Anyone elsehere have rh disease?

[Scarletvixen]

Was wondering if anyone elsehad rh disease here?
This is myfourth child while having rh disease, i didnt get the antid after my first child.
Had the new fetel geno typing test done last month so hopefully the results should be back tomorrow when i go for our next scan xx

 

[new_mum]

You mean Rhesus Negative? if so, I have that blood type and got my anti-D jab last week, I will get another one after the birth if baby is Rh Positive.

This is my 1st pregnancy!

 

[Scarletvixen]

Hey hun no its when you didnt get an anti d jag and you develop anti bodies (mainly c and d) which can attack your baby.

 

[123flump]

Hi, I'm the same as you and producing anti d antibodies and I havent had the jab either. This is my third baby and it seems I have become sensitised and that is why I'm producing the antibodies. There is plenty of info on the net about it which is great, but not many of us have it and so there is little communication one on one with ladies alike. Do you know your titres level yet for your antibodies? Keep in tough.

 

[Scarletvixen]

Hey hunni, yeah this will be my 4th child while having it.
My titers were 1/32 for anti c and 1/64 (which is 7.7)for anti d at the start but they came back they went up this month to 8.8.
With my last when they induced me they were 1/1000 and when they done the doppler scan they could see that it was causing some real problems for him so they induced me there and then.

He was in icu for 3 weeks, they wanted to do an exchange transfusion but there was not blood suitable in the blood bank so he wason photothearpy and meds untill the billiruben levels became normalish.
The girls were both fine, one is rh- and the other is rh+ but it didnt effect her at all.

Have you had the new fetel geno type done?
What are your levels atnow?
Mine came back that baby is rh c and d +

xxx

 

[lizziedripping]

Hi hun - I am rhesus negative, but have had several anti-d shots, and have never developed antibodies. I just miscarried my 5th child at 11wks, and had a test to check for antibodies and still have none - this is probably due to the docs being extremely vigilant with anti-d, and two out of 4 of my kids being rhesus neg themselves.

I understood that it was baby #3 who is seriously affected if antibodies are devloped after baby #1? My dad was baby 3 and was aneamic at birth because of course in the 1940s there was no means of screening or treating affected babies. I also thought that rhesus sensitivity was extremely rare these days because of the anti-d serum?

THinking of you hun, and so sorry that you weren't given the correct treatments after your first xxx

 

[Scarletvixen]

hey hun, the reason i didnt get anit d was that the nhs stopped gving it for a while as they couldnt ensure it wasnt contaminated.
Never heard of it being the third who is worst effected will need to look into that thanks xx

 

[lizziedripping]

Hi - when did you have your children out of interest? Didn't realise they had stopped giving anti-d for a while. I had my first in 2002, second in 2004 and twins last yr, and always had access to it.

As for third baby thing, first baby triggers antibodies, second baby mildly affected if at all, and third baby usually get aneamia in utero. All babies after that are also affected. Back when my Dad was born, this was typical pattern because of course there was no anti-d x

PS - nice to come across Mummys who have lots of kids and want more. We have 4, and I would love a 5th (just miscarried and desperate to try again). I find people are generally surprised that we should want more - some (inc. family members) are downright negative in fact. I am 38 now so feel the pressure of time, and despite my twins only being 15mths old, I feel it's now or never!! xx

 

[Scarletvixen]

Hi - when did you have your children out of interest? Didn't realise they had stopped giving anti-d for a while. I had my first in 2002, second in 2004 and twins last yr, and always had access to it.

As for third baby thing, first baby triggers antibodies, second baby mildly affected if at all, and third baby usually get aneamia in utero. All babies after that are also affected. Back when my Dad was born, this was typical pattern because of course there was no anti-d x

PS - nice to come across Mummys who have lots of kids and want more. We have 4, and I would love a 5th (just miscarried and desperate to try again). I find people are generally surprised that we should want more - some (inc. family members) are downright negative in fact. I am 38 now so feel the pressure of time, and despite my twins only being 15mths old, I feel it's now or never!! xx

So sorry to hear of your loss

Yeah i always wanted a big family, i love it most people think im mad but each to there own lol

