Special Needs Board Information Log

Child's name - Brandon
Age - 7 years old

Currently fighting - Autism, ADHD and Global Development Delay

Other info - Brandon is severely mentally disabled, non-verbal and has major sensory issues. He is also the cutest little boy ever

 

User Name: Leopard44
Name: Courtney

Child/ren Name/s: Keziah-May
Chid/ren DOB/s: 15th November 2011
My Child/ren is/are fighting: Bilateral hyrdonephrosis, grade IV Vesicoureteral Reflux and has a full duplex ureter system on the left kidney

Any extra Info:
On antibiotics at the moment, further tests are being done soon. Probably surgery

 

Username: katealim
Name: Shanna
Children: Ali (Oct. 2002) Kate ( Apr. 2005) #3 due in October.
My child is living with: Kaitlyn is 6 now and was diagnosed shortly after birth with cerebral palsy. Also born with a cleft palate. She is g-tube fed but doing amazing. She walks and talks and is a bundle of energy but does need a wheelchair for long distances as she tires easy.

 

hi,

User Name:amylw1
Name:amy

Child/ren Name/s:jarred, mmackenzie, blake
Chid/ren DOB/s:jarred 2002, mackenzie 2005, blake 2009
My Child/ren is/are fighting: mackenzie has asthma and a squint, blake has a squint

Any extra Info:

 

User Name: Sini
Name: Sini

Child/ren Name/s: Rian
Chid/ren DOB/s: November 2011
My Child/ren is/are fighting: Dislocated hips and seeing genecist for possible Muscular Dystrophy

Any extra Info: We are being referred to different specialists at the moment to see if Rian has inherited his dad's rare form of Muscular Dystrophy. He has dislocated hips and is seeing a physio.

 

User Name: milosmommy7
Name: nikki

Child/ren Name/s: Milo
Chid/ren DOB/s: Oct. 30, 2009
My Child/ren is/are fighting: sensory processing disorder (possible autism)

Any extra Info: right now the dx is just SPD. too inconsistent to rule out or dx ASD when he was 24 months (retesting in May). weak mouth muscles, low central nervous system. delayed in expressive/receptive speech, social-personal and cognitive.

 

User Name: Ryders_Mommie
Name: Katie ( age 17 )

Childs Name: Ryder Lee Donegan
Chids DOB: March 31, 2011
My Child/ren is/are fighting: Gastroschisis, Panhypopitutairism, Hypothyriodism, Reflux, Anemia, and a curiviature of bones in legs.

Any extra Info: Even though he has tons of health problems you can't tell any difference from him and any other 11 month old ecept he is the size of a 9 month old.

 

User Name: lilbumpblue
Name: Jayne

Childs Name: James Cooper
Chids DOB: september 2010
My Child/ren is/are fighting: James has bilateral dysplastic cystic kidneys, kidney reflux, gastric reflux and is PEG fed due to slow weight gain.

Other: James also will not eat solids which was caused by having an ng tube passed so many times (ng tube fed Apr 11 until Sept 11) xx

 

User Name:Tabbycat
Name:Tabitha

Child/ren Name/s:Seth
Chid/ren DOB/s: 06/06/2009
My Child/ren is/are fighting:At the moment still waiting for a diagnosis
Any extra Info:My litle boy is 3 and we have been refered to speach therapy and a Occupational therapist all to happen this month half of me is happy that someone is listening to me and the other half is terrifying ,what are we dealing with ?will we know right away ? how long will a diagnostic take ?all theses question zoom around my head ,we my boy of 3 is getting frustrated at everything cuz he speaks one word

 

User Name: Tiff
Name: Tiff

Child's Name: Claire
Age: 4 in December
My Child is fighting: Autism

Any extra Info: Freshly diagnosed as of yesterday, would love to get to know some other Moms who are in the same boat as us.

 

Tiff. my son was diagnosed in July. so its still pretty fresh for us as well

 

User Name:Lewiepud08
Name: Jen

Child's Name: Hayden(14) lewis (3) and finley (2)

My Child is fighting: Finley(2) - speech and development delay, waiting on diagnosis, possible ASD

 

name - vicky
children - charlie 4 in january and lewis 6 months
my child is fighting - ? sensory processing disorder, ? asd
extra info - just starting our journey towards a diagnosis

 

User Name: RachA
Name: Rachel (35)

Child/ren Name/s: Esther & Daniel
Chid/ren DOB/s: E - Oct 09 & D - Aug 07
My Child/ren is/are fighting: Esther has recently been diagnosed with a developmental delay.

Any extra Info: The DD is mainly affecting her speech - she currently has 4 solid words and 3 signs at 3 years. She has also suffered unexplained seizures in the past - she hasn't had one since Feb 2012 but isn't considered safe from them until we got to 1 year since her last one.

 

User Name: Shezza84uk
Name: Shana (29)

Child/ren Name/s: Freya and Joshua
Chid/ren DOB/s:Freya is 5 Joshua is 12 weeks
My Child/ren is/are fighting: Freya is diagnosed with Autism and partial deafness.

 

User Name: blaze777
Name: Jess

Child/ren Name/s: Moos
Chid/ren DOB/s: 14/02/10
My Child/ren is/are fighting: JIA - Juvenile Idiopathic Arthritis

Any extra Info: Newly Diagnosed, waiting on consultant app to get official prognosis

 

User Name: kit10grl
Name: Leanne

Child/ren Name/s: Robyn
Chid/ren DOB/s: 04/09/12
My Child/ren is/are fighting: Charge Syndrome symptoms including. Bilateral Choanal atresia, Coarctation of the aorta, partial AVSD, Coloboma of the optical disc, undetermined level of hearing loss, poor muscle tone, developmental delays, inability to feed, currently feeding via ng tube on a continuos pump run feed.

Any extra Info:

Currently being investigated for immunology problems

 

User Name: twinmommy1
Name: Louise (Age 33)

Child/ren Name/s: Jake Anthony (& Twin Sister)
Chid/ren DOB/s: 2009 - 3 Years Old Now
My Child is living with: Autism

 

User Name: Ward
Name: Celeste

Child/ren Name/s: Draven (and 4 siblings ages 20-4)
Chid/ren DOB/s: 3/28/2008
My Child/ren is/are fighting: Autism

Any extra Info: I'm new here and happy to get to know everyone.

 

My Name is Michelle
My Child's name is Rhys
My child suffering from lack of speech and global developmental delay