


Hello, I am so sorry to read this. You are very much entitled to a second and third opinion. You will have to decide what is best for you so hard and I can not even imagine how this must feel. If you want more opinions, do it, if you want to speak to parents of children who have been born with Spina Bifida, I imagine there are some places you can go.
A friend recently had to let her baby girl go under similar circumstances. They induced Labour. I admire her, she was so brave and made a decision no parent should ever have to, but it was unselfish and completley for her little girl.
If you little baby girl passes away, they induce labou, and you can have a funeral.
We got a birth certificate for Maeve, she was born alive, and it is law any baby born alive must have one. we were also allowed to register her death.
You can chose to have whatever you want. We chose a wicker casket like a little moses basket, and a small imediate family service with donations to Sands. We had her cremated.
We have not found anywhere beautiful enough to scatter her ashes.
I can not imagine how hard this is, stay true to your heart, lots of love and best wishes will be thinking of you xxxxxxxxxxxxxxxxx


