bananabump
Mummy to Leo!
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- Feb 15, 2011
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My little man is 6 weeks old and was born with the fingers on his right hand not developed properly. This wasn't picked up on any of our scans so was a bit of a shock when we first saw it! We were told by the midwife and then by the doctor in the hospital that amniotic bands from inside the uterus had wrapped around the top of his fingers and cut off his circulation meaning they didnt grow normally. So we had an appointment yesterday with a plastic surgeon at the childrens hospital to find out what his options were... and she completely stunned us by telling us that it was not amniotic bands that had done this, it was genetic! She also pointed out his wrist and hand itself are smaller than his left anddd his arm is also shorter! Now at the moment it isnt really noticable at all (hence why we hadnt picked up on it) but she said that his hand might stay quite small and be a lot more noticeable so to be prepared.. and that theres a possiblity his arm might not grow very long either. She then also said they arent planning on doing any surgery on his fingers apart from removing the ungrown small balls from the tips of fingers.. leaving him with a normal thumb, 3 stumps and a small little finger. I'm still in total shock and me/OH havent told anyone yet because not even everyone knew about his fingers (I always put mittens on him) let alone now this condition he has! I mean, don't get me wrong I love my beautiful little boy to BITS and I know he could be a LOT worse off but I'm so worried about bullying for him and about it hindering his development and things he wants to do in later life! I can't stop crying, I just don't know what to think. Does anyone else have a child/friend/family member with a similiar sort of problem that can offer me any support? Thanks for reading this ramble! x x x