Cheers to BFPs in 2-0-1-6!

[Angel5000]

US went well! My lining is 8.5, which is guess she said is good and she said she could tell I definitely ovulated because of the fluid around my ovary. I go back next week Monday to get blood work to check progesterone levels and then they'll make an appointment with the dr to go over all our results from this month.

This has been a "data gathering" cycle. So the dr will hopefully have some insight after looking at our test results

 

[Sheece]

I spoke too soon, still having sptting, booo.

Glad your US went well Angel!

Im sorry youve had such a rough time of it Whimsical xx

 

[Whimsical88]

angel once all the "data gathering" is done you will fell so much lighter because your doctor can tell your way forward and you wont be feeling stuck.

sheece i hope you ok. you so very few words nowadays.

i have had the worst week again this month(2months in a row now) and i think still worse to come. its such a long story can not even give an abridged version...but hoping i am going to be ok....

 

[Sheece]

Im ok Whimsical, just took a bit of a step back from the forums I guess.

I just got home from my doctor appointment. I shouldnt have gone, just made me upset i got choked up explaining the situation to start with, which led her to repeatedly offer me grief councelling. I explained that i was ok, its just hard to talk about but she just kept looking at me like she was sorry for me which made it worse. Then i had to pull any information out of her, my follow up hcg level was under 2, so id say im back to normal on that front.

Then i asked if there was anything else i had to do, because the nurse said i should get that checked out, and she just looked confused. I asked if we were fine to keep trying straight away, and shes like ummmmm uhhh maybe a month? Then asked if i knew when i ovulated, i said yes in about two weeks hopefully, and shes like uhh well then, then.

And she kept referring to my miscarriage as a forced abortion! I dont know if it was the language barrier (she had a heavy accent) but far out lady!!!

So i drove in tears all the way home feeling like it was a huge waste of time. All it did was upset me gah.

Oh and i had to explain to her what progesterone was when i asked her to see if me levels had been tested!

Sorry for the huge vent ladies, but I needed it!

 

[mrs unicorn]

oh sheece, she doesn't sound like a very well informed nurse. Not what you need right now. Talking about it does bring the worst of the emotions back, it still does for me. It's caught me off guard a few times.
I cannot believe what she was referring to your mc as. It outrages me that people can be so insensitive. Do people just not think sometimes?! Unfortunately the aftercare varies so much. I was offered all sorts of councelling/memorial stuff afterwards and it broke my heart everytime someone mentioned this kind of stuff. I didn't want any of it, but then wondered if that made me sound heartless. Bah, the whole thing sucks. After my erpc I was discharged from hospital and that was it, not follow up or anything. I was told we could TTC again whenever we felt we wanted to, medically there was no reason to wait, so it's really whatever you feel most comfortable with. I'm so sorry you are having to through this we are all here for you anytime - vent away!

 

[Whimsical88]

sheece thats so unprofessional and insensitive and down right dumb for medical staff to be like that to you. whether you were 4 weeks along or 4 months, you still was pregnant and the pain of the loss is the same. dont ever go back there. when a person does not know the pain that comes from ttc they really dont get what it is to try and try and try and try to actualy try to try. im glad you are ok though. do not forget that these forums are for venting and they are here for ranting and for you to say everything your heart feels but too scared to tell anyone personally. so rant and rave and complain and B*(^$ away my dear.
when i had my mc in Dec the doc said it was a .... abortion. i cant remember the word he used before that word. i was like are you freaking kidding me. i wanted the baby, i did everything i could think of to keep the baby. the fact that my body rejected it can not be my fault. and later i did and do still blame myself but as my DH said it was not something that could control and i have to accept it.

get some time alone, cry cry and cry....sounds bad to say that to you but there are days when i need a good cry to feel whole again and ready for battle after.

 

[broodymrs]

Sounds like good results so far Angel. Whimsical so sorry you're having a tough time Hun.

