Anyone else starting IVF October/November 2015?

[Jean40]

Beta this morning is 13, so I am to stop the meds and when I start bleeding, get another beta until it's zero and then go from there. I told the nurse I am going to think about what to do next. I DO want to try again, but I also want to get these other immune tests done and need to get some money. Shame they make you wait until you have 3 losses to do further testing around here normally, but my RE will let me do whatever testing I want if I can get it set up and paid for. The one place I looked into wanted the money up front and didn't work with insurance and I thin insurance will pay for most of it.

 

[rebecca822]

Beta this morning is 13, so I am to stop the meds and when I start bleeding, get another beta until it's zero and then go from there. I told the nurse I am going to think about what to do next. I DO want to try again, but I also want to get these other immune tests done and need to get some money. Shame they make you wait until you have 3 losses to do further testing around here normally, but my RE will let me do whatever testing I want if I can get it set up and paid for. The one place I looked into wanted the money up front and didn't work with insurance and I thin insurance will pay for most of it.

So sorry that you have to go through this.
I would definitely opt for the testing. Why go through the pain all over again. Best to find out what the underlying cause is.
Hugs, feel good!

 

[Psalm23v6]

Jean - definitely go for the testing. After we had two IVF failures we asked for a full suite of testing. Be prepared though in case they basically tell you that there is nothing wrong (which is what happened to us - slightly elevated natural killer cells, but nothing major). I have had intralipids this time (and in July) and I have to believe that they are doing something. Glad you are thinking of going again, but as you said, it makes sense to make sure you are in the best position you can be for the next transfer. Sending you hugs.

Tiff - I know what you are saying, our main issue is my DH's sperm. This clinic tested my AMH and it came out low, but my antral follicle count is usually higher than they would expect for a person with low AMH. We would never have any fertilize if it wasn't for ICSI. We also ended up having a 3 day transfer last time and I think it had a lot to do with DH's sperm - we just had such a terrible fertilization report (only 2 fertilized normally and 3 fertilized abnormally, so we never had more than 2 that cycle). I have had my DH on supplements for years and swear by Coq10, but our acupuncturist also put him on specific male fertile supplements and I think that helped enormously. He also went to acupuncture twice a week with me for nearly 3 months before we had the ER this time.

Rebecca - it is quite possible its twins! We did put two back I have read lots about beta numbers not being a good indicator of multiples, so trying to take the actual number with a grain of salt and concentrate on getting to my scan on 29th Nov.

Kat - hope that the upping of the dose will help you out and it really isn't far to Sunday! Certainly at my clinic they like to get you to 18mm before they want to trigger, so hopefully you have some good ones around that level for triggering on Friday night.

TTC - how you holding up? Tested yet? Got everything crossed for you.

 

[tiffttc]

Jean- Iam so sorry hun but I would definitely get the blood work done you might find out something really simple is causing a problem

Rebecca- Ya it seems to be really common in men lately but congrats on being pregnant how far along are you?

Psalms- thanks for the positive feedback about coq10 I really hope that it works for him we also did icsi with all our ivf cycles but last time was a really low fertilisation so we're trying everything to improve it

Afm- my clinic rang me this afternoon and said my hormones shave come back on the low side for 6 days of stims and she expected to see more going on with my ovaries today so she said up my dose from 150ui puregon to 200ui and Iam getting scanned again Friday morning so I really hope thing start moving along and my hormones come up to were there supposed to be I feel really stressed now Because I've always been a good responder to the drugs but this is my first time in the long protocol so my doc said its just my body reacting differently I hope that's the case ��

 

[ttcbaby117]

Jean - so sorry hun. It is horrible, I went through this in September. I do agree you should have the immune testing done and speak to your dr about changing protocol which might help.

Pslam - nope no testing yet. DH made me promise, he doesn't want us to see those 2 lines again and then have a low beta like last time. I think the chemical really crushed him. he was so excited to see the positive. So beta is on Friday and it is going to be the LONGEST week! I just hope I get a strong number like yours!3

Tiff - This happened to me on my first IVF. the downregulation over suppressed me and I didn't respond like they wanted me to. So they didn't down regulate on my second IVF and I had a much better response.

