Cystic Hygroma (large NT@12 weeks)--not a good scan--Updated :)

That's FANTASTIC that the fluid's gone! You've made it over a major hurdle... just breathe and think "baby steps" with this one. You're doing a great job, mama!
 
That is such wonderful news!!! I know you are still worried about the possibility of Noonans, but you have made it through so many important hurdles. Try to focus on the positives. I'm hoping to continue to hear good news. Keep us posted!
 
Thank you so much to all :hugs: noonans scares me and a heart condition scares me...but one appointment at a time i guess. I am hoping, if it has to be something, it's only a minor heart problem that can be corrected.
 
Wow! So so pleased to hear that the fluid is completely gone, that's just fantastic :D Although you didn't come home saying he's magically cured of everything, you've got one less thing to face and that little man is truly a fighter :hugs: one step at a time and just try to enjoy the positives at the moment! xx
 
Yay LO managed to kick fluids ass! stay positive about the heart issues. I don't know much about noonans, but so glad you have come this far since your first terrible appointment and hope that you + bubba continue to jump over the hurdles. x
 
Yaaaaaaaaaaaaaaaaay!!!!!!! I kept checking the thread yesterday as it was wednesday already here in australia. I'm so glad the fluid is gone.:hugs:
 
Wow that really is amazing news! One miracle at a time. Try to relish in the great news you got today. You are SO strong, I'm proud of you!
 
Right, one day at a time, one hurdle at a time.

Today's hurdle jumped: Spinda Bifida! Got tested last Wednesday and just got the results that they are totally normal. Phew! :thumbup: No spina bifida for my bun!
 
thats great news gigglebox!!!!! and with the cvs clear of the most common syndromes your more likely to have a positive outcome. i did heaps research while waiting for my cvs results and found that if cvs clear the road ahead was more positive, yes could be a heart defect or similar but our specialist told us that most can be fixed through an operation or could be minor and just need monitoring when bubs is born. you will find out more in the anatomy scan which is where we wanted to be heading. yes it could be another syndrome not tested for but they are less common than the ones they even test for. i thought if anything my cvs couldve come back as turners and suddenly i noticed heaps of short ladies around and other common things with turners can be in 'normal' people, like difficulty in maths so my point is i thought if it was turners for us, i thought it wouldnt be as devastating and more copeable. i am so very pleased that you can look forward to the scan and i am sure even if it is anything it will be ok. yes just one step at a time and i know those steps can seem like months apart, but there is a path ahead and i cant wait to hear the great news :-)
 
Chester, your words are so comforting :hugs: thank you so much, I really appreciate you taking the time to keep up with my progress. How are things on your end? Have you opted for a d&c or waiting to see what happens?

Mommy2be20--that shirt in your picture is ADORABLE. I really want to make my own maternity shirts...Where did you get a blank maternity shirt from?
 
Mommy2be20--that shirt in your picture is ADORABLE. I really want to make my own maternity shirts...Where did you get a blank maternity shirt from?

Thanks hun! It's actually not even a mat shirt, believe it or not :) I lucked out and found a long sleeve that's just longer to begin with, so it fits bump perfectly (for now anyways :haha: ). We have a discount store in Canada called Giant Tiger.. found it there! Then grabbed fabric paint from our dollar store, seemed like the only way to end up with a shirt that was exactly how I wanted it :flower: x
 
hi gigglebox. i sadly miscarried three days ago. all very surreal i had bit of cramping and then bleeding. went into high risk unit and they basically 'helped' it along. it wasnt something i would wish anyone to go through. especially us mums its against our nature, we want to protect at all costs. i however also needed to have a dnc as the placenta didnt come away well and lots left in. it was all very emotional and nerve racking. it seems sometimes like months ago and other times i cant even believe it happened. i dont think its all sunk in. thats why though i love to come on hear and see the good news. it keeps my chin up! :-)
 
Chester, I am so sorry for your experience. I had a d&c once before (not related to pregnancy) and that was traumatic enough without a baby being involved. I am deeply and truly sorry for your loss and hope you get through the healing process, both emotionally and physically, somewhat easily. On the plus side, trisomy anomalies are very rare and unlikely to happen again. I'm sure you've heard it before but there really was nothing you could do; just random chance. I hope you find the strength to recover and begin to try again soon :hugs:

Please keep me updated with everything! I would love to hear how you go on with your TTC journey.
 
I have sat here this afternoon and read your entire thread. Your situation almost mirrors mine. My baby was diagnosed at our 12 week scan with a 4.1mm cystic hygroma. I was given very thorough information about what this could mean by a genetics doctor but the entire conversation was very doom and gloom and carried a "sorry for your loss" tone. Needless to say I was devestated and an emotional wreck and I still have my momments. My husband an I decided to get the CVS test and the FISH and full test came back normal for chromosomes and we found out we were also having a boy. I have not had any other detailed scans since and I am 20 weeks in three days. I have had two prenatal appointments since and have had an US at each one, as I also have hypertension and I am considered high-risk so my prenatal doctor does one at every visit. So far Squirt has been growing on target, is very active and his heart beat is fine. At our scan last Friday my prenatal doctor said that he thinks that the CH has resolved and that he doen't expect them to find anything on the 20 week scan on Thursday. We also have an echocardiogram scheduled for October 24th to check the heart. I am very optomistic. This is our frist pregnancy. I can totally relate to the stress you are going through. It is such a wait and see kind of thing and I find myself experienceing such a huge range of emotions from anger, to anxiety, to joy, and sadness. I am angry that the diagnosising doctor gave us such little hope, as I feel like she robbed me of my joy. I should be happy and excited, but instead I have felt detached and unsure and then guilty for feeling that way. I feel like I can't really celebrate until after the next two scans. I did alot of research and found that there really isnt much out there. I keep reminding myself that so much is unknown. No one knows how many women who terminated their pregancies, and there are alot of them as this is the most common advice given women in this situation, would have had positive outcomes. we also don't know how many women had them at 12 weeks, but never got the scan because it is not available and then it had resolved by 20 weeks and they never even knew they had it. I also put into perspective what a positive outcome is, for many doctors I think that it is a 100% no complications pregnancy and healthy baby, where for me it is something that the baby can survive and is treatable and manageable. I found a lot of support from the babycenter support group, I never posted there but the success thread really helped me, and another website, which I can't remember but if I find it I will post it. That website's purpose was not support, but to inform doctors that successes do happen so that they will not immediately advise women to terminate. I fortunately was not advised that this was my only option but was told that I would probably have a very sick baby and that I would probably miscarry anyway. It was very frightening, but things are looking up. I can't wait to hear how your story goes and I will keep you posted as well. Hopefully we can post our success stories on these sites as well. Good Luck and thatnks for sharing your story.
 

Users who are viewing this thread

Members online

Forum statistics

Threads
1,650,430
Messages
27,150,619
Members
255,846
Latest member
monikabavuro
Back
Top
monitoring_string = "c48fb0faa520c8dfff8c4deab485d3d2"