Sad news...

[bamagurl]

Let us know how your appt with the specialist goes today!

 

[Jellycat]

Hope everything is ok cx

 

[dizzy65]

 

[momofone08]

I am so sorry.

 

[Wriggley]

 

[CJHanson]

So sorry to hear about baby! I hope everything ends up well for you...thoughts and prayers are with you and your family!

 

[AdriansMama]

Been thinking of you and bubba today !! Hope things went well will be keeping my eye out for your update

 

[KelseyK]

Hope you're doing okay

 

[TandJ]

So we have a final diagnosis. Our baby is a precious little girl. They are almost positive she has Turners Syndrome with a lot of swelling around her entire body. There is a very large Cystic Hygroma that goes around the back of the neck and is around where the ears are. Turners Syndrome in itself is not fatal, the prognosis is only so bad due to the swelling and the pressure it is putting on her organs and heart. We saw her tiny little hands and feet and everything else is perfect except for the swelling and the Hygroma. We are going back later today so they can do a fetal echocardiogram on her heart to see if there are any defects. We seen the Genetic Counselor and they are expecting her to pass away in utero or she may survive this. Based on all the facts we cannot make the decision to terminate. There are cases of the Hygroma going away and so we will have very frequent ultrasounds to monitor her and see if it gets any better. We are not giving up on our baby girl Thank you for the prayers and kind thoughts and we will need them in the days to come. We are strong and will stay strong for her.

 

[fatandlumpy]

Wishing you guys all the best of luck in the world x

 

[TandJ]

Also we named her Isabelle Skye

 

[Wriggley]

sending you lots of hugs, luck and positive fibes!!! xx

 

[MrsKTB]

Im not one for praying....but Im thinking of you and sending all my + thoughts and energy x

 

[wendyc87]

Prayers and best wishes for a happy outcome to all this!!! You are so strong!

 

[Scout]

thinking of you and praying for a good outcome for little Isabelle Skye.

 

[Mjane84]

Oh, sending lots of prayers for a beautiful outcome. I love the name, too!

 

[Soon5kids]

Praying for you and baby Isabelle.

 

[bamagurl]

Sending prayers your way! Love the name! It is so very beautiful, just like your baby girl!

 

[MamaFlick]

https://www.turnersyndromefoundation.org/

It seems like with early diagnosis, babies with Turners Syndrome can flourish.

I will keep you in my thoughts and send positive energy your way. I hope the best for you and little Isabelle.

 

[kcmichelle]

Here's praying the swelling goes away and it all becomes a miracle baby. I admire your strength.