AFM - my s/e are making me think I am pregnant but then I have to stop myself and say, maybe it is the estrace or the PIO. Can anyone else tell me about your symptoms?

 

[KatO79]

Kat-It only takes one so don't worry and you still have a few more days of stims
Ya my doc didn't tell me the sizes I just was lookin at her writing it down being nosey lol and Ya I think your right it has to be at least 15mm for er my doc said that I will prob be having another scan Saturday and if All going well er should be Monday or Tuesday so we are really close I love having someone to rant my symptoms to lol fixed for you and don't worry all you need is one embie I have living proof of that I really hope all goes to plan for you

Thanks tiff So funny you were being nosey My RE did mention some of the sizes but I was a bit upset about the number of follies so didn't really hear the sizes Oh well, I'm sure she'll mention the sizes at my appointment Thursday and hopefully there will be a couple more but not feeling too hopeful. Just hoping these 3-4 are in really great shape and easily fertilise and are tough because otherwise I may run out of embies before ET

Beta this morning is 13, so I am to stop the meds and when I start bleeding, get another beta until it's zero and then go from there. I told the nurse I am going to think about what to do next. I DO want to try again, but I also want to get these other immune tests done and need to get some money. Shame they make you wait until you have 3 losses to do further testing around here normally, but my RE will let me do whatever testing I want if I can get it set up and paid for. The one place I looked into wanted the money up front and didn't work with insurance and I thin insurance will pay for most of it.

So sorry Jean Hope you soon get your tests done and can soon do another FET

 

[tiffttc]

Jean - so sorry hun. It is horrible, I went through this in September. I do agree you should have the immune testing done and speak to your dr about changing protocol which might help.

Pslam - nope no testing yet. DH made me promise, he doesn't want us to see those 2 lines again and then have a low beta like last time. I think the chemical really crushed him. he was so excited to see the positive. So beta is on Friday and it is going to be the LONGEST week! I just hope I get a strong number like yours!3

Tiff - This happened to me on my first IVF. the downregulation over suppressed me and I didn't respond like they wanted me to. So they didn't down regulate on my second IVF and I had a much better response.

AFM - my s/e are making me think I am pregnant but then I have to stop myself and say, maybe it is the estrace or the PIO. Can anyone else tell me about your symptoms?

Ya maybe that's what's happening because the last two cycles I was on the short protocol and I responded good but Iam growing follices on my right side so hopefully they grow more before Friday iam just going to pray, hope, and don't worry Easyer said then done

 

[rebecca822]

Tiffttc- I had that too and they increased my Follistim dose.
I am 7 weeks and 4 days along!

Psalm- that's is a long time until your scan. Good luck with the wait!

Afm- I'm going Thursday to my regally OB for his opinion on the bleed around my gestational sac. Then I go back to the RE on Monday for (hopefully) my last appointment and scan with them.

 

[ttcbaby117]

Rebecca - Praying all is okay with your lil one!

 

[Unlucky41]

Jean, so sorry about the news. Hopefully you get done answers asap

Kat, we only ever got two matured eggs for each of our ivf cycles and we were lucky in our Last cycle both fertilised and one is my daughter. Good luck! You just need one good quality egg.

Tiff good luck with your Friday scan hopefully see more follicles.

TTC you are so good holding out and not testing. All the best when is your blood test?

Mrs w how you going?

AFM had my hysteroscopy yesterday and they found nothing. Three more days of the pill and hopefully my AF comes again. Trying to get it to start earlier just in time for pre xmas transfer.

 

[Jean40]

You know, my RE will ONLY do ICSI on all eggs now. They have a program where you pay for the cost of 2 IVF cycles & get a third free if you don't have a pregnancy (depending on if you meet their criteria, which I do not), so they discovered that it was better to just do ICSI on everyone. I have a feeling most RE's will start at least doing half ICSI on all IVF cycles as a routine thing soon enough.

When I start bleeding, I'll call the IVF nurse & ask some more questions while I have to talk to her to get my lab order. I hope if I go right into the next cycle, I won't have to do the BCP & Lupron thing again. However, if I DO have to do Lupron, I want to get it by the end of the year since my insurance will pay 100% of it (instead of it costing $600) since I've met my out of pocket max way back in April. I already got a refill of my estradiol and crinone last week.

