SPD Sufferers! Buddy Group

mama2b - mine did get better after using the crutches. I still have some pain, but not nearly as bad as it was before I started using them. I did make the mistake of not using them for a dayy, thinking "oh it's all better" and OUCH did I hurt that evening! So I'm a bit more cautious now.
 
I too am a fellow SPD sufferer......well *fingers crossed* not yet, but I was in my last pregnancy.

As some have already mentioned it felt like I had pulled a muscle in my groin, it was very painful and hard to walk, it lasted for days and never went. That was the start!

Cut a long story short mine happened from 15wks and I knew what it was as I had researched it, even my MW told me to see the GP as it sounded like SPD. But the GP dismissed it and told me this would have happened regardless of my pregnancy, which scared the life out of me, I thought I was going to be disabled :cry:

Anyway the pain never went....I was finding it hard to walk, turn over in bed, get in and out of the shower, getting dressed using the stairs at all. Eventually at around 24-26wks I got to see my OWN GP who specialises in Anti-natal and she immediately referred me to the Physio.

I went to my physio I was asked to do certian things so she could see what I was capable of and not. I then laid on the counch where she went thru exercises with me. She gave me a sheet containing lots of info, with all the exercises on and tips on how to 'get by'.I also had a belt and crutches, but the belt was no good for me, although the crutches was a god send, without them I would not have been able to do anything!

I think because it took so long to be diagnosed it got far worse than it needed to be, so if the sypmtoms sound familiar to you, DO NOT BE FOBBED OFF!

I had to get up with my OH when he went to work at 4am as I couldn't do the stairs on my own, My OH had to get me in the bath (I had a bath seat), he had to dress me, I rarely went outdoors as it was so painful to move. My OH used to do me food to keep by me, and drinks so I only had to get up to go to the loo and nothing more, he litrally ran the house and had to do all dinners as well as his full time job. It was awful! :(

Tips:

Keep legs together when getting in and out of bath, bed, car, chair.

Pelvis floor exercises.

Try to bath, taking precautions getting in and out to help relieve pain.

If you can, put something above your bed to pull yourself up (or get one from physio referral)

If your coccyx hurts when you sit down, sit on a cushion with your coccyx over hanging so you take the pressure off.

DO NOT over do things, everything in moderation. The more you walk, the more you can irritate it.

Take small steps when walking.

No heavy lifting.

Try not to sit on hard surfaces, use a cushion.


If you can get a referral to your physio, the exercises should help. I think it was just passed the point of no return for me :(

HTH x
 
It's great reading other women's experiences, I hope to have the same experience as you mama2be!

Well, after a really bad sleepless night I went to see the midwife this morning and .... yes it's SPD :cry: She was really nice but painted the bleakest of pictures and I just burst into tears! Like us all I just wanted a plain sailing pregnancy.

Anyway I'm glad she didn't just dismiss it as pregnancy pain and she also has me booked in for phyiso tomorrow at 1 - which I think is pretty quick really?

I'm 'sorry' to say I'm a bona fide member of this group now! :hug:
 
I think I jinxed myself replying to this thread, I have a very sore pubic area which feels like it is on fire at times and a feeling of muscle pull in my left groin :hissy:

Anyway, I do not have the physio sheet I was given last time with the exercises on :hissy: so I have been doing some research. I have not found what I am looking for yet but I did find this, which may help some of you:

ONSET OF SPD

SPD can occur from the 12th week of pregnancy onwards, however it can also be a purely postnatal condition. Some women may suffer from it during and after pregnancy, with every pregnancy or sometimes just the first. The effects of the condition can linger on in some cases, but usually with lessened intensity. It is always wisest to leave a gap of two years, where possible, between pregnancies.

SPD - SYMPTOMS

Pain and tenderness in the area of the symphysis pubis joint can often be accompanied by pain in the hips, lower abdomen and groin. Sometimes the pain can also manifest itself in the inner thighs and in one or both buttocks. Walking and other activities exacerbate the pain. Standing on one leg can be virtually impossible, so activities that rely on this to some degree will increase the pain. Climbing stairs, getting dressed and getting in and out of cars or the bath all involve the use of one leg at a time. Women can also experience pain while trying to move in bed, lifting things, sitting down and getting up. They may also have pain if they try to spread their legs past a certain point. Sometimes there can be a clicking during hip movement felt or even heard. A tendency to shuffle along or waddle may develop as women try to distribute their weight evenly.

TREATMENT OF SPD

Always consult a doctor if in need of any medication to aid with the pain associated with SPD or any other ailment while pregnant. General practitioners and other health care professionals will know which painkillers or anti-inflammatory drugs are suitable for your particular stage of pregnancy. If SPD has started after the birth, or continued from pregnancy you should still see a doctor if you are breastfeeding and in need of medication. Whilst there is no way to actually tighten the affected ligaments when pregnant, the relaxin hormone ceases to be produced after the birth. This should lead to the return of a less erratic pelvic state in the majority of cases.

