Cystic Hygroma (large NT@12 weeks)--not a good scan--Updated :)

[kdutra]

GOod luck tomorrow. Did you say that you found out the gender already? We were given 80% chance that ours was al ittle boy. the sonographer said she is not supposed to tell us but because it was pretty obvious she did and we asked. So we are so very excited thinking that its a little boy!!! A little girl would be wonderful too! GOod luck im so glad things turned out Well!

 

[Chester1]

hi gigglebox. good luck i cant wait to hear your results... i do hope all is good. i am in new zealand and i went for the 12 week scan last monday. they found my babies neck measurement at 7mm. although the baby wasnt in good position always facing away and couldnt get a profile view at all. and there was another measurement of 3.6mm so not sure why the big range in measurements although i know 3.6 is still not good. so am off to the specialist tomorrow afternoon to have another more indepth scan. however my bloods came back 'normal' with no detection of downs. the blood dr rang me by mistake which i see as a sign as i was able to ask him if the bloods coming back normal is good. he mentioned a cystic hygroma and mentioned that also to my midwife and she advised me to terminate. i think the doctors reactions to this is surprising as there does seem to be a lack of knowledge and/or experience in the wider medical field. last monday the sonographer stopped the initial scan and said she wasnt going to 'bother' look for a nasal bone as 'there was no point'. a doctor told my midwife the symptoms of a neck that size was 'unsurvivable'. i find the medical profession very doom and gloom and was so upset and anxious for days without any contact from anyone. just sent away from the scan saying i bascially i was in a hopeless situation. after reading the good news on this and other sites i am hoping for a positive result tomorrow. this is my fifth pregnancy and have four beautiful children already with no problems.

 

[sunbaby777]

hi gigglebox. good luck i cant wait to hear your results... i do hope all is good. i am in new zealand and i went for the 12 week scan last monday. they found my babies neck measurement at 7mm. although the baby wasnt in good position always facing away and couldnt get a profile view at all. and there was another measurement of 3.6mm so not sure why the big range in measurements although i know 3.6 is still not good. so am off to the specialist tomorrow afternoon to have another more indepth scan. however my bloods came back 'normal' with no detection of downs. the blood dr rang me by mistake which i see as a sign as i was able to ask him if the bloods coming back normal is good. he mentioned a cystic hygroma and mentioned that also to my midwife and she advised me to terminate. i think the doctors reactions to this is surprising as there does seem to be a lack of knowledge and/or experience in the wider medical field. last monday the sonographer stopped the initial scan and said she wasnt going to 'bother' look for a nasal bone as 'there was no point'. a doctor told my midwife the symptoms of a neck that size was 'unsurvivable'. i find the medical profession very doom and gloom and was so upset and anxious for days without any contact from anyone. just sent away from the scan saying i bascially i was in a hopeless situation. after reading the good news on this and other sites i am hoping for a positive result tomorrow. this is my fifth pregnancy and have four beautiful children already with no problems.

I can't believe the way you have been treated! That is unacceptable! At the very least, they should have sent you to a genetic counselor. There should be more testing with more conclusive results. Can you go to a different doctor? I just can't get over how insensitive they were!

 

[KendraNoell]

wow, doctors are so cruel! They get jaded by things they see every day and then think that the rest of us are as desensitized to it all.

gigglebox- i have a good feeling your scan will be great

 

[Mommy2be20]

Oh gigglebox, I can't believe it's finally almost here!!!!! Will be thinking of you ALL day long I hope you come home with the BEST news possible .. and a little slip up of baby's gender Will be checking every chance I get xxx

 

[gigglebox]

hi gigglebox. good luck i cant wait to hear your results... i do hope all is good. i am in new zealand and i went for the 12 week scan last monday. they found my babies neck measurement at 7mm. although the baby wasnt in good position always facing away and couldnt get a profile view at all. and there was another measurement of 3.6mm so not sure why the big range in measurements although i know 3.6 is still not good. so am off to the specialist tomorrow afternoon to have another more indepth scan. however my bloods came back 'normal' with no detection of downs. the blood dr rang me by mistake which i see as a sign as i was able to ask him if the bloods coming back normal is good. he mentioned a cystic hygroma and mentioned that also to my midwife and she advised me to terminate. i think the doctors reactions to this is surprising as there does seem to be a lack of knowledge and/or experience in the wider medical field. last monday the sonographer stopped the initial scan and said she wasnt going to 'bother' look for a nasal bone as 'there was no point'. a doctor told my midwife the symptoms of a neck that size was 'unsurvivable'. i find the medical profession very doom and gloom and was so upset and anxious for days without any contact from anyone. just sent away from the scan saying i bascially i was in a hopeless situation. after reading the good news on this and other sites i am hoping for a positive result tomorrow. this is my fifth pregnancy and have four beautiful children already with no problems.