 

[ttcbaby117]

Unlucky beta is Friday. Glad your hyesterscopy went well. That's awesome. One step closer

 

[KatO79]

Kat, we only ever got two matured eggs for each of our ivf cycles and we were lucky in our Last cycle both fertilised and one is my daughter. Good luck! You just need one good quality egg.

Thanks Unlucky It's a bit reassuring to hear stories like that. I've been combing the internet for positive stories about people that had 3-4 follies at their ER and have read some success stories. Trying to ignore the unsuccessful ones so I don't lose what I have left of my positivity Here's hoping the same happens for me.

AFM had my hysteroscopy yesterday and they found nothing. Three more days of the pill and hopefully my AF comes again. Trying to get it to start earlier just in time for pre xmas transfer.

That sounds good they didn't find anything. Hopefully you'll soon be able to do your FET

You know, my RE will ONLY do ICSI on all eggs now. They have a program where you pay for the cost of 2 IVF cycles & get a third free if you don't have a pregnancy (depending on if you meet their criteria, which I do not), so they discovered that it was better to just do ICSI on everyone. I have a feeling most RE's will start at least doing half ICSI on all IVF cycles as a routine thing soon enough.

When I start bleeding, I'll call the IVF nurse & ask some more questions while I have to talk to her to get my lab order. I hope if I go right into the next cycle, I won't have to do the BCP & Lupron thing again. However, if I DO have to do Lupron, I want to get it by the end of the year since my insurance will pay 100% of it (instead of it costing $600) since I've met my out of pocket max way back in April. I already got a refill of my estradiol and crinone last week.

Sounds good with doing ICSI, I wish the clinic at the hospital did that, especially for those that don't have many follies at ER but I don't think they do. They only do it if you've had no follies fertilise at your 1st IVF, then they do ICSI for IVF #2.

Hope you manage to get your Lupron in time if you need to do it again


AFM my ovaries have already been twinging a bit more since my dose was increased from 225 IU to the 300 IU Bemfola Pens. Hopefully it's my 3-4 follies getting ready for DH's Hopefully it's ensuring the 4th follie will be ready by Sunday for ER since my RE wasn't very hopeful about any small ones catching up. I'm sure they're growing but they probably won't grow enough in time, that's what she was mostly leaning to anyway.

 

[MrsG30]

Hi ladies.

I'm not sure if any of you can help me? I've been reading your journeys the last few days and thought I would join in if that's OK.*
I'm danni in 33 and we have severe MF problems. We are using donor sperm. That aside I do have ovulation problems and high amh although PCOS looking?!?!?!? Not diagnosed!?!?

Anyway I'm on day 5 of gonal F 100. I've been for a scan today and although my lining has increased from 3.8 after DR to 5.8 both ovaries are unresponsive? ?? Now the nurse said as it's my 1st cycle there not concerned as they need to start new low due to potential OHSS. So from now until Monday I double my dose and have a scan on mon afternoon.

I'm alarmed at no reponse at all? Should I be? Could things change so much in the next 7 days I'll be ready for my scheduled egg collevtion which currently should be a week todayI?

I'll not lie. I'm panicking I won't responded enough and this cycle will be cancelled.*

Any one she'd any light?*

Thanks and love to you all xxx

 

[Psalm23v6]

Welcome MrsG - sorry to hear that the ovaries seem unresponsive. It seems like they are being careful not to over stimulate you, which makes sense if they think you might be PCOS (ish). My friend in the US was stimulated for 3 weeks because she had PCOS and was on very very low dose for the whole time. She ended up with 20 eggs (13 were mature), so it is possible that they are just being careful. I can't shed any specific light other than to say, try not to panic (I know that's easier said than done), drink lots of water and eat lots of protein. Hopefully by Monday things will have improved and you will see some response. Crossing my fingers for you lovely.

 

[MrsG30]

Thanks hun for taking the time to reply and reassure me. This whole journey nothing feels straight forward ha.