There are other treatment methods available as well as painkilling drugs. Such treatments include TENS (Transcutaneous Electronic Nerve Stimulation) and pelvic supports. These may be among the types of treatments suggested if you are referred to a physiotherapist.
There are also steps you can take yourself to help with getting around and avoiding painful situations. Such measures include;
• Getting into a car by sitting on the seat first, and then lifting your legs inside. Reverse this procedure for getting out.
• Getting dressed while sitting on a chair rather than standing.
• Always having the knees together firmly when turning over in bed.
• Rest as much as possible. Take the body’s weight off the pelvis when you can. Try to have some daily bed rest.
• Where possible, sit down to do daily tasks like food preparation.
• Avoid lifting.
• Avoid the breaststroke if you go swimming.
• Try to avoid twisting the upper body. Think ahead, turn and face the thing you are doing.
• Avoid straddling positions e.g. sit on a bidet as you would on a toilet.
• Be aware of your body and the way it responds to certain activities. Try to avoid the activities that result in pain. These may be anything from walking long distances to hovering or pushing supermarket trolleys. Avoid sudden jerky movements.
• For those whose pain when climbing stairs is too excruciating to bear, it may well be advisable to go up and down stairs using your bottom, and lifting yourself up or down each stair with your hands. This is fairly easy on the downward journey, but quite difficult going up. Bearing this in mind, it would be best to make sure that you only needed to make one trip up and down the stairs each day, and plan for rest periods (and possibly assistance if this can be safely achieved) on the upward trip.
• Pelvic floor exercises may help in relieving pelvic pain. These exercises (also called Kegel exercises) are designed to help strengthen the hammock-like muscles which support the pelvic organs. Better control over these muscles could help take some of the weight bearing responsibility away from the pelvic girdle and ligaments. Consult a health care professional about pelvic floor exercises with regard to your particular circumstances.

HOW DOES SPD EFFECT MY BIRTH

If you experience SPD it may be a good idea to take account of this in any birth plan you draw up. This could mention such things as;
• Your latest measured pain free gap. The distance that the knees can be parted, while lying down with the knees bent, without experiencing pain. This should be measured for you by your birthing partner close to your due date. Midwives and doctors will then be aware of this and take it into account.
• Any preferred positions for delivery. There are alternative positions to lying on your back during labour, which can offer some relief from pelvic pain. Lying on your side with the upper leg supported by someone is apparently, the best way to minimize strain on the back and pelvis. Another position good for easing pain is a kneeling position with your torso fairly upright over several pillows, beanbags or such. This will allow for gravity to assist in delivery. It is best to do whatever is the most comfortable for you. Squatting positions are best avoided, and the lithotomy position (the on your back, knees bent and raised above the hips, thighs apart position often involving stirrups), while convenient for obstetricians, is not the best position for the pregnant woman and can exacerbate pelvic pain. It is known to, among other things, put pressure on the coccyx, and is thought to be a potential cause of pelvic pain that presents itself postnatally. There are similar issues regarding the use of stirrups if any post partum stitching is required.
• Drugs and pain relief you require. In a birth plan you can specify the type of pain relief you do and do not want. In the case of epidurals and SPD sufferers, special care should be taken by midwives, birthing partners etc to support the back, and observe the restrictions of the pain free gap. While you are under the epidural’s effects you won’t be able to feel the pain.
• Assisted delivery. You could specify a ventouse delivery (uses a suction cap on the baby’s head) instead of forceps, as this can be performed laterally.
Birthing pools can help with pain management, but your particular condition needs to be assessed by the midwife team. Some women with SPD experience difficulty getting in and out of birthing pools.

Some women feel that they cannot face the idea of adding to their pelvic pain by having a vaginal birth, and wish to opt for a caesarean. This should be very carefully discussed with health care professionals, as it is a major operation with its own drawbacks and issues. The condition of SPD does no harm to the baby itself. It is purely a matter of the mother’s pelvic pain.


I will post what I am looking for if I find it! x
 
Hi all, I was diagnosed with SPD around 21 weeks. I'd been feeling sore walking from about 14 weeks, actually first noticed it in my hip as a popping feeling and sore lower back. I went to the Dr and told the back pain was due to my riding accident when I was 10, the Dr did send me to a group assessment which was totally crap, told me a load of things I already knew and gave me a tubigrip support which did nothing.

First got the kicked between the legs feeling just after Christmas at 19 weeks, thought it was due to an overactive :sex: session but it never went away! My pain got so bad that trying to climb the stairs to work I was in tears, and the area between my legs was visibly bruised.

