Recurrent Miscarriage Thread

[Hope39]

Hi hope - not that I am aware of, nobody has said so.

Would the levels suggest a possible problem?

How are things with you hun.

Squig - thanks for the advice hun - I guess it just came as a shock to be told this yesterday - today I feel a bit stronger (still no af)



X

I don't know enough about if to advise Hun

Yeah I'm ok thanks, glad xmas and new year are over and done with

I should update on what's going on, just don't have the energy to explain these days

so in short The hospital are all are a bunch of lying toe rags trying to cover their arses

Isaac died because they didn't have the staff to deal with all the emergencies (imo). The on call obstetrician had been called to assist in theatre as they had run into difficulty, I then arrive so she was assisting in theatre as well as diagnosing me..... The other emergency obstetric team were dealing with another emergency up on gynae ward and there was only 1 midwife free to look after me that day

Bottom line is it took so long to diagnose me because her time was split helping in theatre , arses, Isaac shouldn't have died

They are just awful every step of the way, tasha can vouch for the most lovely letters they send me all the time. So much time and thought has gone into them, not!

And I'm about to jump on the bandwagon again my waiting period is over finally

Xx

 

[loeylo]

This has come as a bit of a shock as I was pg back in September 2014 - this time I have had a blood test deff not pregnant but my hormone levels seemed fine to me apart from B12 (does anyone know anything about B12????) my score was 179 should be 187 so off I go to google first thing I come across B12 and miscarriage - I have never been tested for this I don't think???

So now I have to go back in a few weeks and have another B12 blood test done just to see what is happening



X

I think there could be something in this actually, my mum lost several babies before having me and my sister then miscarried again afterwards. Because it was in the 80s she didn't have the same level of testing which is available now.

Recently, she has been diagnosed with low b12 levels - she was diagnosed with this due to completely unrelated issues and it turns out that she is missing a hormone involved in the absorption if b12 so has to have supplements.

Now I got my blood tested way before my first miscarriage and my b12 was below normal (can't remember exactly as it was about 6 years ago now) but it was put down to me being vegetarian.


I think there could be something in this - I can't remember the name of the hormone involved though!

Edit to add a few links - it was a lesser known hormone my mum is deficient in/lacking but I definitely think there may be something in the b12 thing as I have a few of the symptoms and with me being vegetarian I have a risk factor too ...

https://www.hormonesmatter.com/are-you-vitamin-b12-deficient/

https://www.livestrong.com/article/545325-does-vitamin-b12-affect-estrogen-levels/#page=1

 

[Squig34]

Hope, unfortunately the arse - covering approach is not a surprise but it sounds like you've worked out the answer. So sorry

Good luck for TTC again.

 

[DBZ34]

I'm glad you're getting back on the bandwagon, Hope, but I'm so sorry that you had to go through that and deal with them doing all that arse-covering.

 

[Hope39]

They be doing even more arse covering once that solicitor letter
Arrives with them, I have a very very good memory, they can't recall much of that day conveniently whereas I remember everything!!

The sooner I have a baby the better, then I don't have to deal with them and there lies anymore

Xx

 

[Tasha]

Hope. Yep their letters are awful, full of lies and such insensitive comments. You know it's bad when I use the c word

You know I'm so excited for you to be ttc again.

How are you all?

 

[Hope39]

Yay, I'm excited too, we have to be bump buddies for a little while (hopefully)

X

 

[dairymomma]

Hope-Sorry you are dealing with the lies and the cover-ups but good to see you are hopping on the ttc bandwagon again! I know I'm not the only lady hoping to see you back on the PARL thread again. FX your rainbow is on his or her way soon.

 

[DBZ34]

Hope - That's terrible! I bet you can't wait to be done with them. I hope the solicitor's letter does the trick.



AFM- MRI to see what was going on in my uterus came back with a couple of fibroids outside the uterus and not causing problems and the thing that the FS thought was adenomyosis turned out to be nothing to worry about, which is great! I won't have to be on the pill for 6 months. My NK cells level was lower, but still elevated over the normal range, so FS will have me do intralipids as soon as I get pregnant again and then repeat every 4-6 weeks.

I do wonder if I should do steroids too, as that seems to be what other women are doing with NK cells, but I'll start with just intralipids and see how it goes.

Does anyone know how far into pregnancy they do intralipids?


10 DPO today, though FF thinks 8 DPO and I just haven't overridden it yet. I've been keeping track of my symptoms since I'm on a new type of progesterone (and it's the tww and I can't help but symptom spot). My main new symptom is being super tired the past few days, to the point I feel the need to take a nap. I usually feel a bit tired, but not this tired. I'm thinking it's probably progesterone related, but, of course, I'm also hoping it's BFP related...I guess we'll see. All my other symptoms (acid reflux, emotional, gassy, etc) are my normal TWW symptoms. Testing on Wednesday before my followup with my FS.


How is everyone else?

