Recurrent Miscarriage Thread

[ClaireH]

Oh Lee, I missed you off my catch up message, sorry honey - fingers crossed for BFP! I think I might be catching you up - we could be BFPs together!! Limbo land is horrible and 2ww wait is worse. I am very excited for you for Friday though and can't wait to hear how it goes xxx

 

[mandy1971]

Claire loving your attitude., xx

 

[padbrat]

hey ladies. My appt with my specialist came through for the results on my last baby..... 23rd May at 9.40am....

 

[hopefulmama2b]

Padbrat- Glad they finally came in! Why the long wait for your appointment??

 

[padbrat]

Hi Hopeful,

It usually takes 6 weeks for the tests on babies to come back so I am told.... so actually they came in sooner.

I guess the tests are complicated and then you have to be fitted into the Cons appt schedule.

Don't know how I feel about finding out the results......

 

[cindersmcphee]

Received letter in yesterday for ivf. Was on waitlist as was ttc for many years before natural bfp. Appt for two weeks time as I have reached top of list. Problem is after my loss in Jan gained lots weight. Now I am around 6 pounds over the bmi needed. Have lost a stone in around 6 weeks but worried wont have lost 6lbs in next 2 weeks. So thinking about phoning tomorrow and putting appt off for a couple of weeks as dont want to go and be sent away as couple pounds over. Not sure wether to phone and say away and need change appt or tell truth and say need to loose few pounds. Very stressed about the whole thing.

 

[mandy1971]

Hi cinders, I would go for your appointment anyway honey, I think they'll be impressed with your 1 stone weight loss so far. They'll understand I'm sure xxxx

 

[mandy1971]

Padbrat, thats good you'll be given those answers soon about your little one, there is nothing worse in this whole process of trying to have a baby than waiting., at every hurdle. sending you Lots of hugs xxx

 

[padbrat]

Thanks Mandy.

To be honest I don't know how I feel about all of this anymore.... don't know what difference these results will make for us. Am really just tired of the whole thing now.

We will see I guess...

 

[hopefulmama2b]

Padbrat- I know how scary it is to wait for results and the not knowing if they will make any difference. Honestly, for me it really did bring me a lot of peace. I was still incredible sad and would have down times, but unlike my first loss where I have no idea what happened, this one I did. I looked it up online and found that no baby is born with the condition that mine had- it's incompatable with life. So I wasn't constantly asking myself "what would have been" and thinking about how far along I "should be." I knew that it never "would have been" that baby wasn't healthy and would never have been able to survive. It doesn't make me miss him/her any less, but the answers did provide me with some closure.

I know there's always a chance the results could come back that there was nothing wrong with the baby. If that's the case I'm sure it will be hard, but maybe it will provide some other kind of answers that the doctors need to figure out what went wrong and possibly find a solution.

 

[9babiesgone]

I know how you feel padbrat. the only baby I ever lost I got results on was my january loss at 12 weeks this year. I found out it had edwards syndrome and wouldnt have lived at all or for a very short time at birth. so that made me have more peace, now my losses at earlier times, I have no peace about, bc I dont really know why or what was wrong with them.
but at least I got some peace about one of my angels. I hope you get some peace from what they tell you. It is so hard when you lose an baby no matter how far along you were.

 

[helenb]

i am currently going through my 11th miscarriage and despite having every test imaginable, no reason for my miscarriages have been found. it hurts that there is no reason for it and at times i have blamed myself for them all going wrong. people ask why i put myself through it but when there is hope, you have to try and i am sure oneday, i will have a baby in my arms who i can love and adore for ever x

 

[ClaireH]

Quick update from me....
Test results back from baby 6 - nothing wrong (suprised not). I think I am relieved that there was nothing wrong but still no closer to any answers as to why I miscarried. He was a boy - I miss him
AND got my progesterone prescription yesterday! Pessaries are erm interesting!! But FINALLY getting somewhere!!!
BFP here we come!!!

Helen, your words ring so true - I am always blaming myself or at least my stupid body for not working properly. I understand why you keep on going and I hope you have success next time - 12th time lucky eh?! I am sorry you are going through the pain of another MC. Take care xxx

 

[LeeC]

ClaireH. Yay, at last you got your progesterone, I am sooo happy for you, now we just need you to get that referral. I am there on Friday, I have a list of questions and I will make sure I post up when I get back.
I'm quite excited but also a bit apprehensive as after this I'm not quite sure what I would do next if this fails. I guess I will worry about that when or indeed if the time comes. For now I will stay positive.
Have you heard anything else about your appt yet, I am so glad that you are finally getting somewhere, don't stop

Helenb, I am so sorry for your losses, it is so hard going through this time and time again and getting no answers, it takes over your life. Have you tried the NK cell testing? and I know what you mean, it's scarier for me to say I give up than putting myself through all of this.
I have had a couple of moments when I have just thought I can't do it anymore but you are so right, the thought of holding baby just keeps me going too. So thank you for posting such lovely words at a time when you are going through so much difficulty yourself for us all to read.

Padbrat, I am just sending you a big hug and hoping that you are feeling a bit better honey.

x

 

[helenb]

my specialist mentioned the NK cell testing when she ran a whole load of tests, so i am presuming that she did that test too. she's seeing me again in 6 to 8 weeks so i am going to ask her what tests she has done then ask about other tests x

 

[LeeC]

Hi Helen

NK cell testing is usually carried out by biospsy Helen, as bloodwork isn't overly reliable when testing for this. I'm really hoping you get some answers.

x

 

[9babiesgone]

I am not giving up yet!! my hcg is still going up. so I think the doctors might be wrong and I Might still be pregnant.

it went from 20 to 45 in a few days. I know it isnt the greatest rise. but it is a rise.

 

[Lamburai1703]

Hi LeeC. Sorry to ask a question which I sure you have answered many times before, but have you tested positive for NK cells already? The reason I ask is that I went to see Professor Quenby in September (I think) last year hoping to be tested for NK cells.

Unfortunately, the NK cells testing and treatment was a trial which has now run out of funding. I was therefore told that the test and treatment were unavailable. I was offered a place on the PROMISE trial (progesterone) but this means you are not allowed to take any other meds during the trial (including aspirin).

I opted not to take part in the trial as I already tried progesterone during my 4th pregnancy which failed. I have subsequently tested positive for lupus anticoagulant so I have now been prescribed heparin, aspirin and progesterone (which sadly did not prevent the last pregnancy being a very brief chemical one).

I have been prescribed prednisolone by a private consultant I saw post-mc3, but I am going to discuss this further with my consultant at St Marys before I make any decisions on this. I think I will try it anyway, as I'm not having much luck without.

I didn't mean to be the bearer of bad news, as hopefully things have changed since then, but I was gutted when I left my appt with Prof Q as I didn't get what I wanted and cried all the way home. I just wanted to try and manage your expectations a bit to avoid you feeling as bad as I did if they only offer you the PROMISE trial.

I'll keep my fingers crossed for you and I'll look forward to hearing about your appointment.

 

[padbrat]

I had a call from my Consultant today. The chromosome tests are back and I was having a Son. He died because he inherited my bad X chromosome. She said he would not have survived if I carried him to term.

Ladies, I had a Son and he lived. His heart beat inside me for a little while.

I don't know if that breaks my heart or mends it....

 

[Lamburai1703]

Oh Pad I don't know what to say. I'm sure your baby boy felt all your love for every second. I don't know how you are supposed to feel about that news - I cannot even begin to imagine the emotions you must be feeling. Big kisses to you.