyroidism. Are you getting testing to check!? Might be worth looking in to.

Not sure what tests I'm having yet. Will find out in a few weeks

 

[theiska]

I know a few of the tests they are running on me, but yesterday I went in and had 21 vials of blood drawn.

Let's see how many I can count lol:
1) TSH
2)T4
3) T3
4) Free T4
5) Free T3
6) Factor V Leiden
7)Antiphospholipid antibody
8) anticardiolipin antibody
9) lupus anticoagulant
10) MTHFR
11) Copper
12) Zinc

We'll I'm not sure what the other 9 are for. Controls? Duplicates ? I'm in the US and my insurance cover 100% of labs so I'm fortunate. I told my midwife verbatim, I want to "test all the things!"
Haha, I also had a naturopath cut some hair for a hair analysis, to check for mineral deficiencies and toxicities. I'm hoping we find something.

 

[Tasha]

I imagine one will be a full blood count as I had that done every single time.

 

[Trying4first1]

I know a few of the tests they are running on me, but yesterday I went in and had 21 vials of blood drawn.

Let's see how many I can count lol:
1) TSH
2)T4
3) T3
4) Free T4
5) Free T3
6) Factor V Leiden
7)Antiphospholipid antibody
8) anticardiolipin antibody
9) lupus anticoagulant
10) MTHFR
11) Copper
12) Zinc

We'll I'm not sure what the other 9 are for. Controls? Duplicates ? I'm in the US and my insurance cover 100% of labs so I'm fortunate. I told my midwife verbatim, I want to "test all the things!"
Haha, I also had a naturopath cut some hair for a hair analysis, to check for mineral deficiencies and toxicities. I'm hoping we find something.

Wow! 21 vials is loads! Must be some duplicates in there somewhere!?
Hoping they find out something for you. When do you get your results back!?
Got over two weeks until my visit. So close yet so far!

 

[Michellebelle]

Wow! That is a lot of testing, but hopefully it gets you some answers.

I had the common tests done after my second miscarriage, and all of then came back fine. We also had the tissue tested on the D&C I had for my third miscarriage last Friday, and heard back yesterday that everything came back normal and there were no chromosomal issues.

So now it's back to the doctor next week to see if there are additional tests he wants to run on me. So far, I've had an hsg, thyroid tests, the anticoagulant tests, and DH and I both had a karyotype for chromosomal issues.