this sort of thing makes me so full of anger. That is just a terrible reaction to have. I think you will find that the specialist doctor is much more compassionate to your situation. Evidently the increased NT doesn't happen that often and I don't think regular doctors see it frequently at all. Because of this I think they just jump to conclusions and give you the worst news possible. I am also saddened that the sonographer just stopped the exam. My dcotor had the same response to my bloods already taken; he didn't bother sending them in under the same "what's the point" thought process.

Here is a link to a ton of success stories with cystic hygromas, even several that measure much larger than the one your baby has: https://community.babycenter.com/po..._success_stories_for_all_those_that_need_hope

Good luck to you and try to stay positive. I know it's VERY hard...please read the stories on the above link, I hope they will help.

TO EVERYONE ELSE...thank you so much for the positive mojo Only a short 4.5-ish hours now...

 

[BrandysBabies]

Thinking of you and hoping and praying for good new!

 

[gigglebox]

Thank you so much everyone for your thoughts and prayers! They seem to be working Thank God, my ultrasound went well. We aren't out of the woods yet but the fluid all around Bun is gone and is now completely localized behind the neck, instead of also being down the spine The heart is also not totally fixed yet but the doctor said it's better than last time and he is pleased with the progress! I have another appointment in 2 weeks to see if things are continuing to improve.

As promised, below is Bun today feel free to gender guess and I'll post later who's right

 

[BrandysBabies]

Yay!!!! I am so so happy for you!!! I just knew it! I hate those damn tests! I hate that right off the bat they inform you that your world is ending only for them to not be right at all. Blah! Anyway! I just know things are going to continue to progress for you and bun!

Oh, and I am guessing boy!

 

[Mon_n_john]

That is GREAT news! I am sticking with my original guess, it's a boy!

 

[Mommy2be20]

I'm SO pleased you came home with good news.. I swear if I wasn't stuffing my face with a caramel apple right now, I'd be crying with joy! Now we'll keep the prayers going for the next two weeks and hopefully MORE progress is made!!
I'm also gonna go ahead and guess that's a little girlie xx

 

[sunbaby777]

That is such awesome news!!! So glad to hear it!

 

[bumpbear]

That's fantastic news Gigglebox. Looks like your little bean is a fighter. So pleased for you and praying for the best outcome. Sending good vibes your way (and guessing its a boy!). xx

 

[KendraNoell]

yayayayayayayayyayayaaaaaaayyyy! so happy for you! i just knew it was going to work out!!

 

[Chester1]

thank you to gigglebox for the link and yes i think you are right the general doctors etc dont have the experience. and yes i need the positive stuff right now. specialist has said the hygroma has increased to 11mm now from 7mm measured last week which isnt a good sign apparently. it now goes down the back of the spine. i am still hoping it resolves. they have given me a lot of scenarios of what it could be and a 15% chance it will be normal baby so 15% is better than 5%!!. i have had a cvs done today and get results monday to detect if its a syndrome of some sort. thank goodness for this forum as a lot of my friends etc dont really understand although they are sympathetic - for instance they dont know what a CVS is as i think its relatively new here. thanks again for such kind words

 

[gigglebox]

Mommy2Be--I don't blame you, no one can be sad while eating a caramel apple!!!

Thank you everyone for everything; I swear if I didn't have access to baby and bump i would be so much worse off!

Chester--just so you know, our measurement had gone from 5.7 to 7mm over the course of a couple days during my 12th week. The Chromosomal hump is the biggest one to get over. I sincerely hope your situation turns around How was the geneticist to you as far as bedside manner goes? Was it a better situation that the initial doctor?

 

[no drama mama]

Oh gigglebox - that's WONDERFUL! I still say boy

 

[BrandysBabies]

I wanna know what bun is!!!

 

[gigglebox]

I wanna know what bun is!!!

LOL you make me giggle I will post later if you all still care to know I've slipped to a couple coworkers today but only 1 caught on...

 

[Mommy2be20]

LOL you make me giggle I will post later if you all still care to know I've slipped to a couple coworkers today but only 1 caught on...

Dying over here!!! There's something so exciting about finding out what team someone is on! xxx