Went back to the Dr and this time she could see how much pain I was in because the walk from the waiting room to her room made me cry! Hah, and I never cry in front of people. So then I referred to the physio properly and first off was just given crutches and signed off work because they had no time to see me. About a week later I saw the physio again and she found my hip had slipped out of place due to the SPD.

I've had to really push to see the physio, because with the NHS here you only get an appointment when things get really bad rather than ongoing treatment, which is totally wrong. So I've phoned up and insisted they see me. I'm still on crutches and can't walk far without them, but I'm able to move about my apartment without them.

The pain has got better, but it's dependent on me using the crutches and seeing the physio. She's been great and last time I saw her for the first time my hip was in the right place. Unfortunately now my sciatic nerve has been squashed which is also very painful! But I am definitely a lot better. I take things easy, make sure I have time to rest afterwards if I need to do any walking (ie food shopping) but it has meant I've spent much of the last 8 or 9 weeks inside.
 
This is a printable PDF and has lots of advice on the genral things and things to think about around birth and post care........which is something I was let down by hugely in my hospital, but I will make sure it is know and catered for this time!

https://www.acpwh.org.uk/docs/ACPWH-PGP_Pat.pdf


Exercises which can help:

Symphysis Pubis Dysfunction (SPD) Exercises



Perform All Five Exercises Three Times Daily
  1. Abdominal stabilisation: Sitting with your feet resting on the floor, gently pull in your lower abdominal muscles, as if you are hugging your baby. Hold for 5 seconds. Repeat 5 times. Continue to breathe normally throughout.
  2. Pelvic floor: Sitting tall, squeeze to close around your openings. Lift and hold for 5 seconds. Repeat 5 times. Breathe normally throughout.
  3. Gluteal muscles: Sitting or standing, squeeze the buttocks together. Hold for 5 seconds. Repeat 5 times.
  4. Latissimus Dorsi muscle: Sit on a chair in front of a table or closed door. Grasp the door handle or table with both hands and pull toward you. Hold for 5 seconds, repeat 5 times.
  5. Hip adductor muscles: Sitting down, put your fist or a rolled towel between your knees. Squeeze your knees together. Use no more than 40% of your maximal force. Hold for 5 seconds, repeat 5 times
I hope these help, I am starting them today! x
 
Thank you Tam. I have basically just been told by my midwife "oh it will go away as soon as you give birth" and no one has mentioned anything about birthing positions etc.
 
just a quick one from me, got physio on thursday!
 
Thank you Tam. I have basically just been told by my midwife "oh it will go away as soon as you give birth" and no one has mentioned anything about birthing positions etc.

Sadly I learned the hard way, but I am well aware this time. There is lots of info to consider in that PDF and I can't stress enough how important it is to get help ASAP!

" Women that perform the exercises regularly usually find that their pain resolves completely after labour as their muscles are developed enough to stabilise the pelvis without the pressure of the baby,
If neglected, the condition can become extremely painful and some women are quite immobile as the pregnancy develops". (Quoted from the website I got the exercises from).

So worse case, if you follow these exercises above hopefully that will help and you could always invest in a belt and ask to be shown how to wear it. I am no professional at all, but trying something to help is better than none until someone listens to you and you get seen. The longer it is left, the far worse it becomes!

KEEP ON AT THE DOCTOR UNTIL YOU GET A REFERRAL!

Good luck hun! :hug:x
 
i agree def keep on it took me several appointments to get a refferal
 
Good luck with your physio Mrs Holmes, if they're not forthcoming in offering you follow-up appointments make sure you phone back in a couple of days and insist.

I was wearing the support belt for a while, but generally I'm feeling well enough now to not wear it.

The SPD has caused problems with my sciatic nerve, so whilst the pain between my legs is not almost gone except at night due to my back I still use crutches.
 
Hi everyone!

Well from reading what you are all going through i think i definatley have SPD...

I went to my clinic appt at the hospital all ready to mention this pain and hopefully get some kind of advice as i had to take a couple of days off work last week due to pain.. BUT i didnt see a MW just seemed to be a young ditsy doctor who said "its to be expected" "nothing will help" "you could see physio but that wont be of much use" so i left feeling completely stupid for asking and that i should expect pain.....

well i also had a normal GP appt today and mention to him about it and he had similar attitude of pain is to be expected alot of women have it, when i said i dont know whether to rest or try exercise he said to go on as normal. I replied to this with its hard considering i work with a 4 year old in a nursery where i am constantly up and down as part of my job, this is only 2 1/2 hours a day but on Monday i was in pain after and it was horrible!! So he mentioned he would see what physio would say and left it like that.... I now feel in limbo....

x
 
Hi girls

Just an update from me....... I saw mw this morning and I am being referred to physio so should get an appointment in the next week. I'm really pleased that they have recognised it's SPD and hoping that the physio will help - so fingers crossed!!
 
