Special Needs Board Information Log

Discussion in 'Special Needs Support' started by Deb&Matilda, Nov 24, 2008.

  1. TwoMummies

    TwoMummies Expecting a baby girl :)

    Joined:
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    Child's name - Brandon
    Age - 7 years old

    Currently fighting - Autism, ADHD and Global Development Delay

    Other info - Brandon is severely mentally disabled, non-verbal and has major sensory issues. He is also the cutest little boy ever :)
     
  2. Leopard

    Leopard 2yrOld;3rdTriBoy

    Joined:
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    User Name: Leopard44
    Name: Courtney

    Child/ren Name/s: Keziah-May
    Chid/ren DOB/s: 15th November 2011
    My Child/ren is/are fighting: Bilateral hyrdonephrosis, grade IV Vesicoureteral Reflux and has a full duplex ureter system on the left kidney

    Any extra Info:
    On antibiotics at the moment, further tests are being done soon. Probably surgery :cry:
     
  3. katealim

    katealim Well-Known Member

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    Username: katealim
    Name: Shanna
    Children: Ali (Oct. 2002) Kate ( Apr. 2005) #3 due in October.
    My child is living with: Kaitlyn is 6 now and was diagnosed shortly after birth with cerebral palsy. Also born with a cleft palate. She is g-tube fed but doing amazing. She walks and talks and is a bundle of energy but does need a wheelchair for long distances as she tires easy.
     
  4. amylw1

    amylw1 my 3 boys in avatar. x

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    hi,

    User Name:amylw1
    Name:amy

    Child/ren Name/s:jarred, mmackenzie, blake
    Chid/ren DOB/s:jarred 2002, mackenzie 2005, blake 2009
    My Child/ren is/are fighting: mackenzie has asthma and a squint, blake has a squint

    Any extra Info:
     
  5. Sini

    Sini Well-Known Member

    Joined:
    Apr 10, 2011
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    User Name: Sini
    Name: Sini

    Child/ren Name/s: Rian
    Chid/ren DOB/s: November 2011
    My Child/ren is/are fighting: Dislocated hips and seeing genecist for possible Muscular Dystrophy

    Any extra Info: We are being referred to different specialists at the moment to see if Rian has inherited his dad's rare form of Muscular Dystrophy. He has dislocated hips and is seeing a physio.
     
  6. MilosMommy7

    Joined:
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    User Name: milosmommy7
    Name: nikki

    Child/ren Name/s: Milo
    Chid/ren DOB/s: Oct. 30, 2009
    My Child/ren is/are fighting: sensory processing disorder (possible autism)

    Any extra Info: right now the dx is just SPD. too inconsistent to rule out or dx ASD when he was 24 months (retesting in May). weak mouth muscles, low central nervous system. delayed in expressive/receptive speech, social-personal and cognitive.
     
  7. Ryders_Mommie

    Ryders_Mommie Mommie To Ryder Lee!

    Joined:
    Jan 5, 2012
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    User Name: Ryders_Mommie
    Name: Katie ( age 17 )

    Childs Name: Ryder Lee Donegan
    Chids DOB: March 31, 2011
    My Child/ren is/are fighting: Gastroschisis, Panhypopitutairism, Hypothyriodism, Reflux, Anemia, and a curiviature of bones in legs.

    Any extra Info: Even though he has tons of health problems you can't tell any difference from him and any other 11 month old ecept he is the size of a 9 month old.
     
  8. lilbumpblue

    lilbumpblue x James' Mummy x

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    May 18, 2010
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    User Name: lilbumpblue
    Name: Jayne

    Childs Name: James Cooper
    Chids DOB: september 2010
    My Child/ren is/are fighting: James has bilateral dysplastic cystic kidneys, kidney reflux, gastric reflux and is PEG fed due to slow weight gain.

