Cystic Hygroma (large NT@12 weeks)--not a good scan--Updated :)

[heddafish]

Just Got back from the Fetal Echocardiogram and we are DEFECT FREE!!! I have a miracle on my hands. The gentics doctor we met with at 12 weeks told us 80% our baby would die or be incredibly sick and today, perfectly healthy baby. we are so relieved.

Tried to attach the picture. Did it work?

 

[gigglebox]

Yes! he's BEAUTIFUL! Congratulations!!! Are they going to release you from high-risk watch?

 

[Chester1]

whooo hoooo!!!! photo looks perfect heddafish. congratulations.

everything crossed we will hear the same from you to gigglebox. i am quite excited for you to say the least!

my first day back into the land of the living so to speak. kids just finished school holidays which was right in amongst all my dramas so their holidays ended up being a lot of dvd watching..... at my sons kindergarten there is a young little girl there with turners. she isnt severe although she has a heart murmor which is monitored. to look at her though she is just perfect. i had a little weep to myself as i felt sorry for me not having any chances left and i remember watching her before my results came through thinking turners would be ok and if my baby had to be diagnosed with any.... sigh.... so tough week ahead for me being back into routine of seeing people, putting on the brave and fake smile...

 

[gigglebox]

time will heal you, that I am sure of. my heart weeps for you so much, but you are so strong! that is so sweet about the girl with turners. have you talked to her parents before?

 

[heddafish]

@gigglebox probably won't be released from high risk as I have chronic hypertension, but that I was prepared for. I am wishing the absolute best for you too. I have been crying on and off all day from relief an joy.

 

[Mommy2be20]

heddafish - truly a miracle and what a beautiful scan pic you got there!! xx

Chester - like gigglebox said, you are VERY strong I actually admire how you've kept up in here so intently! xx

gigglebox - my MW said it's definitely the fact that my torso is so short, the top of my uterus is now an inch past my belly botton.. holy! I'm terrified that I'm gonna be huge in the end lol, oh boy I will for sure update after my scan.. I'm getting ridiculously antsy and I hate admitting that I'm rooting for a team, but I am hoping and feeling too. We'll see how good my instincts are shortly! xx

 

[gigglebox]

so excited for you! are you feeling baby yet? Bun's been wiggling more and more recently. No kicks yet, but that "flutter" feeling i guess...it's more like someone's sweeping a finger across the front of my uterus below my belly button. So weird...I'm also, like, really aware of my uterus (if that makes sense) when i'm laying on my back. It's like it's a heavy weight on my lower abdomen. I didn't imagine it'd feel like that but I find I can't sleep on my back anymore.

Anywho I hope it's a girl for your sake! Can't wait to hear!

 

[Mommy2be20]

I feel baby a ton kicks are my favourite, but they catch me off guard and scare me I usually jump! I describe them as feeling like a muscle spasm, sounds weird, but VERY soon you'll know what I mean! I had that heavy uterus feeling today, oh my goodness, not laying on my back but walking around, it just feels like a bowling ball in there.. I'm glad I never lay on my back, I can only imagine how uncomfy all that weight is! Can you believe if baby stretches out the legs, they're 10" long now?! It feels like just yesterday it was just a tiny spec of cells... wow never ceases to amaze me xx

 

[Chester1]

hi gigglebox. i havent had a real chat with the mum of the girl with turners. i didnt like to probe to much. but i would love to - just to see i guess the journey she had to go on. whether a cystic hygroma was detected etc. from what i see in all the research and topics is a cystic hygroma is very rare as it is. i just read on the babycenter page a lady has confirmed diagnoses of having a turners from her CVS and another lady who has had a turners baby is going to feature in a 700 club episode with her miracle turners baby. i think we ladies need to be so well informed when we deal with the doctors advice. thanks for all the lovely words about being strong. i am trying each day to carry on. i feel like i have been robbed of my baby. i take a music session at a local playgroup today and i was quite anxious about it but i got through it and the kids loved the xmas songs (i know its a bit early but they take a while to get the words and actions). it was great to see their faces enjoying themselves and am glad i went in the end and not avoid it.

 

[gigglebox]

Mommy--I can't wait to get the feeling of movement even more frequently. I need some constant reassurance...

Chester--I'm glad you went too! And in my opinion it's never too early for Christmas music How cute for them to be able to sing to their parents this year! I love it. Also, personally, normalcy (at least to some degree) often helps me be distracted when I'm going thing hard times which I find very helpful.

 

[sunbaby777]

Just Got back from the Fetal Echocardiogram and we are DEFECT FREE!!! I have a miracle on my hands. The gentics doctor we met with at 12 weeks told us 80% our baby would die or be incredibly sick and today, perfectly healthy baby. we are so relieved.