I had my first in 1998 then in 2000, 2003 and 2006 xxx

 

[babymaker09]

hi there! i'm on my third sensitised pregnancy with anti D and anti c! I never got the anti d with my first in 2004 as it wasnt given routinely in my area during pregnancy so i developed the antibodies between 28 and 34 weeks, my second son was born with severe HDN and had the exchange transfusion at 6 hours old. When he was born his heamaglobin was only 5 They had went by my titre levels throughout my second preganancy which were always low, never had a doppler scan because of this and he was born via induction at 39 weeks due to SPD! No one knew how sick he was and how close we came to losing him . He spent a week after his transfusion in intensive care on billi lights until his jaundice was at a safe level then he was monitored for 4 months by blood tests.
This pregnancy my titre's were so high they stopped testing at 12 weeks started doppler scans at 15 weeks. At 18 weeks baby was found to be very anemic so had my first intrauterine transfusion at 19 weeks. Also had one at 20 weeks, 22 weeks, 24 weeks and 27 weeks. Next one is sheduled for 30 weeks and hopefully the last one will be at 33 weeks! I am then due to be induced again at 34weeks, had steriods for babies lungs at the last transfusion.....ouch!! It's rare to find others out there who are sensitised! so hello there!! lol xxxx

 

[lizziedripping]

Oh babymaker Your poor thing You've really been thru it hun. This makes me angry that women and babies are being let down in an age where rh disease is easily prevented! Fingers crossed for a happy healthy pregnancy hun xxx

 

[Scarletvixen]

hi there! i'm on my third sensitised pregnancy with anti D and anti c! I never got the anti d with my first in 2004 as it wasnt given routinely in my area during pregnancy so i developed the antibodies between 28 and 34 weeks, my second son was born with severe HDN and had the exchange transfusion at 6 hours old. When he was born his heamaglobin was only 5 They had went by my titre levels throughout my second preganancy which were always low, never had a doppler scan because of this and he was born via induction at 39 weeks due to SPD! No one knew how sick he was and how close we came to losing him . He spent a week after his transfusion in intensive care on billi lights until his jaundice was at a safe level then he was monitored for 4 months by blood tests.
This pregnancy my titre's were so high they stopped testing at 12 weeks started doppler scans at 15 weeks. At 18 weeks baby was found to be very anemic so had my first intrauterine transfusion at 19 weeks. Also had one at 20 weeks, 22 weeks, 24 weeks and 27 weeks. Next one is sheduled for 30 weeks and hopefully the last one will be at 33 weeks! I am then due to be induced again at 34weeks, had steriods for babies lungs at the last transfusion.....ouch!! It's rare to find others out there who are sensitised! so hello there!! lol xxxx

Oh gosh you are having a really hard time of it hunni
So far my doppler scans have been normal but i have noticed they have started creeping up, they have told me if they stay "normal"untill 30wks if they start to change after that they will deliver her rather than do an interuterine transfusion.
Its good to speak to others who knw what we are going through.
We were toldwhen Shaun was born that he wasnt expected to live for morre than a few hours as he badly needed an exchange transfusion but the scottish blood bank didnt have any suitable blood, was the worst time of our lives but he startedrecovering and in the end didnt need any transfusions, they monitored himfor 12 months after he was born,he is now a energetic typical 5 year old, no one beleives us that he was ever ill xx

 

[123flump]

Hello there, you are right, there aren't many of us around are there.... and it's just because we produce our own anti D, nothing to do with neglect or bad midwifery care, we're just different thats all. My titre levels were 7.6 and just had another lot of bloods done and so waiting the results of those. I've got a scan on Tuesday to check the fluid levels in 'Flumps' brain and around the internal organs...so I shall feel better when we know more from that. As you said, titre levels aren't always accurate enough or give enough details for this. It's good to talk to someone who knows exactly how I am feeling, everyone says, ''Oh yes, I know all about you being o- and the complications, they just give you anti D and all is ok again''.....those are the people who don't get it. The difference is we can't control the levels we produce and as a mother, all you want to do is protect your baby, and yet we're the ones who are the biggest threat. I hate is when people then go on to say,''You mustn't blame yourself'', I want to shout I don't blame myself, I know I'm a good Mum, it's just horrible because you want to protect your darling baby and you can't! Sorry, for chatting on, its just good to talk to someone. I am know almost 32 weeks and wondering what they are going to do with us..I think you are a very brave lady and obviously a great Mummy. Hang in there and me with you... God bless, Lol. XXXX

