kit10grl
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- Jul 3, 2011
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Honeslty i want to be angry about this but really cant get over being upset for LO and her future.
We have started going to a baby sensory class last week. As robyns medical status can change so quickly and she can be back in hospitalso much we have such a nice class leader that she has made a special package just for us where we can carry lessons we cant attend from one block into the next block. they dont normally allow this so its really great of them so I was all excited about it being a really nice group and so good for robyns development with her being a little delayed.
Last week we went along and the group was really busy. The mats are set round in a semi circle for the group to sit on to start and last week it was a case of squeezing in, we got there a bit later so had to fit into spaces. so noone had a chance to avoid us it seems
This week we got there early, picked a space on the mat and by the time we started there was a space either side of me on the mats while the mums on the other side of the circle looked really squished. Clearly no one wanted to sit next to us. Robyn still has an ng tube in to feed, she is on a continous feed through the day which means she has a small backpack with her milk and pump in that is attached to her. so they all saw it last week, and were curious so i was open and explained it as i usually do and so everyone was suddenly keeping their babies away from it, Now i totally get they didnt want their baby to damage it and stuff but its designed to be worn by a small child so its pretty robust. In the last week she has earned a break time during the day as her rate has gone up for feeding so i had taken the bag off for the group so others wouldnt need to worry about it and robyn and i could move more freely and yet no one still came near her.
Like i said i really want to be angry for her that people are treating her diffrently but i'm just sad. I dotn know how long the tube will be in for, but i also dont know what other features of her syndrome will present in a physcial way as she gets older and i worry she will always be avoided or made to feel left out.
I worry people will only ever see the medical equipment and not the clever cheeky girl i see
We have started going to a baby sensory class last week. As robyns medical status can change so quickly and she can be back in hospitalso much we have such a nice class leader that she has made a special package just for us where we can carry lessons we cant attend from one block into the next block. they dont normally allow this so its really great of them so I was all excited about it being a really nice group and so good for robyns development with her being a little delayed.
Last week we went along and the group was really busy. The mats are set round in a semi circle for the group to sit on to start and last week it was a case of squeezing in, we got there a bit later so had to fit into spaces. so noone had a chance to avoid us it seems
This week we got there early, picked a space on the mat and by the time we started there was a space either side of me on the mats while the mums on the other side of the circle looked really squished. Clearly no one wanted to sit next to us. Robyn still has an ng tube in to feed, she is on a continous feed through the day which means she has a small backpack with her milk and pump in that is attached to her. so they all saw it last week, and were curious so i was open and explained it as i usually do and so everyone was suddenly keeping their babies away from it, Now i totally get they didnt want their baby to damage it and stuff but its designed to be worn by a small child so its pretty robust. In the last week she has earned a break time during the day as her rate has gone up for feeding so i had taken the bag off for the group so others wouldnt need to worry about it and robyn and i could move more freely and yet no one still came near her.
Like i said i really want to be angry for her that people are treating her diffrently but i'm just sad. I dotn know how long the tube will be in for, but i also dont know what other features of her syndrome will present in a physcial way as she gets older and i worry she will always be avoided or made to feel left out.
I worry people will only ever see the medical equipment and not the clever cheeky girl i see