The steroid junkies' perfectly unscientific medical trial

[Lamburai1703]

Did you test today Lee?

 

[LeeC]

Lambs I'm holding off til Tomorrow which will put me at 10dpo.
Even though we weren't TTC, I'm still excited but not getting my hopes up x

 

[petitpas]

Silly me used my only 10miu test in the middle of the night. I don't feel pregnant, but I'm not 100% sure I'm 9dpo. I could be 8dpo and should really give it to 9 or 10dpo before I rule a pregnancy out completely. Grumble. Do I just not take my prednisolone in the morning based on my gut feeling and this morning (4.30am)'s negative? If only I had another 10miu to test with in the morning but I don't. I just popped into boots at the airport and they only had clearblue (50miu) and their own brand (?miu). Manic, me?

Lee, I take it that you're going to pop your pill in the morning?

 

[Mon_n_john]

I understand your concern Petit but I would continue to take your medication as directed. I, for example, take progesterone from 3 DPO onwards. I do not discontinue it until I get a BFN at 14 DPO, even if my gut tells me other wise. I just don't want to have any what if thoughts you know? Speaking of which, I gotta go take that progesterone now lol!

 

[LeeC]

BFN this morning ladies so going to drop the prenisolone to 10mg today and test again Weds.
Still
Keeping my fx'd for you Pip.
x

 

[petitpas]

Morning all! Sorry about the BFN, Lee

Mon, I promise, I'm not trying to cheat! My directions are to test at 9 or 10dpo with an early test such as FRER. The aim is to stop the prednisolone as soon as possible if I'm not pregnant.

I was just being silly by not ordering new tests thinking I should use up what I have first. Well, I'm going to pick up an FRER later today so I know what's what for sure in the morning. I'm taking the pill today but will be able to stop tomorrow. Next month we'll be playing the same game but I hope Lee and I get to work on that moon face for a few months

 

[Mon_n_john]

Good luck Petit, please let us know how it goes!!!

 

[LeeC]

Yep, me too Pip, test asap and get the hell off the steroids, moon face and mania I can live without lol...
Unless of course there is a BFP then it will all be worth it. I wouldn't even mind if I grew a tash lol xxx

 

[beachlover1]

well ladies, its day 6 of 40mg....and im feeling FINE!!! bit teary at times...but that might be because my sis came back off hols looking all tanned and blooming at 7 months preg!!!

anyway, Prof Quenby is going to do my womb biopsy late this month after i ovulate so lets see what happens....she said she will get a rough idea if theres killer cells present because if they are normal/high ish whilst on steroids then without they will be high (or something)

fingers crossed for the BFP (i never get one til im 13 DPO on a FRER)

xxxx

 

[petitpas]

Grumble, I only managed to get Sainsbury's own brand tests this evening. I took a test and it is not at all clear What I didn't realise when I bought it is that it is a blue dye test. I will take the second test in the morning and if it is the same or a bit clearer then I will stop the pills.

Lee, I'd be happy to be tash-tastic alongside you

 

[Mon_n_john]

How exciting Petit, I really hope it's a BFP for you!

As for me, I just ordered a box of FRER off Amazon. It'll be here in two days so that way I'm not tempted to test before then lol. Mind you, I'll only be 6 DPO at that point but since it's a box of 3 and I'm getting a blood test at 10 DPO that'll last me just long enough.

 

[LeeC]

Mon. Sorry if you've already answered this are you taking the steroids along with intralipids?
Good luck in getting your BFP x

 

[petitpas]

All negative here. Looking forward to the steroid withdrawal symptoms now

 

[DMH1988]

I've been on combination IVIG/steroid for about a year and a half. I was on them because of my autoimmune condition. The steroids along with progesterone only BC pills winded up me getting pregnant which wasn't planned due to my current state. We decided against taking it during my pregnancy and I developed ITP during my pregnancy and ultimately resulted in a loss at 27 weeks. She was small for gestational age and had no fluid left. I had no idea anything was wrong. It's been almost two months and so far my TPO antibodies are in the low 100's. That's dropped from 200's a week after delivery. The pregnancy seems to actually have "fixed" my condition.
Sept 7th I have another recheck so if they have dropped even more then we know some good has come of this terrible tragedy.

For those new to IVIG, it’s a bit of a pain because of the fact it’s like caro syrup and takes forever to infuse. I have a port-a-cath implant and am so glad. Also, I would recommend IV steroids over tablets. I would have 1 gram along with the IVIG. The only downside to IVIG is the occasional headache or phlebitis. However, it has almost no side effects compared to steroids which have some nasty side effects.

 

[petitpas]

DMH, thanks for dropping by! I am so sorry to hear about your loss, hon
I don't know what ITP is or what TPO antibodies are, but I have heard that autoimmune diseases can calm down during pregnancy. Is your doctor expecting your levels to stay down or go back to their normal (bad) levels once your body has 'recovered' from the pregnancy?
I'll be crossing my fingers for you next week that everything continues to go well for you xxx

 

[Mon_n_john]

Mon. Sorry if you've already answered this are you taking the steroids along with intralipids?
Good luck in getting your BFP x

No worries Lee! No, no steroids along with the intralipids. My specialist said I didn't need them.

The only things I do are:
1. prenatals and baby asprin 1 time a day
2. progesterone suppository from 3 DPO - 14 DPO (unless pregnant, then continue)
3. intralipid IV every 28 days

 

[Mon_n_john]

Petit, sorry about the BFN. At least you can stop taking the steroids now.

DMH, so sorry about your loss.

 

[beachlover1]

id agree with the auto immune thing going quiet in pregnancy...my eyes were perfect when i carried my son!!

sorry for the BFNS!!!!!....heres to next month xxxxx

 

[DMH1988]

Petitpas, thank you. ITP is idiopathic thrombocytopenic purpura and TPO antibodies are thyroid peroxidase antibodies. Since my levels are still dropping even as the pregnancy hormones leave my body, we are hopeful they will stay that way. A pregnancy has the potential to reset my system or make it flare again. Maybe with my levels at normal he will be willing to try again. We shall see.

 

[petitpas]

DMH, now that you spelled it out, I actually met a girl (in real life) a few months ago who suffered from thrombotic thrombocytopenic purpura. Scary stuff!

Here's to hoping that you get that reset xxx