The LTTTC thread for everyone.

[H0pefulagain]

Jennifer, that sounds so much like one of our daughters. She has Juvenile Rheumatoid Arthritis.

The very first sign was the tiredness and achy and then the hair falling out. They were convinced it was anemia. Then they said it was thyroid. She never lost a lot of weight like they felt she would if it was JRA. It was actually our son's endo who realized what it was when I was expressing my frustration to him. It is an autoimmune disorder and if a child has one, they often have another so he was very familiar with JRA.

I do hope they figure out what is wrong with your daughter and help her remedy it or at least help her feel better soon! It's frustrating for them and frustrating as a parent because you want so badly to just fix it yesterday!

 

[peacebaby]

oh gosh the poor girl... Sounds ditto my symptoms. Always exhausted and its awful because I can't get things done! I was also told I was anemic and still take iron supps when I stomach it, it props my energy for a while and then I crash badly. I still have the hair loss too, a definite sign of autoimmune response. The aches pains are crap too, I had carpal tunnel syndrome diagnosed, they said possibly rheumatoid, chronic fatigue syndrome etc. The worse is when everyone thinks there's nothing really wrong and you're just depressed or lazy.

It was only because the fertility immune tests I had done in July showed an off-the wall excessively high level of something called tumor necrosis factor (TNF-alpha) that is the culprit behind all autoimmune issues that we figured my body is in a chronic inflammatory state. The fertility dr said by getting this TNF-a level down I should see all my symptoms improve. It was such a relief to finally have a blood test confirm it all and he told my DH he can't imagine how exhausted I must feel.

There are anti-inflammatory foods and supplements that help a lot. One test to make sure they do is the anti-nuclear antibodies blood test. This will broadly detect any autoimmune issue. I really feel for her, I went through this throughout university and it really slowed me down. I hope she finds answers that will enhance her quality of life

 

[peacebaby]

Hopeful your DD too! I wonder if this is not due in part to environmental factors, it just seems to be affecting so many young people.

 

[H0pefulagain]

Peace, if I understand correctly, autoimmune issues are hereditary but are then triggered by some illness or something environmental. A family can have autoimmune tendencies in the genes but one person may have one type of autoimmune diagnosis and the others each have their own.

Our daughter is adopted so we're not sure of the specifics. When she came to us, she was 16 and a hormonal mess. Everyone had always thought she was lazy and just didn't care. She felt like perpetual crud! Once we got some answers and a good treatment routine going, it made all the difference in her quality of life. She went from sullen and stand-offish to Ms. social butterfly who was always jumping in to help. We used to joke that we were going to cut off her anti-inflamatory meds so she'd go back to being quiet. It took about 18 months to push the doctors into doing something and listening but it was our son's endo who put 2 and 2 together. Once he started pushing, the other doctors moved a lot quicker. It was truly amazing to see the difference in her after only a few weeks.

 

[LLbean]

All good and you?

 

[crystal443]

Peace, if I understand correctly, autoimmune issues are hereditary but are then triggered by some illness or something environmental. A family can have autoimmune tendencies in the genes but one person may have one type of autoimmune diagnosis and the others each have their own.

Our daughter is adopted so we're not sure of the specifics. When she came to us, she was 16 and a hormonal mess. Everyone had always thought she was lazy and just didn't care. She felt like perpetual crud! Once we got some answers and a good treatment routine going, it made all the difference in her quality of life. She went from sullen and stand-offish to Ms. social butterfly who was always jumping in to help. We used to joke that we were going to cut off her anti-inflamatory meds so she'd go back to being quiet. It took about 18 months to push the doctors into doing something and listening but it was our son's endo who put 2 and 2 together. Once he started pushing, the other doctors moved a lot quicker. It was truly amazing to see the difference in her after only a few weeks.

My family has autoimmune problems, my dad had Chrones Disease, my grandmother had some sort of immune problem and my ds and I both have issues buuut we were raised about a half a mile from a pulp and paper mill that used to let chemicals into the air, so I think its also partly enviromental The town I was born in also has one of the highest cancer rates in the country

 

[Jennifer01]

Oh girls thank you so much for sharing!! The more I hear the more I think it must be autoimmune related. She missed at least a month of school this past year. When I think about, she got swine flu a couple years ago and I'm not sure she was ever 100% after that. Then we also moved into a brand new house, which of course releases all kinds of fumes and what not....I don't know, I think we need dr house!

There are a million things I love about our health care system, one thing I don't is it sometimes takes a while to see a specialist.

 

[Milty]

Milty- would it even show up?

If your 7DPO maybe ...Indi got hers at 7 or 8 DPO...

Think of it as testing to determine if your ready for more of your meds. I just think in your case the sooner the better and you've got a great chart

 

[Milty]

Also I'm thinking you maybe on to something and maybe I didnt O yet...oh well I got the BD either way and it was fun too...

 

[Milty]

Jen when does she get to see the specialist? Also can she do like TTCers and take a baby aspirin to help a bit?

 

[crystal443]

Milty- If I can remember in the morning I might start testing then If you didn't O you got lots of BD coming up!!

 

[Milty]

well I have loads of it coming either way

Seriously who can resist a man that cooks them dinner?

 

[crystal443]

You are sooo lucky Milty My DH is great don't get me wrong but he's lazy when it comes to cooking and cleaning and I admit its because I let him get away with it Once in awhile I'll get angry and he'll hop to it but yeah its what we've settled into

Now bd he is always up for..O time whatever time

 

[Milty]

Well he is a man...

It's early I know but...

good morning Bmom

 

[Bravemom]

Well he is a man...

It's early I know but...

good morning Bmom

Aw Milty ,it's lovely having a good morning message waiting for me every morning Ugg cd2 for me ,really heavy and Tum and legs pretty sore but such is life Am continuing with my healthy eating exercise plan and trying out new things in life ,am a happy mummy/wife today and I gotta feel blessed for wot I have ,keep looking forward ,lots planned for the weekend ,keep me busy

 

[Jax41]

Morning! I'm up early for the washing machine man

 

[Milty]

I need to do better with eating healthy and loosing what I've gained.

 

[Jax41]

Milty, surely with all that horizontal jogging you'll shift a good few pounds

 

[Milty]

Have you O'd yet? You know there are no temps on your chart

I'm just thinking maybe this cycle will be good for you since last was so short

 

[Jax41]

Dunno ............. I've given up temping, found it so much hassle

Well I thought I may have O'd last weekend but I think it's now as last night I had O pain on my right hand side but for the last week I've had EWCM, but only one BD to my name. I know, I'm a lost cause......