Williams syndrome

[Dales Girl]

hi i was just wondering if their is any mums with a child with WS? I have a 9 year old daughter with it and i would like to chat with other ppl with similar experiances.

Just found out yesterday that my DD has a leak in her heart so we're just waiting for a MRI scan to see what and why has this has happend. I'm so worried about her going under general anaesthetic for this procedure
I'm trying to put on a brave face but when i'm alone and i think of it i get upset.

Its not fair, she doesn't deserve this

 

[Eefke]

I am from Holland and have a son with WS. He is now 6monds old and was diagnosted by birth.
I am also looking for other mom's with children with this syndrome. My Englisch is not very good, but if you like I want to have contact with you.