Tried to attach the picture. Did it work?

Awesome news! See...doctors are so pessimistic. They don't know everything! So glad to hear good news!

 

[gigglebox]

Good morning everyone! How are you all doing? I can't believe it but it's snowing here. I live on the east coast...a bit too early for snow! The leaves on the trees are beautiful right now for the fall, but I can't believe they're now snow covered.

In baby news, the Bun is giving me more frequent flutters (which feels more or less like a quivering muscle). His feet must be on the lower left side get to hear his little heart again Tuesday.

Heddafish--did the doctor mention anything about Noonan's syndrome?

 

[Tracyface]

Hi gigglebox, just read the entire thread, what an emotional roller coaster, and some sad stories too (hugs to those ladies).♥

Glad all looks good for you and you and little bun is wiggling away!! I will keep my eyes on this thread.

xx

 

[Mommy2be20]

giggle - yay for the muscle spasm feelings!!! You're soooo close to the good proper kicks I caught a quick kick on video last night, although it's sorta hard to see as the kicks aren't huge yet, but it's still exciting enjoy knowing exactly where his feet are, that won't last long the past few days, kicks have been everywhere for mine, s/he goes from kicks up at my belly button to down at my pubic line.. I wish I had their energy!! x

 

[Chester1]

hi gigglebox and co, wow, re the snow. interesting we live at sea level here and NEVER have gotten snow and this winter just gone we had three days of it!!!! it was unreal. i go mountain running and it was really really thick in the hills. did get sick of it quickly though - i remember feeling ill (cos of the morning sickness at the time) and cos of the cold snow - not a snow person at all.... good luck for tuesday i will definitely check in for your good news cant wait, got my fingers crossed for you!

 

[gigglebox]

thanks all Tracyface--welcome to the thread and thank you for reading everything! I know it's become a LOT of posts!

I was just thinking how long this thread is now...When I made my first post, I really wasn't counting on making it this far. I am so lucky to be able to continue to report! I've just been spending hours between yesterday and today reading through the cystic hygroma threads on the other baby website (I think it's baby center) and I just now realize why that is; when I was diagnosed with the CH, I was going to an appointment every week or at most every other week...by my next appointment it will have been 3 weeks...blah, it gets really nerve wrecking!

On the plus side my appointment is Tuesday, and tomorrow will hopefully go fast since it's Monday and Halloween in the states...we'll have a part at work so I hope it's nice and distracting!

Which reminds me, I'd better go work on my costume. Is anyone in the states gearing up for Halloween?

 

[Mommy2be20]

It's so amazing how you've made it this far, it just goes to show that miracles happen I'm in Canada, but halloween is tomorrow for us also.. one of my favourite holidays, I absolutely love seeing all the little kiddies in their costumes! I spent most of yesterday decorating the house, I've had treat bags put together for a couple weeks already Although I'm not dressing up, I'll be wearing the shirt that I made! What are you dressing up as?? xx

 

[gigglebox]

We have a Halloween party going on at work today; I dressed as another coworker lol; people are getting a kick out of it. I originally was going to do a team costume with my "work wife" as alice and the queen of hearts. I tried to make my queen costume and it failed miserably! So, last minute, i conjured up my coworker costume which was pretty easy. She wears sweats all the time and usually a t-shirt with a cartoon of some sort on it, and sneakers. It was pretty easy! I don't plan on dressing up tonight to hand out candy though. I've been too tired to do anything decorative around the house; This is the first time in probably 22 years that I haven't carved a pumpkin! There is one sitting on my porch but I haven't the energy to do anything about it lol. we also bought candy, that's about it!

 

[Mommy2be20]

Oh I bet that was funny dressing up like another coworker good idea! Speaking of pumpkin carving.. ya, I kindly asked my mom to empty it out for me before I woke up and just carved it real quick after lunch I totally hear you on the no energy, I tend to procrastinate badly these days, oops! On a great note.. your appointment is tomorrow now x

 

[gigglebox]

eeee!!! I know, I am excited...even though it's just a doppler, that little thudding heart is so reassuring.

I had to get hubby to buy more candy...it doesn't look like we'll have enough now. We live on a pipestem (also known as a shared driveway) with 5 other houses and the house at the top of the drive has a haunted house in the garage, complete with gravestones, lights, and scary music...which means lots of kiddies will be attracted to our driveways It'll be cute to see all the kids in costume, and if it gets too much we can always shut off the lights!

ANYWAY...speaking of appointments, yours is coming up shortly too!!! That's so exciting! I'm still convinced it's a girl...for no real reason at this point lol.