Sheece, I'm lost for words at how terrible that appointment sounds. I think I'd complain if I were you. Language barrier or not that is an awful word to get wrong. And to say she did t know what progesterone is, is not helpful. You need to know if it's low so you can do something about it. I'm so sorry Hun, my heart is breaking for you

 

[Sheece]

She wasnt a nurse either, shes a doctor! The nurse I spoke to on the phone was 100 times better than her! OH was so angry he wants me to complain too.

My normal doctor didnt write her name on the list of docs to see in her absence, I just got stuck with her cause the three doctors she gave me werent available. After this im seriously considering changing doctors, but mine has my history so it might be best to stay with her for the time being I think?

So confusing and annoying and frustrating! I was coping fine until this afternoon! Its put me right off going to the doctor now, I feel like next time, i will wait until im 5 weeks along then go, no earlier.

 

[Whimsical88]

ask for your history and get another doctor. and also if you get a BFP early and have an early mc again, they need to find out why its not sticking so no, do not wait... go to another doc that will take every BFP serious and is, god forbid, you have the same thing happen again then you know the problem and you can see how to sort it out

 

[abennion]

That Doctor sounds horrible! I think you should tell your doctor about your experience and thank whoever you don't see her on a regular basis!

AFM: well, thought my temps were on the low side and I was right... Got a new bbt and they're way higher than what my old thermometer was clocking them in at. Looks like I definitely did ovulate, question is when this cycle did I... For the first time since I started temping I have no idea what DPO I am.

 

[Sheece]

How frustrating Abe, maybe if you post your chart we could have guesses?

AFM - spotting stopped yesterday so I'm pretty happy with that! If I go from the first day of proper bleeding I'm CD 8 now, but if I went from first day of spotting I'm CD 13 so I will be interested to see when my temps change.

 

[abennion]

I only started temping again on CD18, and I switched bbt thermometers because I suspected my other one was dying, ruso posting might not help.

 

[Whimsical88]

watch your temp, may narrow how far along you are and when you will o

 

[abennion]

I am aware to watch my temp Whimsical, the problem is that my old bbt thermometer was measuring temps almost a whole degree lower, so any temps before I switched to my new one aren't accurate. I am definitely post O, just don't know for sure what DPO I'm at. At this point I'm just waiting for AF.

 

[Angel5000]

I went to the walk in clinic yesterday because my asthma is acting up. I'm wheezing, coughing, hacking up stuff and overall miserable. The dr there thinks it's allergies, gave me a steroid shot and nebulizer treatment and prescribed a pack of steroids for a week but told me to call my RE first and make sure that I can take the steroid pack because of TTC. So I'm waiting for a call back from the RE. I don't think he's right about the allergies - or if he is, I am having some severe reactions. I stayed home today because I just can't teach all day whlie I'm still wheezing. Even after all that, my lungs cleared up a lot but by bedtime I was wheezing again. Gave myself a Neb treatment before bed and took some cough medicine w/ Codine (because that will often help keep the wheezing cough away so I can sleep) and slept well until about 2am when I woke up wheezing again. I temped early, around 4:40am when DH got up and I woke up and needed my inhaler (again). Probably why today's temp was low again.

FF tried to mark my Ov day as 3 days ago and tell me I'm just now 3DPO. I get that from my temps but I know that I ovulated either Sunday or Monday because Monday at 8:30am they confirmed at the doctor office that I had already ovulated. So I had to change the FF setting to track by OPK instead of temps. Proof that your temps don't always rise as well as they should post-O. So I'm 5DPO. I have about a week before testing/AF shows.


Sheece - Omg. That sounds horrible. I can understand the grief counseling, but the rest of her demeanor and behavior just sounds awful. I've heard of MCs being called forced abortions before, where your body "forces an abortion" but I thought most medical practices had abandoned calling them that because of the connotation of abortion! Unfortunately early MCs are often referred to as forced abortions in the medical profession- because the body "aborted" (which technically just means "stopped") the pregnancy for whatever reason. It is not the same thing as a "chosen abortion" where you choose to abort the pregnancy. You have no reason to believe that it is your fault. I think that some doctors just don't realize the emotional impact of that word to non-medical people.

