Hi Ladies
So had my appointment with Prof Quenby today and after a 6 hour journey home (train delays) I have woken at 5.30am and thought I would update while it's quiet here, dh and my 2 little pooches are all snuggled up in bed lol...
I'll keep it to the point, Prof Quenby already had my notes from gp and hospital so knew that I had a history of m/c's and 1 ectopic.
We talked through treatment and again she had my notes but told her I had tried aspirin in 4 of the pg's and progesterone 400mg daily in the last 2. She was also aware that I had had all other testing with everything coming back as it should be, so no other problems (allegedly)
Although she is not carrying out NK cell testing at the moment and is heading up the PROMISE trials, she did say that there is a def argument for treatment with steroids for NK cells although no definitive results from limited testing due to funds being withdrawn.
She thinks that because the only pg I have had that seemed to develop was in my tube this could be a good argument that my womb is not capable of holding a pregnancy and thinks this could be due to my immune system attacking pg as a foreign body.
Therefore, she has agreed that prednisolone is probably my last option and at 38 (in 3 months) she has advised me that I take this from my next BFP, with conditions attached.
Because I have been seeing a counsellor for anxiety I need to get him to agree that he will see me on a weekly basis initially as apparently one of the side effects is that it can be detremental to your mental health and I think it's fair to say that going through this time and time again can drive you to the brink of insanity, she did however say that it had helped some women improve their mood.
I also need to get EPAS to agree to monitor me but tbh they do this anyway, but again I think they need to be agreeable.
She is writing the prescription and I need to call them Monday so she can fax a letter to my counsellor and to EPAS, then I should be good to go. I am obviously concerned about the sides and she told me that she could lower the dose from 20mg prednisolone if it didn't agree with me and see how we get on as this is something she had done with previous patients.
Ladies, I have to say, I have sobbed my heart out most of the way home.
Not to be melodramatic but we had a very lengthy chat about how I move forward with this and my state of mind and to be completely frank, she did say that it was important to have another plan of action, incase the steroids didn't work or I have another ectopic and lose my remaining tube. She did say she thought I was strong enough to try and go through this again and try the steroid as my last option, but we have agreed that if this doesnt't work, I lose my tube or it hasn't happened for me by the time I'm 40, I probably need to draw a line under this and come to terms withe fact that I need to determine a different life other than one as a mother.
I know it sounds harsh, but it's true, she said that she had seen women completely destroy themselves going through this time and time again and I know this has already taken over my life, so I suppose she is trying to prepare me for worst case scenario.
It was a hard thing to think about and I have to stay positive but I've always been so terrifed of giving up trying but now I feel she has a valid point, for me personally anyway.
So, sorry if I'm waffling here but all in I suppose the appt was a success and Prof Quenby was lovely.
She did do pg test, came back negative, but I couldn't help but buy FRER on way home and still very faint line, so I'm thinking surely it waould be near impossible to get 3 evaps on SD and 1 on FRER.
AF is due today and did have cramp yesterday but nothing so far. I think I need a Clearblue digi before I really do lose the plot.
I'm praying this isn't the start of another ectopic.
Again, sorry for rambling on ladies and no doubt numerous typo's!!!
Hugs to all xxx
