Hi everyone,
My daughter was diagnosed with Trisomy 12p / Monosomy 21 this year in April. which we later found out was due to a translocation of my own genes. She was 4 weeks old. We have spent a third of her young life in hospital with numerous health issues.
Im here to ask if there is anybody out there in similar curcumstances that could pass on any information. The specialists haven't come across any cases locally as we've been told the odds are 1 in 50,000 births and I'm having trouble finding anything in Australia where we live.
I'm grateful for any information
Thank you!
My daughter was diagnosed with Trisomy 12p / Monosomy 21 this year in April. which we later found out was due to a translocation of my own genes. She was 4 weeks old. We have spent a third of her young life in hospital with numerous health issues.
Im here to ask if there is anybody out there in similar curcumstances that could pass on any information. The specialists haven't come across any cases locally as we've been told the odds are 1 in 50,000 births and I'm having trouble finding anything in Australia where we live.
I'm grateful for any information
Thank you!
in sorry I can't help with information Hun but I wanted to pass on hugs. I hope you can find some help and support ❤️❤️