 

[Hope39]

DB I think in the uk docs use the steroids first and possibly add in intralipids

Intralipids are normally administered at 4,8 &12w

Xx

 

[petitpas]

Yep, steroids first. I hate to say it but doctors make a lot more money from administering intralipids...

Saying that, I don't know how the success rates of one vs the other compare.

 

[DBZ34]

Thanks, Hope and Petitpas.

Truthfully, he didn't even mention the steroids at all. It was Squig that gave me the heads up about other women on BnB using them. He did mention IVIG and how expensive that is and said intralipids was a more affordable option...maybe he was just trying to soften me up. But, I'll definitely bring up steroids at my next appointment. My FS is a complete weirdo, but he seems to know his stuff, so we'll see what he has to say.

 

[petitpas]

Well, I believe intralipids are safer for you as IVIG is a blood product and I think the use of intralipids for use in recurrent miscarriages has pretty much taken over from IVIG.
Your doctor must be pretty much on the ball already to be offering intralipids!
Asking about steroids in addition can't harm. He might say yes.
If it helps, my dose was 25mg/daily of prednisolone.

 

[DSemcho]

Hello Ladies. So next week is my D-Day; I have an ultrasound scheduled on Jan 20th at 11 weeks 2 days, and I'm terrified that it won't go well. If it doesn't then it would be my 7th loss and I don't know if I'd be able to keep letting it happen. I'm posting it here because I'm not sure if I think it'll go good or not by gut instinct and I wanted to share with you ladies because you understand my feelings.

 

[blueblue]

Hope - that's awful, I can't believe they are treating you so badly. You are so strong to cope with all this. I hope you get your rainbow soon .

DSemcho - good luck for the ultrasound next week , the waiting game is so tough.

Petitpas - I've never understood why intralipids are so expensive, I read somewhere that the formula itself is cheap...there are days when I get annoyed at the 'license to print money' treatment costs

 

[BrokenfoREVer]

Hi ladies, hope everyone is well.

I had my appointment to investigate my miscarriages on Friday. What a joke. The consultant I saw, took one look at me and wrote me off as overweight.
She's doing a blood test, once I get a copper coil fitted, to see if I have any clotting disorders, but it seems token, her only real advice was to lose weight.
Even though I lost all 3 babies, with the same partner at the same gestation, she still wants to put my weight as the main factor.

As much as the logical side of me knows that my weight cannot be the only reason & the circumstances of my losses seem to point towards an actually hormonal problem preventing development, I'm now crippled with guilt that my losses were my fault, if I'd been more healthy, my babies would be here

 

[ginny83]

Thought I'd give an update on me. Might give some hope to some of you, but also understand it can be hard reading news like this so I've spoilered it

Spoiler

I finally welcomed my baby boy on 2nd Jan Almost 3 years to the day since we started ttc for him and 4 losses later. He is just perfect and worth every tear, although I've never forget my other little angels.

For this pregnancy I was on steroids, intralipids, progesterone, estrogen, aspirin and clexane. I was told that my placenta and cord looked really good after he was born - and he was born with the cord wrapped around his neck twice so having a healthy durable cord probably helped prevent anything bad from happening... however I also developed post partum pre-eclampsia so can't help but wonder if there was something iffy with the placenta.

Anyway, don't give up ladies - keep searching for a dr who will help and just do whatever you need to get through all the lows xx

 

[dairymomma]

Broken-Please don't blame yourself because of your weight. I'm a good 100lb over what I should be and my doctor has never ONCE fat-shamed me or blamed my weight for my losses. Sure he'd love it if I lost weight and I'd love it even more but he understands that this isn't something I can do overnight and right now, I'm doing what I can. And his explanation is this-extra weight on it's own won't cause a loss. It's when the extra weight is an indication of something else-like thyroid issues or hormone imbalances-that you start to see fertility issues. Your chances of success do go up if you are a healthier weight but I know of a woman who is at least 50lb heavier than me who has carried to term 3 times without issue and while I've had my own trouble carrying to term, I have done so 3 times as well.

 

[blueblue]

broken - it's not your fault, please don't blame yourself. your doctor should always look further than your weight, esp. if you haven't had investigative tests yet, and not use it as a reason not to thoroughly investigate. it can impact hormones by raising estrogen levels but it's definitely not the whole story, lots of ladies have hormone issues that have nothing to do with weight and lots of curvy ladies have successful pregnancies. insist they check everything out

ginny - congratulations . It's great to hear some happy news, I'm really glad it's worked out for you

 

[Hope39]

Hope - that's awful, I can't believe they are treating you so badly. You are so strong to cope with all this. I hope you get your rainbow soon .

DSemcho - good luck for the ultrasound next week , the waiting game is so tough.

Petitpas - I've never understood why intralipids are so expensive, I read somewhere that the formula itself is cheap...there are days when I get annoyed at the 'license to print money' treatment costs

It is really really cheap however UK consultants like to charge the earth. Its about £450 in the UK privately but if you can get a prescription then its about £20.00 for the fluid and £100.00 to get someone to administer it properly