I hope during my cycle I can be of use to some of u ladies

Xxxx

Welcome MrsG - sorry to hear that the ovaries seem unresponsive. It seems like they are being careful not to over stimulate you, which makes sense if they think you might be PCOS (ish). My friend in the US was stimulated for 3 weeks because she had PCOS and was on very very low dose for the whole time. She ended up with 20 eggs (13 were mature), so it is possible that they are just being careful. I can't shed any specific light other than to say, try not to panic (I know that's easier said than done), drink lots of water and eat lots of protein. Hopefully by Monday things will have improved and you will see some response. Crossing my fingers for you lovely.

 

[rebecca822]

Mrs G- I'm not good with these things but just wanted to say hi and hope it will work out for you. Psalms advise to drink a lot and eat protein is good advice.

Psalm- how are you feeling?

Afm- my OB appointment is today to get a second opinion on the bleed around my gestational sac. Ill update everyone later.

 

[tiffttc]

Hi everyone
welcome mrsG I don't really no what happens about being unresponsive but I do definitely think they can catch up in a week and your lining is thickin so that's good there just probably being careful not to over stimulate you as psalms said praying you get lots of follices in your appointment we are actually really close with our cycles I have a scan tomorrow and hopefully if they have grown my er will be early next week

Kat- Iam kinda freaking out a lil aswell about my eggs because I didn't really have a great number at my last appt and they were still really small and my hormones came back low but since they increased my dose from 150ui to 200ui of puregon Iam feeling twinges on both of my sides Iam taking this as a good sign but I really just hope my hormones don't jump up to quickly because of my increased dose ahh the stress Iam drinking loads of water and peeing like crazy so hopefully I will have a better result tomorrow I will keep ye posted when is your next scan??

 

[KatO79]

Welcome MrsG Are you on the long or short protocol (long is the one where you down regulate)? If you were on the long, the down regulation may have oversuppressed you (which is what has happened to me as well since I only have 4 follies). IVF #1 is unfortunately often a bit of a test run since they're guessing what will work best for you, sometimes they guess wrong and will be able to use it to optimise your next IVF should you not get your BFP. But I hope the increase dose helps and you see many follies on your next scan

Kat- Iam kinda freaking out a lil aswell about my eggs because I didn't really have a great number at my last appt and they were still really small and my hormones came back low but since they increased my dose from 150ui to 200ui of puregon Iam feeling twinges on both of my sides Iam taking this as a good sign but I really just hope my hormones don't jump up to quickly because of my increased dose ahh the stress Iam drinking loads of water and peeing like crazy so hopefully I will have a better result tomorrow I will keep ye posted when is your next scan??

I think 8 follies sounds pretty good to me My clinic at the hospital actually tries for 8-12 follies so you're in there. I don't know if it's because having many more follies increases the risk of them being lower quality. Sounds like the increased dose is doing it's job for you

Just got back from my appointment today and it still looks like it'll be 4 follies but I was fully prepared for the smaller ones to not be able to catch up. My lining looks really good But since my 4 follies are still not large enough, I have to take 300 IU Bemfola for a few more days so ER will be Tuesday or Wednesday. I'm going in for one more scan on Sunday so they can check follie sizes and be sure about which of those days it'll be. DH wasn't too happy about my ER being changed from Sunday to now Tuesday/Wednesday because he was supposed to go on a job related course on Tuesday. But there's no one else to drive me since my in-laws took off for vacation last week and my mother's a malignant narcissist so don't want her along that day, she'll just come with snide comments and be embarrassing in front of the RE and nurses

BTW if we need to do another IVF, my RE told me it'll be short protocol next time

On the plus side it seems as if DH and I hit the limit so I didn't have to pay for my Bemfola Pens today (the state is taking over now I guess)

 

[Mrs W 11]

Hi everyone!

MrsG, welcome! Sorry to hear your ovaries havent responded so far.... it is true that the first ivf is a bit of a trial and error sadly and what the experts will think will work doesn't always. Its good that they've upped your meds though, theres every chance those ovaries will wake up now and start making follies and eggs! Good luck.

Kat - great news that your lining looks good, all you need is 1 or 2 good quality eggs from those follies now and you will be well on your way to a rainbow baby! You'll be pupo before we know it.

tiffttc - lots of water is great, try not to stress, the winges are a great sign. Hopefully you'll see lots of growth at your next scan.

Rebecca, hope the appointment went well, did you have another scan?

ttcbaby - good luck for your beta tomorrow, finger crossed for you!

All good here, first scan early next week!