Sorry, I have medical family members and so I hear a lot of medical jargon.

OMG I'm so sorry. And how the hell does she not know what progesterone is!?!?!

How is your NORMAL doctor about it? You could just tell them that you never want to see her again and refuse to see that doctor at that clinic. It's not uncommon to tell them that you aren't going to see a certain doctor at a clinic becuase they certainly don't expect you to get along with everyone. If your normal doctor is good then I would stick with him/her but tell her when you talk to her again what happened and your experience. She may be able to provide you with some insight and/or make a note in your chart not to let you see that person again.

You have every right to vent, you definitely needed it!!


Abe - Glad your new thermometer is working better! What an odd feeling to not know how far you are! I think I might go crazy Did you do any OPKs this cycle or track CM ? I can't remember, sorry, but that might give you a little more idea. Or just don't worry about it and see when AF shows.

 

[abennion]

No tracking cm or using OPKs, because we've been trying to take a break, this was our last break month before we see the clinic, and figured I might as well start temping again. A well. She should be here some time next week, maybe as early as Sunday.

 

[Angel5000]

We got our results from the DNA testing results. I am positive for CLN3-related NCL. I am also positive as a carrier for MILD MTHFR Deficiency, and my husband is positive for having Mild MTHFR Deficiency. I have the option of counseling with the people from that lab company, but I declined and am going to talk about it with our doctor. They provided a lot of information and it looks like we don't have much to worry about with the CLN3 (whatever that is) but the MTHFR is a higher risk.

I'll have to do some research now.

 

[broodymrs]

What are both those things Angel?

 

[wifeybby]

Abe, glad to hear your break is almost over and you're enjoying the stress free aspect of NTNP. I hope with everything that the clinic treats you well and you find your BFP ASAP! You're so deserving and I can't wait to hear all about it. Your little guy is going to be so loved. I hate to see you go through all this long TTC emotional ride, but it will definitely be so worth it.

I've been MIA off this board forever, so hello to all that I don't know yet! I just finished a clomid/trigger shot cycle that resulted in a BFN. Currently CD2 and I have an appointment with my RE tomorrow, so will have this cycles plan in mind soon. Likely to do round 2 of Clomid and trigger shot with TI as long as all looks well tomorrow.

Good luck to everyone and hope to see some BFPs soon!!

 

[Angel5000]

Broody - The CLN3 gene can cause severe deteriorative birth defects in my offspring that begin between the ages of 4 and 10 and continue to progress leading to deterioration of a variety of aspects, including blindness. Most experience death by late teens, 20s or 30s. HOWEVER, on the positive side, based on both our genomes, they determine I have a 1 in 22,000 chance of passing on that defect. So I'm not too worried about it. Since DH isn't a carrier it's a pretty good chance we'll be okay.

MTHFR deficiency has to do with the inability to process things like Folic Acid and other stuff. It has a lot of varying things but can cause multiple miscarriages. I am heterozygous, meaning I only have 1 gene and according to the results that means I am not likely to have many symptoms. DH is homozygous which means he does have the symptoms. It means that he can't process folic acid and needs pure folate. Among other things including Bvitamins. We're thinking this could explain some of his random inflamation/joint pain/etc and why he feels so much better when he takes a joint pain pill that we have from a company called Melaleuca, because it has all the vitamin B and folate and niacin and all the other nutrients that people with MTHFR deficiencies are supposed to get.

We will meet with our RE in a week or two to go over all my results from this whole month and DH's SA so we're going to go over these results too then and see what we need to do about them, if anything.


wifybby - welcome back! Sorry about the BFN. Hopefully next cycle goes well!