    Other: James also will not eat solids which was caused by having an ng tube passed so many times (ng tube fed Apr 11 until Sept 11) xx
     
  9. Tabbycat

    Tabbycat MOM OF BABY BOY

    Joined:
    Sep 21, 2008
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    User Name:Tabbycat
    Name:Tabitha

    Child/ren Name/s:Seth
    Chid/ren DOB/s: 06/06/2009
    My Child/ren is/are fighting:At the moment still waiting for a diagnosis
    Any extra Info:My litle boy is 3 and we have been refered to speach therapy and a Occupational therapist all to happen this month half of me is happy that someone is listening to me and the other half is terrifying ,what are we dealing with ?will we know right away ? how long will a diagnostic take ?all theses question zoom around my head ,we my boy of 3 is getting frustrated at everything cuz he speaks one word :(
     
  10. Tiff

    Tiff LIKE A BOSS

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    Aug 28, 2008
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    User Name: Tiff
    Name: Tiff

    Child's Name: Claire
    Age: 4 in December
    My Child is fighting: Autism

    Any extra Info: Freshly diagnosed as of yesterday, would love to get to know some other Moms who are in the same boat as us. :flower:
     
  11. MilosMommy7

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    :hi: Tiff. my son was diagnosed in July. so its still pretty fresh for us as well :hugs:
     
  12. lewiepud08

    lewiepud08 mum to 3 gorgeuos boys xx

    Joined:
    Jan 27, 2009
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    User Name:Lewiepud08
    Name: Jen

    Child's Name: Hayden(14) lewis (3) and finley (2)

    My Child is fighting: Finley(2) - speech and development delay, waiting on diagnosis, possible ASD
     
  13. Sovereign

    Sovereign Well-Known Member

    Joined:
    May 22, 2008
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    name - vicky
    children - charlie 4 in january and lewis 6 months
    my child is fighting - ? sensory processing disorder, ? asd
    extra info - just starting our journey towards a diagnosis
     
  14. RachA

    RachA Well-Known Member

    Joined:
    Sep 16, 2011
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    User Name: RachA
    Name: Rachel (35)

    Child/ren Name/s: Esther & Daniel
    Chid/ren DOB/s: E - Oct 09 & D - Aug 07
    My Child/ren is/are fighting: Esther has recently been diagnosed with a developmental delay.

    Any extra Info: The DD is mainly affecting her speech - she currently has 4 solid words and 3 signs at 3 years. She has also suffered unexplained seizures in the past - she hasn't had one since Feb 2012 but isn't considered safe from them until we got to 1 year since her last one.
     
  15. Shezza84uk

    Shezza84uk Mum of four gems

    Joined:
    Jan 22, 2012
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    User Name: Shezza84uk
    Name: Shana (29)

    Child/ren Name/s: Freya and Joshua
    Chid/ren DOB/s:Freya is 5 Joshua is 12 weeks
    My Child/ren is/are fighting: Freya is diagnosed with Autism and partial deafness.
     
  16. blaze777

    blaze777 Mummy to Moos and Roos

    Joined:
    Sep 1, 2008
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    568
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    User Name: blaze777
    Name: Jess

    Child/ren Name/s: Moos
    Chid/ren DOB/s: 14/02/10
    My Child/ren is/are fighting: JIA - Juvenile Idiopathic Arthritis

    Any extra Info: Newly Diagnosed, waiting on consultant app to get official prognosis
     
  17. kit10grl

    kit10grl Well-Known Member

    Joined:
    Jul 3, 2011
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    User Name: kit10grl
    Name: Leanne

    Child/ren Name/s: Robyn
    Chid/ren DOB/s: 04/09/12
    My Child/ren is/are fighting: Charge Syndrome symptoms including. Bilateral Choanal atresia, Coarctation of the aorta, partial AVSD, Coloboma of the optical disc, undetermined level of hearing loss, poor muscle tone, developmental delays, inability to feed, currently feeding via ng tube on a continuos pump run feed.

    Any extra Info:

    Currently being investigated for immunology problems
     
  18. twinmommy1

    twinmommy1 Member

    Joined:
    Feb 22, 2013
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    User Name: twinmommy1
    Name: Louise (Age 33)

    Child/ren Name/s: Jake Anthony (& Twin Sister)
    Chid/ren DOB/s: 2009 - 3 Years Old Now
    My Child is living with: Autism
     
  19. Ward

    Ward Well-Known Member

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    User Name: Ward
    Name: Celeste

    Child/ren Name/s: Draven (and 4 siblings ages 20-4)
    Chid/ren DOB/s: 3/28/2008
    My Child/ren is/are fighting: Autism

    Any extra Info: I'm new here and happy to get to know everyone.
     
  20. Misstrouble19

    Misstrouble19 Mummy,Daddy,Rhys

    Joined:
    Dec 17, 2010
    Messages:
    817
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    My Name is Michelle
    My Child's name is Rhys
    My child suffering from lack of speech and global developmental delay
     

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