User Name: sethsmummy
Name: tara (28)
Child/ren Name/s: Seth, Ethan, Rohan
Chid/ren DOB/s: 4-12-09(6), 3-5-13(2), 23-12-14 (almost 1)
My Child/ren is/are fighting:
Seth - Failure to thrive, childhood diorrhea, Hypermobility, Autism (encompasing a lot of the traits with sensory issues, voilent outbursts etc), speech delay, development delay, fine motor skill delay. He is still classed as failure to thrive due to very limited diet and slow weight gain.
extra information - seth is very small for his age at 34lb at 6 years old, he was born at 40*6 at 5lb 14oz where his head was damaged with foreceps. he has an extrememly limited diet and suffers greatly with sensory issues. he is such a bubble little boy who was non verbal until he was 4 years old but is now progressing greatly
Ethan - Ethan is being watched closely as we think he may be on the autistic spectrum also
Rohan - asthmatic tendencies, Full duplex kidney and collection system (Right), grade 5 hydronephrosis and hydroureter of said kidney caused by a large ureterocele which almost totally filled the bladder, this was punctured under general aneasthetic in june and another scan showed we are down to moderate hyrdronephrosis. He has an MCUG in January/feb to test the function and depending on the results he may need surgery to remove the duplex if it is dead and non functioning. He may have hypermobility, feet at angles when walking (hoping this corrects itself). We are also watching Rohan closely for any other problems due to oxygen deprivation.
Any extra Info: Rohan was born at 36+5 weeks weighing 6lb 8oz. he needed nicu care for severe jaundice and group b strep. he was born grunting and blotchy. spent three days in an then released home. At 11 days old id noticed he was very snuffly and nothing was helping so asked a health visitor if he seemed ok and if the cough was anything to worry about and was told no. That night he had pauses in his breathing and the morning of the 4th jan he was extremely cold. later that morning he choked on vomit and stopped breathing, it took ten minutes between this first happening and an ambulance getting here (time to try get him breathing ourselves before trying to find a phone and call an ambulance). they got him breathing with oxygen but was hypothermic. Taken to resus where he had continuous apnoea episodes and sats would plummet so he was ventilated and sent to Yorkhill paediatric intensive care unit. He stayed ventilated for 5 days while they worked out he had RSV and bronchiolitis. he came off the vent onto cpap which lasted just over a week, during this time he developed pneumonia and his upper right lung collapsed, along with a bacterial infection. he was again a very sick baby and i wasnt allowed to touch him at all, the ventilation equipment was set up outside his room just incase it was needed. eventually off cpap onto high flow and then nasal cannula. we spent three and a half weeks in hospital in total. he featured in the UK cobhair chloinne programme on bbc alba.
a busy household i have
my 10 year olds calls me Mama, I love it, no idea where it came from x
