Recurrent Miscarriage Thread

[ab75]

Sorry dan-o xx

 

[Hope39]

Actually today is my 'most pregnant' day being 15+5. With my loss in Oct 12 the last time I heard the heartbeat in my Doppler was 15+4. Was so scared using it today!

That's good to hear hun. I thought you was a bit further along than that

Xx

 

[Hope39]

I'm at EPU now, just had it confirmed baby's died measuring 8 1/2 weeks, so last 24 hours . Its grown so much since last week (although I don't think they measured properly last week) and again everything looks perfect, but sadly not enough. Just thankful it's early.
Miscarriage #3 this year, or #4 if you count the chemical as well.
9 overall. Starting to think im broken

I'm sorry hun. This journey is so cruel at times.

Were you on steroids or anything?

Xx

 

[ginny83]

So sorry dano did you have any of your losses before your kids or only after? Its so hard to go through x

 

[dan-o]

Thanks ladies

Nope, no steroids hope as I've not been tested for RMC yet, by the time each referral comes through I manage to fall pregnant then it gets cancelled. Slipped through the net since 2010 when I was first referred! Willing to self medicate if required.... I've been on those steroids for asthma before, so I know I'm fine on them.

Ginny, It spans 6 years, first I had 3 then ds1, 2 more then ds2 then 4 more.

 

[Hope39]

Thanks ladies

Nope, no steroids hope as I've not been tested for RMC yet, by the time each referral comes through I manage to fall pregnant then it gets cancelled. Slipped through the net since 2010 when I was first referred! Willing to self medicate if required.... I've been on those steroids for asthma before, so I know I'm fine on them.

Ginny, It spans 6 years, first I had 3 then ds1, 2 more then ds2 then 4 more.

Maybe try hard to not get pregnant and get that referal

Mr shehatA waiting list is about 4-6weeks, your gp can refer you

Xx

 

[sunshine85]

Thinking of all you ladies

They say second tri gets more relaxing. Its a lie.

Every Thursday is a milestone for me
I will be 17 weeks this Thhrsday but I still listen on doppler everyday. I hope its my rainbow but after three early losses I can't feel 'safe'
I did get a call back from the NT scan and they said no down syndrome, trisomy 13 or 18 so I guesd that is a relief.

They have taken me off 200mg of progesterone and now its 100mg omce a day and still in combo with the baby aspirin.

 

[petitpas]

Oh Dan-o, so sorry to read your news
My issue was losing babies who measured perfectly until they suddenly died at 8.5 weeks, too. Steroids are what tipped the balance for me. If you can bear waiting it out a couple of cycles then I can recommend seeing Mr Shehata. You can't go on like this

 

[kelly1973]

im so sorry dano my heart goes out to you xxx
ginny im so pleased you passed your biggest mile stone this is your rainbow im sure xx

 

[sportysgirl]

Dan o I am so sorry. It's truly heartbreaking. X

 

[Squig34]

Dan-o so sorry to read this. TBH I would agree with Hope, it's so hard to keep going through this, I would prevent until you get some testing as it may well be a treatable problem. big hugs.

Ginny - great news that you have passed your last milestone.

Sunshine - good news too.

 

[dairymomma]

Dan-o I'm sorry to hear that. I've been there too. It'll be 7 years, 8 losses, and 3 successful pgs in October for me and still no concrete answers. All tests have shown I'm 'normal' aside from low-er (but normal) hCG and progesterone in the first months, and a tendency to miscarry between 7 and 9 weeks. I know the 'broken' feeling well. I baffle my drs because I've had 3 successful pregnancies using progesterone and baby aspirin in the first tri but I've also miscarried while taking the meds too. No real rhyme or reason for it. Hopefully you get some answers this time though. and prayers.

 

[ginny83]

Will you have the baby tested Dano? Sorry I always hate asking that, but it can put you in a direction of what might be the issue sometimes.

I definitely agree about getting the testing done, the other thing that spring to mind is that you seem to get pregnant very, very easily. I've read about women who have hyper-fertility where their bodies every opportunity will allow them to get pregnant - whereas other women maybe have bfn cycles but this is because their body is not allowing a non viable pregnancy to take hold. Don't know if this makes sense and also don't know if it would be the case if you're getting as far as 8ish weeks

 

[mowat]

So sorry Dan-o. Really hope you can get some answers.

 

[dan-o]

Thanks so much ladies

Feeling very lost and bewildered right now, how can I carry two children amongst these losses if something's wrong? Or am I just so incredibly lucky I didn't lose them? Or were the other losses just chance and something's gone wrong now?
Where do I even start with mr shehata, do I get my nhs ones done first, how long should I wait after miscarrying (erpc scheduled for Friday)

While I'm on the subject, I'm not even sure about this erpc, it will be my second in 6 months and 3rd overall (had one for the molar in 2009) am I taking a risk by having it?

Arghhh brain ache!!!

 

[floridamomma]

Dan o Im so sorry about what you are having to go through. I had 3 children and since then cant seem to go pass 8 weeks. After #3 I refused to try again until I had testing. It can be a lot to keep going through this especially if there could be a fairly simple answer. I like dairy am told I am "normal" whatever that is. I think my ana came back slightly abnormal and then came back negative recently. my hcg and progesterone is good each time and my uterus is very healthy. With absolutely no cause I keep miscarrying. I can say its worse and better knowing. Its good knowing nothing is wrong with me, but worse because I have no fixable issue. I would try not to get pregnant that way youll know your doing all you can to get your precious lo here. Not that you already aren't.

 

[petitpas]

Dan-o, there are several issues that become worse with time. With thrombophilia age definitely plays a role so you might have been fine before but not anymore. Antiphospholipid syndrome, an autoimmune disorder, fluctuates almost like flare-ups. Apparently so do nkcells. My nkcells were classed as aggressive before I had my son, afterwards they went back to normal.

You can try and get an NHS referral to Mr Shehata's recurrent miscarriage clinic, in which case you will probably be ready for testing by the time you see him/his team. Normally, you should wait six weeks from your last pregnancy before having any tests.

Florida, if all the usual tests have come back as normal, have you considered NKcells as a cause? Can you get tested for that where you are? Or just treated with steroids?

 

[petitpas]

I forgot to answer about erpcs. I have had five , three of them within three months. It's not ideal as you can develop scarring (Asherman's syndrome?). Luckily, I seem to have been fine. After all, I had my son since then.
Have you had any natural losses? I've only passed babies of 7w gestation or earlier naturally. Maybe someone can give their experience of a later natural miscarriage to help you decide?

One advantage of the erpc is that you can have the foetus tested (NHS covers this after fourth loss). I'm not sure how much information this will give you as you weren't on any treatment but who knows?

 

[ginny83]

I've had 3 dncs and one was at 16 weeks so was technically a slightly different procedure because of how they had to dialate and open my cervix bigger than usual. That seems more of the concern for my case (if my cervix has been damaged) but so far it looks fine. I asked my fs about scarring and he told me that he sometimes fixes scarring and other lining issues with a further dnc

 

[sunshine85]

I have also jad 3 dnc but all early...I could not imagine having one now at almost 17 weeks...Ginny uou are one tough cookie..

Praying we have our rainbows which I think we do...

I wonder if the feeling of being safe will ever come...I am constantly worried all the time. Even right after an appt.