 

[Scarletvixen]

Keep us updated hun on how you get on.
Hope all turns out well for you, hope those levels stay where they are.
Are you getting weekly mca doppler scans now?
Mine have been monthly so far but they have switched to fortnightly now becuase of th4e atibody levels and she isnt growing as fast as she would like but they have said when we get to 30 weeks they will scan at least once a week xxx

 

[123flump]

What are MCA scans? I'm having my first scan to check for HDN nexr Tues. They didn't find any antibodies in my blood until I had the 28 week blood test....and here in Cornwall I am rare...my Midwife told me shes only ever been in contact with two other Women the same as me and she's been doing this job for 30 years....but then again it is Cornwall and the population isn't so big here as up the line. What are your titres at the moment? XX

 

[Scarletvixen]

its a scan that measures the bloood flow through the main artery in the brain (middle cerible artery or something like that its called) they measure it 3 times and take an average and that wya they can check that the baby isnt developing anemia.
have you had a fetel geno type test done? if not ask for one, they need to send it to aberdeen to get it tested as its the obnly place in the uk that does it.

My titires were 8.8 last time, when they get to 10 is when i panic!
You have to keep on top of them as not many consultants deal with it on a regular basis and some dont have a clue about what they are doing, for example hardly any midwives or doctors know that the antibodies are passed on in breastmilk and will keep the pressure on toget you to breastfeed, i only found this out because we had a horse that had a foal and she had the same thing, no one understood how the foal was still gwetting so ill after blood transfusons etc untill one of the vets thought to check the mares milk and sure enough it was full of the antibodies!
Left me thinking on what a close call i had with my own children as i have always bottle feed out of choice but have been pressurred to try brreastfeeding but it would have made my babies even worse, doesnt bear thinking about xxx

 

[babymaker09]

hi me again i'll admit it has been rough but just need to keep going i suppose! I was offered the test that got sent to aberdeen but that same day was the day we found out she was aneamic so they said there was no point as they had to start the IUT's. I did not know that about breast milk! I am being treated at Glasgow's Southern General hospital - fetal medicine unit. They are the only hospital in scotland and ireland who deal with mothers producing antibodies, i will let you know any info I get from them, my next app is 24th of august for my blood check for transfusion the next day so i will say to them then. They have loads of info and are really helpful with everything.

123 - hope your levels stay down - you too scarlette! xxxx

 

[Scarletvixen]

I was told if they get above 10 then they would transfer my care to the southern general.
Dont knwo about you but im about 2-2:30 hours away from it down here is deepest south ayrshire.
Any info you get let me know xx

 

[123flump]

Thanks for telling me about the breastmilk....me too, I was't aware of this and I always feed my babies normally. Am still waiting for the results from my last bloods and no I havent had any other tests at present other than bloods and a visit to see the Obstretrian for more bloods and to feel the baby. He didn't seem too worried about it all. but my midwife is great and pushing things along for me. The main consultant who deals with speciallist things has been on holiday, hence the reason I've had to wait and it had now been 4 weeks since they discovered I had antibodies. Flump is very active though and has a regular sleep pattern throughout the day...The last time they took a urine sample from me they found debris in that and so am also waiting the results for that!! I am sure come next Tuesday when I see the contsultant and have the scans I should have all the info I need..... I hope thats the plan, fingers crossed. It's so good to talk to people that understand..thanks girls. We have no specialist hospitals down in sunny (sometimes) Cornwall so if I do need more care they will probably ship me off to Bristol - 3 1/2 hours away and with two children, Lord knows how we'll manage, but we'll cross that bridge if we have too... How many weeks are you both now? XX LOL

 

[123flump]

Muppet aren't I.....just realised its under your messages for your due dates and how many weeks! Sorry for being thick, this is all new to me.XX