Anyone else with a child with ventriculomegaly?

[Mommy2Kian]

My baby Kaden has "mild" ventriculomegaly...basically the fluid in his ventricles (brain) is a litlte to much than what the docs would like to see...

They are 13-14mm at the moment, they were 10-11mm 4 weeks ago...and been told the more it increases the more chance he will have learning difficulties...i really dont mind this, me, OH and little kian will put our heart and soul into giving him the best upbringing no matter what obstacles we may all face...im just wondering if anyone else has heard of this, and if so what was the outcome?

 

[Mummy~L]

Sorry hun I have no advice but didnt want to read and run!

Just want to wish you and your family the best of luck and say that I admire your amazingly positive outlook!! This lucky little man is going in to one loving family xx

 

[GersPrincess]

I'm sorry, I've not heard of it or had any dealings with it either, but just wanted to wish you luck and send lots of love and hugs to you and your family.
As Mummy L has said, it sounds like your baby is going to the best family possible.

 

[webwahm]

Hi - I have Google alerts set up to notify me of posts relating to Ventriculomegaly so that I can try help, so I'm not a member of this forum and just registered to reply to you.

My little girl was diagnosed with VM at 20 weeks, and it was a rollercoaster ride to the end, reaching 16mm or 18mm if I recall.

...I was told she had a 50/50 chance of being mentally and/or physically handicapped but I stuck to my guns.

She arrived perfectly fine - but still with enlarged ventricles.

She was not blind, nor deaf and is sitting, crawling, trying to walk, meeting her developmental milestones.

There is a lot of worry and very little information surrounding VM so I set up a site to help, and direct parents to the very, very helpful VM Forum...

I posted on there under the name 'zacsmum' (we thought she was a boy!)

Keep getting my hands slapped on here for trying to give you the link.

Search on 'squidoo' for 'ventriculomegaly-info' or PM me or something.

Hope all goes well
Adele

 

[Bunny FooFoo]

I don't have any experience with this but just wanted to give you big

Hope everything turns out well for baby Kaden.

 

[Mommy2Kian]

Thankyou! xXx

 

[Veetim]

Hey am so so sorry to hear that,but at the same time am relieved coz i jut found out last week on my 20weeks scan my boy's posteror horn measure 11-12mm,i was in pieces crying and unconslable,at the same time i cant bear losing my boy as he is my first child. I did a lot of research on the internet and i found one lady she had almost the same problem like ours but hers it was 9.5mm,she said she used DHA suppliments(omega 3),and when she went back for 28weeks scan they found out it has gone down to 7.5,so what i did i run down to shop i get loads of DHA suppliments,just to try and see how it goes.As i feel guilty that i could not remember to take something like to build my baby brain.
Anyway,you my dear you are ahead of me,so am looking up to you and i would like to hear more,as i have got another appointment next week on wednesday,though they did not say what for but i guess it is another scan i dont know what to expect.
Take care love,keep in touch pls,i guess it will help me.I am behind you.
Check my journal i just posted today, Veetim.

 

[ShanR]

Hi Mommy2Kian, Just wondering did the ventricals go down in size near the end of your pregnance? Has your child had any problems/learning difficulties? At my 20 week scan I was told that the VMs were enlarged, they get a reading of 14mm, they have ruled out hydrocephalus, there was no blockage. Due to go back this Tuesday for another scan this is 2 an a half weeks later, hoping they have gone down. Any feed back would be great

 

[sailorwife]

Hi, I have a daughter born with vm. We found out at the 20 week anatomy scan. Web ad many ultrasound and a fetal MRI. She was born in August health, we did an MRI at 5 days old and her ventricles seem to be staying at 14 each. She also has an absent septum pellucidum. Right now she's right on track and doing great but time will tell. We do weekly head circumference checks and will do another MRI at three months