Pleased to see things are moving for a few of us! Like you Faerie I went to the group physio thing yesterday and was given exercises and the tubigrip support - which I can't get away with, it feels too tight low down on my bump as if it's pressing on my bladder and where it's tripled and rolled over just rolls down even further and I feel like I'm wearing a nappy :rofl:

I am supposed to try the exercises for a week before phoning for a new patient appointment, I'm going to ask my mw today if she thinks I can phone today for it as it seems inevitable I'll need it.

On the plus side I actually got about 5 hours sleep last night. I've phoned in sick and boss was a bit unsympathetic saying I'll have to start my mat leave at 28 weeks if I'm still off then :hissy:
 
hi ladies,glad to hear some of you have had some success in getting referals-and to those who havent-keep on badgering them until they do!!!

i am still in a lot of pain,although my hubbys work are still really slack which has meant he has been able to have loads of time off and i have been able to get away without having to drive too much which has been a big help, he does all the cooking and he gets the kids to help him with the housework and laundry, i feel very useless and if i hobble out to the kitchen to try and help out with anything i get told off and told to go sit down!!

I have the hospital next week so i am going to dicuss the possibility of being induced early due to this,it is much worse than in my previous pregnancies and i was induced at 39 weeks with them.

:hug: to everyone
 
:hi:

Poor you pink_witch, big :hug:

SPD really is awful, it's really got me down as I didn't anticipate losing mobility due to being pregnant! Are you receiving any physio, using pain relief or crutches or anything? Good to hear you are being looked after though!

I saw my mw today and she is going to get the physio dept to bring my appointment forward which is good, she did however tell me that some women end up in wheelchairs because of SPD - cheers!!
 
i have some advice...
place a carrier bag on your chair so you can slide round, i taped a black bag to the seat so i could. when getting in or out the car or getting in and out of bed keep your knees together as this will make the spd alot easier to deal with over a matter of days you will notice the benefits of doing this,
when sitting... do not cross legs or sit with legs open keep legs and knees together at all times with feet flat on the floor.:hugs:

use a shower instead of a bath, if someone has one to stop you from stepping in and out the tub, they wont mind if you explain to them your situation,:hugs:

when going up or down a flight of stairs do not step up them as you usually would, step up then bring your other foot up to the same step, it takes longer but as i said if you follow this you will feel so much better,:hugs:

buy a bump belt, tubi grip this will support the bump, dont wear over the bump supports as these apply pressure in the wrong places and can worsen the problem.

good luck from me.... a real life SPD sufferer i feel your pain ladies x x x x x:cry:
 
I had it so bad last time I was on crutches from 24 weeks and in pain from 18 weeks and then I had to have a section at 36 weeks,as they were concerned it would cause permanent damage, I have been warned it could be even worse this time round. I still get pain around my period and sure enough this time my hips are clicking already, I was told to book an physio appointment at my first MW appointment.
Dreading it being really bad again, especially as I wanted t work as late as I can.
 
I'm a fellow sufferer too.:cry:

I had it that bad last time that I requested a C Section. Just the thought of attempting to push a baby out of 'that' area gave me nightmares! Luckily I had a great consultant and he took one look at me on my crutches and unable to 'hop up' on his couch and agreed for the section. I had Charlie on the Thursday morning, was in bed for 24 hours as I had a catheter in, then when that was removed on the Friday morning, I was able to walk without my crutches and almost pain free!:happydance:

I've had it for a longer period this time, although not quite so severe (but still needing crutches), but because it's been longer, it's ground me down quite a bit, and I've been very low at times. I'm one of those who try to soldier on, but finding it sooo hard now. I've only stopped bathing Charlie 3 days ago, even though I've been struggling for weeks. I feel a failure.

Luckily, I've only got 9 days left until my Section, so I'm hoping that they pain will go as quick this time.

:hug: to us all.
 
:hi:

Poor you pink_witch, big :hug:

SPD really is awful, it's really got me down as I didn't anticipate losing mobility due to being pregnant! Are you receiving any physio, using pain relief or crutches or anything? Good to hear you are being looked after though!

thanks hun!! I have been on crutches since 24 weeks,and i have been doing all the right things with regard to moving,walking,sitting etc since 12/13 weeks and it hasnt made a jot of difference to my pain!

i just hope that the consultant,or whoever it is i see on monday at the clinic is sympathetic and will help me out,because it is affecting every part of my life at the moment and really getting me down!!



place a carrier bag on your chair so you can slide round, i taped a black bag to the seat so i could. when getting in or out the car or getting in and out of bed keep your knees together as this will make the spd alot easier to deal with over a matter of days you will notice the benefits of doing this,

not necessarily!! i have been doing everything that was suggested in your post since 12/13 weeks and it hasnt made an ounce of difference to my pain!!
 

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